06/17/2026
It was one year ago today that Rusty died. He’s now in heaven. His ashes are scattered. His home has new owners. His many beloved possessions are being utilized and cherished by family members, friends, and those who purchased them at his estate sale. The black “number” box that sat on his desk now sits on my desk, and serves as a daily reminder of him and his indomitable spirit.
I thought ALS was the worst possible disease. Now I know it is not. In part this is due to my son’s Yale football coach now fighting Creutzfeldt-Jakob disease (CJD). But mainly it is due to my experience of watching Rusty battle ALS. He faced this disease with much courage, grace, and optimism. Rusty kept his extraordinary intellect and ability to communicate to the very end. He had a great life, which he continued to enjoy to the last. He was truly inspiring to me and so many others.
ALS served as the impetus for me to make numerous trips to Hutchinson over Rusty’s 2 ½ year battle with the disease. This was a huge blessing to me, as it allowed me to spend a lot of very precious time with my older brother. We watched “Suits” together. We cheered the Chiefs to victory in the Super Bowl in 2024. He taught me how to win at Ken-Ken (an online math game) and introduced me to the fun of playing many other online games. We had both quantity and quality of time together. These trips had the added bonus of allowing me to spend time with my other wonderful siblings and their families.
ALS also allowed me to get to know some of Rusty’s great friends. I love this picture of him with his Saturday morning Prairie Dunes group of friends. It was my great privilege and pleasure to get to know these compassionate and caring people. They really came through for him when he needed them. As did so many of you.
I am thankful for this page and the chronicle of his life that it provides. Its content allows me to see and hear Rusty speak, and to read his written words. It reminds me of him, and you, the many faithful and encouraging followers of his journey. Thanks for your caring and inspiring words and stories! Have a great life!
Rhonda