Kohen Kicks Cancer

Kohen Kicks Cancer Neuroblastoma Warrior ๐Ÿ’œ๐ŸŽ—๐Ÿ’œ

Per our telemed appointment with Kohen's oncologist today, the residual nodule by her L2 vertebrae appears to still be s...
02/28/2026

Per our telemed appointment with Kohen's oncologist today, the residual nodule by her L2 vertebrae appears to still be stable but to be cautious, he wants to present her case at the tumor board meeting next week to gather other opinions due to very very slow measurement change that has occurred since her treatment has ended. He will update us in regards of that meeting towards the end of next week.

In other news, we are very happy to say that there is no other evidence of disease!!

For every whispered prayer there is a whole lot of gratitude! Thank y'all & thank you, Jesus!!!! โœจ๏ธ๐Ÿฉท๐ŸŽ—

02/26/2026

Just an update to say that we have received Kohen's CT result of her chest, abdomen, and pelvis but we are still awaiting the result of her MIBG (whole body scan). I'll update again with confirmation as soon as we have it and hopefully it's soon! ๐Ÿซถ

I also wanted to thank you all for lifting our sweet girl up in prayer, including us! You have no idea how much that means to us and helps get us through these stressful and dreadful scan days!

Kohen's anxiety was unfortunately through the roof today. The whole way there she was so nervous. From the moment we walked through the doors she cried until it was time for scans and she put up one heck of a fight being put to sleep. Nothing we said or done could calm her down. She cried. I cried. It was simply heartbreaking to see her panic and not being able to fix it. Once it was over her anesthesiologist highly suggested putting her on anxiety medication. So we will be discussing that with her oncologist Friday during her 3pm telemed appointment and also with her local NP for any future medical visits.

Kohen also despises taking any oral medication other than your typical allergy meds when needed so that's been a trial and error in the past with Ativan! Please pray that we are able to find something that eases her anxiety without making her feel angry and without the feeling of if she's going to fall asleep. ๐Ÿ’•

IV โœ…๏ธLabs โœ…๏ธNuclear medicine injection โœ…๏ธSis powered through today with big bravery and minimal tears.... then made a be...
02/25/2026

IV โœ…๏ธ
Labs โœ…๏ธ
Nuclear medicine injection โœ…๏ธ

Sis powered through today with big bravery and minimal tears.... then made a bee line straight to the toys per usual ๐Ÿ’•

Scan day is tomorrow and as I read my daily devotional for today, one of the verses stated-

Jesus immediately said to them: โ€œTake courage! It is I. Donโ€™t be afraid.โ€โ€”Matthew 14:27

02/06/2026

๐ŸŽ€Kohen's rescheduled dates for her CT & MIBG scans will now be on Wednesday, February 25th, 2026.

๐ŸŽ€Labs and nuclear medicine injection will be Tuesday, February 24th. We'll also have a telemed appointment with her oncologist that following Friday at 3pm.

01/26/2026

Kohen's scans are being rescheduled due to travel conditions and the delivery delay of her nuclear medicine injection on Wednesday. I will provide an update as soon as we have a new date confirmed. ๐Ÿ’›

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Helena, AR

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