A Miracle for Ella Rose

09/04/2026

09/03/2026

There are more than 50 known types of leukodystrophies, each affecting the brain’s white matter in different ways. 💚 While these diseases may be rare, the individuals and families impacted by them deserve awareness, support, and hope.
This Leukodystrophy Awareness Month, we’re sharing facts to help educate, raise awareness, and amplify the voices of the leukodystrophy community.

09/02/2026

🔗: bit.ly/4xDSnDc

Pete Davidson has made a generous $20,000 donation for research into a rare disease after meeting a young fan who has the genetic disorder, a source confirms.

📷: Cri Du Chat Research Foundation/Facebook

09/02/2026

September is Leukodystrophy Awareness Month & I’m stepping up. 💙 HALF of all my photography proceeds will go to the United Leukodystrophy Foundation (ULF) & Bonkowsky Lab at the U of U.

Leukodystrophy is a group of rare genetic disorders that damage the myelin protecting the nerves in the brain and spinal cord. There’s still no cure, but research and treatments are advancing and they are a big part of that progress.

This is personal. My big brother lived with this disease and passed in 2017. He never got the chance at the advances happening now. ULF & the Bonkowsky Lab both support families with resources, community, and research funding, and they’ve meant the world to me.

In his honor, and for every family still fighting, half of every sale goes to them.

Thank you for supporting this with me & don't forget to wear blue in honor of Leukodystrophy Awareness Month! 💙

Message me to book your session!

For more information about leukodystrophy, click the links in my bio!

09/01/2026

Doing the slide all by herself during school PT today 💪🏼🤯

09/01/2026

08/31/2026

08/28/2026

This needs no caption but needless to say, Ella is so excited school is back in session! 💕