Kolten's AML Journey

06/01/2026

Day +103

Kolten hasn't been feeling well since his biopsy. Within the past couple days, he has also lost his sense of smell and taste. So we were sure he had covid. But was swabbed today, and has a virus (i didn't write down the name, so, of course, cannot remember). Basically since he has had it for so long, they think it has run the worst part of it's course, so just told him to lay low for the next week or two.

We are in Houston tomorrow too, as he has multiple appointments then also. Then back to San Antonio til Sunday, when we will return until after his appointments on Monday and Tuesday again.

This is SO hard on us. We thought we were getting back to a normal life, but this is anything but normal. Now Koah is going to be needing another MAJOR surgery on her hip, so that is going to put us in an even bigger bind. Never, ever, 15 months ago, did I even have a NIGHTMARE that our family would be enduring this unimaginable nightmare. Our only worry then, was Brekyn's type 1 diabetes, and that is a cake walk for us now, it seems. Depression is REAL.

Anyway, his labs were good and they stilll are waiting for some of the deeper biopsy results, but the team is THRILLED with his results so far. He will be starting his maintenance chemo, that he will be on for 2 years, within the next couple of weeks, they told us today. Hoping he doesn't react to that is any negative way, as he was on it before and it was ok.

Thank you for all the love and prayers. We still are asking if anyone would like to help, this is our GoFundMe. Struggle is an understatement for our family at this point.

🫶🎗🫶🎗🫶

Hello! Me again.... I have chosen to set my pride aside again, and tell … Alana Smith needs your support for Help with Travel Costs for Kolten and Koah’s Care

05/30/2026

A dear friend donated this for a R A F F L E!

If you're an Astros fan, you NEED!

Only 25 spots at $10 a piece!

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Venmo- Alana-smith-33
Paypal- [email protected]

Thank you!

05/29/2026

Day +100

No words..... just going to leave this for y'all to read for yourself.



🎊🎉🎊🎉💪🎗💪🎗

05/26/2026

Day +97

Today was a HUGE day in Kolten's journey. His first bone marrow biopsy since his stem cell transplant. He had multiple appointments, so we got to MD Anderson nice and early. He had labs drawn, saw his amazing counselor, met with the Stem Cell doctors, the ORCA trial team, then off for his procedure. I could sense the nervousness with him. But that was probably because I was a nervous wreck. But today was so important. This biopsy will tell if there are no cancer blasts in his bone marrow. Basically, did the new donor cells work?! We deeply feel that they absolutely did. But as a mama that has watched my son in the fight of his life, I still am very nervous about the results. So now we wait. The results typically take 5-7 days to be complete.

Everything else looks amazing with him! His hair is growing back in (looks super light compared to how it grew back last time), he has an appetite again (gained 2 pounds since last week), and he just looks amazing! All his labs are beautiful too ❤️

The team still wants him back once a week. So we are living part time in a hotel for now, which isn't fun, the babies make us crazy in here.... lol. Never a dull moment. Koah has a hip appointment tomorrow, so we had to stay an extra day. It is in Galveston, so 2 birds, one stone.

Anyway! We love y'all and lets pray for NO BLASTS!



If anyone wants to donate to help us with travel and medical bills, this is our GoFundMe. I can provide receipts for EVERY dollar spent! Or my Venmo is Alana-smith-33

https://gofund.me/c12ea99fa

05/25/2026

Day +96

Tomorrow is Kolten's first bone marrow biopsy since SCT. We need all the good vibes, prayers, healing juju, whatever, sent our way. This mama heart is worried sick. There is no pill or therapy that can calm you when you feel this anxiety 😞 But deep down, I know he is still cancer free 🫶

05/24/2026

05/23/2026

Thank you SO much to Chloe, Kim, the School of Rock in Conroe, and The Brand! We had an awesome benefit today! The weather got so wild, but we had a decent turnout! Thank you to everyone who came and bought stuff!

On our way back to the hotel, we stopped to pick up prescriptions. This is so crazy... look at these prices. 3 prescriptions. Oh well, at least my baby is here. You cannot put a price on his life, and I can always provide receipts for every penny donated 🫶

Thank you, again, for all the LOVE!

If you didn't get to come and care to donate to help us at all, this is our GoFundMe.... 🎗🎗🎗

https://gofund.me/bec219559

05/23/2026

TODAY! We are heading out now to make it in time... hope to see everyone there!
📍The Brand
2111B Airport Rd, Conroe, TX 77301

Live music!
Lunch!
Silent auction!
Pew-pew raffle!
50/50!
My wild crew!

Come see us!

PS Need NOT be present to win on PEW r a f f l e!
Venmo Alana-smith-33

05/20/2026

Day +91

Kolten is doing really well, physically. Mentally, I know he misses his teenage normalcy. He desperately misses his brother living with us. He misses him so much. Hopefully, after Kolt graduates, he can move back to AZ and be Gavin's roommate. I will be their neighbor (just kidding... or am I?!?).

He had a few appointments today at MD Anderson. Everything went well. Labs look good! He has another appointment on Friday, then a full day in patient on Tuesday (Monday is Memorial Day, so clinic is closed.... long weekend for us in Houston!). It is really hard to travel back and forth so much with the 2 littles. Brek has type 1 diabetes, so has to go p*e so much. It makes for a long drive. And Koah, when she has had enough, she has had enough, and will scream the whole way.

Kolten will get his +100 day bone marrow biopsy, and that is giving me the WORST anxiety. Although I feel very confident there will be NO blasts, it still is a HUGE fear of the unknown. But he and I both know, he still is cancer free! But my mama heart still worries, unfortunately.

We will be heading back to San Antonio this evening, so I can get a couple days of work in, and Brekyn's last day of kindergarten is tomorrow! I will be doing a spaghetti plate sale tomorrow, from our home, if anyone is interested! $10 per plate! My spaghetti is the BEST!

DRAWING FOR THE LOUIS WILL BE LIVE TOMORROW NIGHT AT 8PM. I promise. I have been slacking with our new schedule, but I will get it done tomorrow night for sure! Also, you do not need to be present to win, for the pew-pew at the benefit this coming Saturday, so let me know if you need tickets! We will do the drawing live, on Saturday, as well.

Thank you, as always, for the love, prayers, donations, support, ALL OF IT. We love y'all ❤️