Face Palm My Health

Face Palm My Health Balloon in the dart game of health. I'm a highly intelligent, witty knower of things.

Slammed with RA, Sjogrens, CKD, one kidney, wonky innards, osteoarthritis, L2, L3 hemangiomas making a pain in my back & ass and a plethora of other maladies.

08/13/2026

I was approved for SSDI in May and got back pay. So glad I had a job and paid into it! - Tip: if you're considering filing, hire a disability attorney, it was much faster than some of those trying for literally years on their own. In Indianapolis, I used Hankey Marks and Crider. The amount I get will keep me sheltered and all but with rising housing costs, I "ain't movin on up". Tip/warning - mere days after approval, I started getting scam calls from US Department of Benefits offering $2500-$3000, a friend also got similar calls. Don't fall for it, no such department exists, they want bank info. I was offered a $50K grant today, mkay, riiiiight.

Initially, I didn't know that with SSDI, comes Medicare after 24 months. My Medicare card arrived WTH? Welp, it's 24 months from when you're determined disabled so I start Medicare in October. I think I will still get medicaid until I'm whatever age, 65? which will cover the $204 D premium and I think it might cover copays. Ugh.
4 years ago I was deemed medically frail and was fully covered with no out of pocket with Anthem, I liked it, easy peasy but this is going to annoy me, I'm certain.
Anyhoo, I chose Anthem Medicare Advantage. I guess it requires a lot of phone calls and questions. Do you find that you need help filling out forms? Hmm, maybe? but let's say no, I don't want to sound incompetent but my hand doesn't like to write for very long. Do you feel isolated- never, sometimes, often? Often, I don't get out much. Have you fallen in the past 3 months? No, surprisingly. Have you been hurt or pushed by family or caregivers? HAHAHA! No and they don't wanna try it!
So there's that. I entertained the interviewer😁
Meanwhile, humidity and weird weather has me in a Sjogrens flare. I've slept a crap ton. Mouth and nose sores came and left. Yay for swishing ye old baking soda and water but my mouth tastes like how I assume the nearby flooded areas would taste like after the water recedes! 😵‍💫

At my first rheumatology appointment in November, I told my doctor about every weird kind of anomaly possible. There's t...
08/06/2026

At my first rheumatology appointment in November, I told my doctor about every weird kind of anomaly possible.
There's two things that he didn't have much to say about.
During the pandemic, I kept finding tiny pustules in my eyebrows at the follicle. I thought maybe it was psoriasis but it's gone.
Other thing was something similar in my nose! You know those occasional little zits that hurt and drive you nuts? I get them. Often, there's a hair, like ingrown but not always. I pluck it and drain with a Qtip.
PLUCK A NOSE HAIR! OMG! Actually, it doesn't even hurt anymore, probably not supposed to but can't tell me anything.
The past 4 days, I've probably had 8 of them. The ones close to the opening scab or crust over making me look like I've been into some "nose candy". Other people check their makeup when they're out and about, I check my nostrils 😆
Several Sjogrens people said they get them. Last August, before autoimmune diagnosis, I thought maybe I had sinus trouble, P*P thought the nose hair follicles were getting clogged from constantly blowing my nose. It's actually from dry nose.
Yet another thing that when some odd affliction pops up, my daughter and I refer to as "more weird s**t".
I finally found raspberry leaf tea at Walmart, I add honey. It's steamy and soothing for dry throat and sinuses.
A few new things(hooray for SSDI backpay to buy helpful stuff) for the battle of dryness collection -
Uberl**e, pretty much the same as the cheaper Good Clean Love l**e but it's in glass and looks cool.
Ayr nasal saline gel spray, stays longer.
Therapy Tears, similar but cheaper than Refresh, although Refresh Digital is thicker and better for watching TV and looking at devices.
Zarbee's saline mist with aloe, refreshing, clean sensation and can also be used sort of like netipot but I'm NOT trying that again.

One last thing, my lab orders for kidney function now say stage 3 but my last labs certainly don't reflect that. Recently the foamy beer urine from protein stopped. Maybe it's a good thing.

