Face Palm My Health

Face Palm My Health Balloon in the dart game of health. I'm a highly intelligent, witty knower of things.

Slammed with RA, Sjogrens, CKD, one kidney, wonky innards, osteoarthritis, L2, L3 hemangiomas making a pain in my back & ass and a plethora of other maladies.

05/06/2026

I'm done being Eeyore for now. Knee is better, still no gymnastics(like that was really going to happen!).
I saw my urologist yesterday for my yearly post kidney cancer checkup and there's a few things - he knows I'm not dense so he said just keep doing what I'm doing and keep blood pressure steady, lots of water. Since I had normal kidney function pre cancer, he thinks I should be able to hold my low filtration for the rest of my life -hell yes!- He seems to have high regards for my nephrologist, his office actually sent me to my neph's partner back in my stone days. No change in the apparent scar tissue and the cyst on the spleen is just fluid and not to worry. Chest X-ray was fine, shortness of breath and occasional wheezing is probably attributed to autoimmune BS.
If you're in Indianapolis and need a urologist, I highly recommend Dr Cone from Urology of Indiana, he's Harvard and Brown educated, very personable and gets my humor.
A few years ago, I told him after I missed an appointment that I totaled my car on the way and was living a bad country song, he busted out laughing!
I also asked his opinion on the Hydrogen Water and he said it was much like a biopsy on your wallet🤣

I'm still going to try it since I have it lol

05/04/2026

Nothing exciting here. Knee is better but I won't be skipping in the next week. I've been sleeping a lot with no appetite, like all week. I don't know if it's an autoimmune flare or kidney thing. Daily wimpiness, crying and whining, I don't have the energy for bitching or causing mayhem on FB that usually delights me. Mister took me running around for an hour yesterday to get me out of the house and then right back in my robe.
I did find out about something that I'm going to try for all my ailments - Hydrogen Water. It's water boosted with hydrogen, often used by athletes, it absorbs easier and helps with inflammation. It has been tested and doesn't seem to be a gimmick. You can buy pre-made or drop tablets in water or get some machine to make it but I'm not buying one of those unless it's a true wonder.

05/01/2026

I've had some new really bad knee pain for the last few days. Put a brace on and slept a lot, it's getting better from staying off of it, thank God since the toilet was tricky. I couldn't bend my knee and the tub is right in front of the toilet. I had to go side saddle lol
I got my MRI report from last week. The nodules where my kidney was don't seem to be changing, they're why I have yearly MRIs, labs and see urologist. I'll have questions for him.
MRI says I have a 2mm cyst in the inferior medial spleen. What in the hell is next? I shouldn't even be on here in this mood. It usually helps to write about things which is partly why I started this page to act as a journal. It's probably time to get life insurance, pre-plan and divy up my stuff.

04/25/2026

I'm very concerned so my humor might be low.
Back in '22, I had a radical nephrectomy (kidney removal) due to renal cell carcinoma. Day of surgery, my egfr was 60(rate of kidney filtration, normal is 90) next day, it was 30. It stayed at 29/30, in November '25, it dropped to 25, it was 27 in April '25. I started a DMARD, le Flu NoMide in January for RA, it is working and supposed to be acceptable treatment for RA with CKD because of its lower excretion through kidneys, it's -mostly safe-
Labs in February showed another drop in egfr to 23. Had labs Tuesday, on Wednesday, walked into my MRI and was immediately told that they weren't using contrast because the labs showed my egfr is 21.2 and creatine was up to 2.3(normal is more in the 1 range).
I've also gotten calls from my urologist and P*P yesterday and today advising me to see a nephrologist immediately, they somehow didn't know that I have one. I've got a call in. My head is going 120mph over this.
In layman's terms, I'm filtering less than 1/4 of the blood in my body and the creatine level means basically dirty blood. I have CKD stage 4, when egfr hits 15, it's stage 5, that's renal failure and dialysis.
I'm tripping. I've probably had RA for a few years and keep bouncing back n forth wondering if RA attacked the remaining kidney or did the kidney cancer and stress from everything start up the autoimmune diseases of RA and Sjogrens? On the other hand, did the "safe DMARD" harm it? Am I looking at going on biologic infusions of H u Mi Ra (can't name it or I get in trouble) as that's the next suggestion by rheumatologist and OMG I hope it's covered because it can run a whopping $7000-$9000 a MONTH!!
Top it with this horror- the timing is looking like a vortex of everything foul and rotten because if I have carpal tunnel surgery on right wrist and dialysis on left arm, how the hell am I going to wipe my ass? My mister has been a trooper and really would help me but OMG. Most of my followers have some type of hell's fury and understand that feeling of fading independence even if it's just temporary but damn.

