Jamiebug: Life After Transplant

Jamiebug: Life After Transplant Life breathing with someone else's lungs since 2007. Cystic Fibrosis, Cepacia, Double Lung Transpla

I can’t believe 2026 is coming to and end so quickly…which means in December this year I will cross the milestone of 19 ...
09/04/2026

I can’t believe 2026 is coming to and end so quickly…which means in December this year I will cross the milestone of 19 years double lung transplant- which will put me at 20 years post transplant December 2027.

When I had my surgery the reality of living and being healthy at 20 years post db lung transplant was so unrealistic that I told Bryan that if I live 20 years out, that I would get a Porsche…. Both dreams were so outrageously unreachable.

My surgeon said I would get about 5 yrs and that would be a success…with my complicated case and the Cenocepacia burkholdia my survival statistics were EXTREMELY less than other cf patients who did not have the bacteria.

But here I am just a little over a year away from 20 years…now I don’t honestly want a Porsche… but instead I wish I could have this instead. lol.

*anyone know of an amazing barn/equestrian center builder haha 😂 Well a girl can dream. And yes I do want it pink 🥰 “Jamiebug Barn”

05/28/2026

Transplant Check up and a family church history experience. Four Generational Family trip. Grandma, Mom and dad, Nikki and me ) our spouses and great grandchildren Bodi & MJ. What a blessing and miracle to be together still. God is good. :5 UPMC Joseph Pilewski

Just one day before we go see my Dr Pilewski! I'm lucky I have such a brilliant doctor. I'm praying good test results an...
05/19/2026

Just one day before we go see my Dr Pilewski! I'm lucky I have such a brilliant doctor. I'm praying good test results and no signs of rejection.

Also a lip cancer updates photo…i can't believe believe how great it's healing…👄 can you even see it.

Warning ⚠️ Before and after pic is tough to look at. Progression of my lip.

Quick cancer in my lip update: surgery day! This picture Is a little graphic but it’s the reality of what our immune sup...
04/21/2026

Quick cancer in my lip update: surgery day! This picture Is a little graphic but it’s the reality of what our immune suppression can do to our bodies. I’m grateful my meds are working to keep my lungs happy and cancer process their doing this job as well. . I’m waiting on a plastic surgeon to fix it all up. I’ll post another update as it heals.

04/01/2026

UPMC

We are having a beautiful early spring. I’ve been able to go out and play with my horses a few times. * my lip cancer is...
04/01/2026

We are having a beautiful early spring. I’ve been able to go out and play with my horses a few times.

* my lip cancer is scheduled for MOHS surgery on April 21st and the plastic surgeon will get it closed up (and looking beautiful) that same day.

*We will be in Pittsburgh in May for my annual follow up. I will be 18 years 6 months post transplant. Hopefully my lip will be healed up by the time we have to travel.

Enjoy some pics of my little pug and my fat horse Stardust 😊 I can’t believe she’s 4 this year. She is taller than me and is standing at 15hh and could still grow 😭 anyone know how to train her to lay down so I can get on her? 🤪

My PFT’s are steady and I’ve been feeling great.

I hate it when I’m right…. But biopsy results are in and it Is CANCER. I’ll need MOHS surgery and then a plastic surgeon...
03/11/2026

I hate it when I’m right…. But biopsy results are in and it Is CANCER. I’ll need MOHS surgery and then a plastic surgeon will hopefully fix it up nicely. At least I know my immune suppressants are working- skin cancer is better than dealing with rejection 🤪 maybe I can request the plastic surgeon to give me Angelina Jolene lips 👄

Quick lip cancer follow up… my upper lip had healed up pretty nice (hopefully it stays that way. The bottom lip however ...
03/02/2026

Quick lip cancer follow up… my upper lip had healed up pretty nice (hopefully it stays that way. The bottom lip however didn't not fully heal and it might require MOHS surgery. I see my dermatologist tomorrow.

Yes I am as miserable as I look in that photo. Here’s a glimpse into the non-glamorous side of living 18 years post tra...
01/14/2026

Yes I am as miserable as I look in that photo. Here’s a glimpse into the non-glamorous side of living 18 years post transplant…. Skin cancer. The immune suppressants cause a lot of side effects but the skin cancers on my scalp and face and lips 👄 are definitely not fun at all. I’m hoping this latest treatment of my “cancer cream” takes care of these spots because I really don’t want to have to have them surgically removed. Ugh. But on a brighter note, my lung function is up and stable- yay!!

Another Christmas season has arrived, and I feel grateful to spend it with my family and pets. I feel compelled to ackno...
12/24/2025

Another Christmas season has arrived, and I feel grateful to spend it with my family and pets. I feel compelled to acknowledge the organ donor who gave me a second chance at life. Despite the passing of 18 years, I still know very little about this extraordinary person. I am aware, however, that her family likely thinks of her fondly during this time of year. I offer them my warmest wishes and love. Organ donors are indeed heroes, and their selfless actions inspire us all. I urge everyone to consider registering as an organ donor, as this decision can be a lifesaver for someone in need.

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Idaho Falls, ID

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