A Miracle for Ella Rose

A Miracle for Ella Rose Ella's fight against Vanishing White Matter Disease (diagnosed in July 2019), a type of Leukodystropy

Smiling but being silly and refusing to look at the camera because you know that’s what big 4th graders do! πŸ€£πŸ€¦πŸ»β€β™€οΈ But I...
06/10/2026

Smiling but being silly and refusing to look at the camera because you know that’s what big 4th graders do! πŸ€£πŸ€¦πŸ»β€β™€οΈ

But I did end up getting a good one from school.

Peace out 3rd grade; it’s been an incredible year of growth for this girl!

We are so grateful again this year for her teachers, therapists, administrators and her incredible new aide, Ms. Jackie. THANK YOU! πŸ’•

Now, all this girl wants to do is go to the beach. πŸ–οΈ 😎

We have 9 spots left for golf teams and are in need of hole sponsors. Please share!
06/09/2026

We have 9 spots left for golf teams and are in need of hole sponsors. Please share!

06/09/2026

I wish there was the same viral outrage for the living children with disabilities as there is for this one couple who chose to terminate their pregnancy because of a disability.

I wish people fought this hard for accessible playgrounds, inclusive schools, funding for therapies, respite care, adaptive equipment, accessible housing, and medical supports.

I wish there were viral debates about why families wait years for services.

I wish there were headlines about children being excluded from activities because accommodations are β€œtoo difficult.”

I wish there were millions of voices demanding that disabled children be given every opportunity to thrive once they’re here.

But the truth is, the conversation often gets very loud before a child with a disability is born.

Then it gets very quiet.

The families raising these children are left navigating inaccessible systems, endless paperwork, financial strain, and isolation while the world moves on.

If people care about children with disabilities, that care shouldn’t end at birth.

It should show up in policies.
In communities.
In schools.
In healthcare.
In support for the families who spend every day fighting for their children to have the same opportunities as everyone else.

Our children deserve more than being the subject of a debate.

They deserve to be seen, valued, included, and supported throughout their entire lives.

If you’re not raising your voice just a loud for the children that are already here…

maybe sit this one out.

Written by: Carla Moore from Payton's Path

An update on our friend Jada now that she has returned from her 7 month stay in the US for the   to   πŸ’•πŸ’•πŸ’•
06/05/2026

An update on our friend Jada now that she has returned from her 7 month stay in the US for the to πŸ’•πŸ’•πŸ’•

πŸ’•πŸ’•πŸ’•
05/27/2026

πŸ’•πŸ’•πŸ’•

Did you know? Because of your generosity, the Believing for Bryleigh Foundation has raised over $4 million dollars since 2013. πŸ•ŠοΈ

We are so proud to support the resources that make the journey a little lighter for families, including the dedicated "one-stop-shop" Leukodystrophy Care Network Center right next door in San Antonio.

No family should have to walk this path alone. πŸ’

We’re not stopping here. On October 4th, we are coming together for our big fundraiser to continue building this legacy of support. Visit https://believe4b.org find out how you can join the event and help us reach the next milestone!

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Huntersville, NC
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