Mom had renal failure from unknown reasons. Glad I have a great memory and intelligent enough to study up and understand everything. When her kidneys started to go, she had to cut a lot from her diet, sodium and low animal protein for starters. They tried a p*k line for short term dialysis to give her kidneys a rest but it didn't work so 7 years of it and then a miraculous transplant. I don't want to do all that unless I have to.

04/20/2026

I obviously haven't posted much. Warmer temps and required adulting got me out amongst the living! Along with figuring out the fancy stuff on the new cell my daughter got me lol
I might've overdone it and used up all the spoon theory spoons to a deficit.
Sjogrens dry esophagus doesn't work well for breaded fish and it got stuck on Friday, my throat is still raw from yakking. Sprite burns! Back to soup and protein drinks! My knee feels like it's been knocked sideways, haven't been leaping about so who knows. Maybe it's the RA or the recent crazy Indiana temp drop.

Anyway, I decided to try OTC Systane Eyedrops and so far like them. Cheaper than Refresh Digital and not as thick, they feel more natural. Also tried Sunkist Sugar Free Pineapple drink mix sticks for the constant dry mouth, they're not bad and don't bother the gut like most citrus.
I'm on the hunt for another good moisturizer for my arsenal!

In my best Bridgerton Lady Whistledown accent...(aka Julie Andrews, yes, she's still kickin)Dearest gentle readers, as l...
04/09/2026

In my best Bridgerton Lady Whistledown accent...(aka Julie Andrews, yes, she's still kickin)

Dearest gentle readers, as luck will have it, I've taken to my quill to pen some ramblings. 😂

I was scared when the possibility of having Rheumatoid Arthritis was suggested but what I've probably been writing off as allergies or dentures causing thrush was the exasperating Sjogrens Disease which is equally dangerous for the sneaky havoc it causes. Both can attack organs and make everyday functions a major pain in the arse. Sometimes even a literal pain in the butt, happened once. Imagine something like a charlie horse RIGHT THERE!(I wanted to be more descriptive but fb just forgave me so I'll behave)
You can't walk that out! 😬

Those crazy nerve signals were really acting up today with the extra dry effects. I've never woke to dry eye, it's usually afternoon and later so I took a dose of "The Spit Maker". Oy. Brain fog -Oy x2! I was scrolling and like a switch flipped, suddenly I was sweating and my mouth filled to epic proportions of saliva and FACE PALM! Oh, yeah, duh...I forgot that I took the pill.
I reached for my beloved Owala jug, knocked my blood pressure bottle over that apparently didn't have the lid all the way on and pills went everywhere. In the midst of that, the yard needed patrolled by the fierce guard dog babies in case a bird fluttered by then I resumed plucking pills one by one.
I feel like that messed up doorbell to the right in the photo awaiting investigation. If you ring it, it gets stuck ringing until you yank the batteries otherwise it inspires all 3 dogs to bark incessantly.

04/07/2026

Hooray for warmer weather so the afflicted can come out of hibernation and not hurt like hell! I've always bundled up in winter but while I may have had RA for a couple of years showing in hands but the aching pain everywhere else hit in summer and ganged up until I started "that DMARD(disease modifying anti-rheumatic drug or something like that, brain fog done got me!)
med which can't be typed here".

