09/10/2026
Tomorrow morning, we head back to UAB for Weston’s follow-up EEG to see if the steroids he’s been on for almost three weeks have done what we’ve been praying they would do—stop the spasms.
Looking at this picture, my heart just breaks. 💔 My sweet boy has quite literally been through hell with these medications. His tiny body is swollen, he can’t sleep, he constantly wants a bottle but never seems satisfied, and he’s so incredibly restless—like his own skin is constantly crawling.
As his momma, it’s been so hard to watch him go through this. We know these steroids are powerful, and we know they’re doing what they need to do, but knowing that doesn’t make it any easier to watch your baby struggle.
And even if tomorrow’s EEG shows that the treatment worked, we still have another five weeks of slowly weaning him off the steroids ahead of us. We’re not quite at the finish line yet, but we’re praying that we’re finally headed in the right direction.
So tonight, we’re asking for prayers. 🙏🏼
Please pray that these steroids have done their job. Pray that his EEG shows the progress we’ve been desperately hoping for. Pray that his doctors feel confident in where he is and, most of all, pray that we get to bring our sweet boy home and start putting yet another incredibly difficult chapter behind us.
Weston has fought so hard. Now we’re praying that his little body can finally get some peace. 🤍