This page got in trouble. Wasn't clear but I did see that it's against community standards to say the immunosuppresant rx name that I take. I'm guessing that my reporting of scammers and clickbait in support groups put me under fire! 😆 so my page won't be recommended to potential followers. La ti da. Ok. Whatever. -rolls dry eyeballs-

Anyway, I saw my P*P today. I seem ok except for kidney function. Got labs n xrays to get done. I told her that I noticed some wheezing when I lay down to sleep so she wants a look since RA can cause nodules in lungs. Got a new prescription for saliva, starts with c, similar to "the spitmaker" but less side effects like drooling and crazy sweats. She also mentioned that back when she was doing rotations, they often suggested Warheads Sour Candy for people with salivary stones. She loved my nickname of the med "The Spitmaker"!
I'm going to give Warheads a try and they're cheap at ye olde Dollar Tree!
If ya know me in person and my resting bitchface is gone, it's probably replaced with sour candy face! 😄

Edited- got a notice that something was against guidelines but it wouldn't say what so I changed or deleted a few words ...
03/29/2026

Edited- got a notice that something was against guidelines but it wouldn't say what so I changed or deleted a few words that are probably "hot" words if taken out of context. Eyeroll.

I loved the warmer weather, most symptoms went down and I was productive! It was nice to feel like myself and was even able to eat some soft parts of pizza!...then crazy weather decided to be cold, not a fan of it. Many people have said RA and Sjogrens is worse in cold weather and I thought they were exaggerating. They weren't. The past few days have been like taking 3 steps back. -EVERYTHING- is acting up, even my back!

Ya know the chart of evolution with the ape hunched over and gradually standing straight as a hominid? That's me the past few days but shuffling along in my robe, battling dry mouth with a mighty popsicle spear!

*back pain is probably not autoimmune but from hemangiomas (tumors) on my spine. They can be annoying but rarely cancerous.

Time flies when you actually get dressed and roam the yard then decide to sit on the porch and gossip with the neighbors...
03/24/2026

Time flies when you actually get dressed and roam the yard then decide to sit on the porch and gossip with the neighbors while they give chips to our begging dogs lol
Meanwhile, Previous to getting slammed with Sjogrens this winter, the sun was my friend. 30 minutes outside yesterday and hours to cool off. Looked it up and Sjogrens along with the DMARD I'm on for RA, can make you sun sensitive, more prone to skin cancer and you should protect your eyes with shades and this pops up. I've seen no mention of "moisture chamber glasses" before but I kinda want some. Preferably the weirdest available!
I'm over these eyedrops, probably need new prescription specks and wonder if zennioptical carries them lol

03/18/2026

Edited- removed my "flipping the bird" pic since something has bothered the realm of fb.

I'm getting tired of this game.
I seem to be able to eat really soft foods literally every other day and the other days, I'm puking like clockwork. I didn't like the dr that did my endoscopy with dilation in December(my regular gastro was booked). To be blunt, he was an obnoxious dick. I don't know if he attempted to dilate too much and it collapsed or if dry esophagus from Sjogrens is to blame but I'm really over it. I can eat eggs, applesauce, creamed soup, protein drinks and pot pies if I pick the meat out so basically gravy soaked crust. Bread is completely out. At least I know when I'm about to hurl so I can hold long enough to p*e first otherwise the force of heaving will cause me to p*e down my frickin legs which is embarrassing even if only I know about it.

New weirdness-
I'm not sure which disease is causing this or something else. 3 or 4 times, I'll been doing something simple like holding cell, picking up a brush or tapping the minutes on microwave and my hand will shake sideways like Katherine Hepburn's head. It's happened to each hand at different times. I'm guessing it's from Sjogrens doing something to nerves.

*pitiful pic, I can't even get mad and fly the bird with that formidable looking hand.
Oddly, nails grow fast but thin and a grand twin said they're sharp and scratchy.

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