You warriors with chronic &/or autoimmune disease, does it seem like it makes your body manic?Last week I was on a roll ...
07/29/2026

You warriors with chronic &/or autoimmune disease, does it seem like it makes your body manic?
Last week I was on a roll trying to do all the things! I dressed. Repainted antique ice cream chairs, luckily nothing intricate because -hands-. Cooked decent meals. Dug out the floral bedding to not be so morgue-ish and decided my kitchen shelves and vintage stuff needed cleaned. *Note: we had decent temps
And Then...I used up my spoon theory spoons, I had stomach issues NOT from Taylor Farms produce😵‍💫, headache, dizziness, horrible glue mouth, those pesky shock jabs in my feet and toes and I've been useless. *Note #2: high humidity and rain

Manic. Just like the weather.

Here's my clean junk high and then the low - dishes to put up and dirty dishes that I prefer to give the evil eye. (I did do a few though)

I need to get some time in with my grands! They brighten life!

07/29/2026

I love this chick! She's foul mouthed but hilarious. Ya gotta have a gimmick!
I knew she had an autoimmune disease and wondered what it was, apparently several.

07/12/2026

Hi! Mouth ulcers disappeared, I credit ye olde baking soda and water swish.
This is my first summer after being diagnosed with all of this fun. I'm living like a vampire and avoiding the sun! I'm afraid of getting the sun rash caused by Sjogrens, they look pretty bad and I don't wanna risk it. My tan is courtesy of L'Oreal, aka tan in a tube! I also dug up my clip on shades that came with some glasses since bright light bothers me - one more reason to hate the grocery store! 😂
I do miss lounging in some good sun though.

I went swimming with the grand twins. I survived with a slight cramp in my calf, probably from trying to get my foot on the ladder to get out!
Note - chlorine does nothing good for Sjogrens warriors! I got home and out came all the eyedrops and nasal sprays.
🩷 It was worth it, I love being with my daughter and the grands!

I kinda miss my inground pool but not the upkeep! Gotta laugh though because my ex hasn't touched it since I left. I was the keeper of the pool knowledge!

Stay cool and hydrated, the heat seems to cause trouble for autoimmune disease!

The fun never ends. I've got mouth ulcers either from RA or the drug to slow it down from what I've read. WTH. It's betw...
07/03/2026

The fun never ends. I've got mouth ulcers either from RA or the drug to slow it down from what I've read. WTH. It's between the gum and cheek.
It hurts to wear dentures. If I take them out, any food with texture or a hint of spice is a no go.
Last night I noticed a weird patch of itchy skin on my chin that looks like when a kid has dried snot on their face. Kind of peeling? Trying to get close-ups without seeing what you're doing is tricky so the pic isn't clear but I managed to get the ulcer.
I'll keep swishing baking soda and water and see what's up on Monday before calling rheumatologist and my dentist, he's probably knowledgeable with this plus the bottoms don't stay in and need adjustment before Medicaid ends.
To top it off, I got my Medicare card because you automatically get it with disability. I thought I had 24 months from approval. Nope. It's 24 months from the date that they went back to so it starts in October. I now "make too much" at poverty level to keep medicaid to cover the payments and copays. Really pi**es me off because I worked and paid into SSDI. Since I also got retroactive pay from it, I have way too much in the bank for help like snap or utility help. Wow. I guess I'll study up on investing like Dad did otherwise I'm stuck struggling. Ugh!!!

Welp. It's too hot to do much so I was lookin at my pigs! 🤪 I guess RA got my left toesies and made hammer toes with nod...
06/11/2026

Welp. It's too hot to do much so I was lookin at my pigs! 🤪 I guess RA got my left toesies and made hammer toes with nodules? They're actually as straight as they'll go. That left big pig is wonky! They don't hurt but rub in some shoes, especially the nice ones! Face Palm!

Meanwhile, no matter how much I brush our 3 babies, the daily sweeping of fluffy dog hair tumbleweeds around is ugh! Got this deeeluxe rubber broom(Tidy Bliss, Amazon), extends, has a squeegee, slots for Swiffer wipes plus bonus rubber brush for upholstery. Not a paid ad or anything, just cuts down on my b!tching!

I wonder if my daughter would like some pointy blue suede thigh high stilleto boots?? She'd be 6" taller and very formidable😆
PS, ignore those ratchet toenails, they're in treatment. Mr is gonna paint them after I tell him to😁

06/05/2026

Ear ache from hell since last night! It's kind of like a migraine in my ear, hurts to drink anything cold. Slept maybe 2 hours, I'm wearing out the heating pad.
Mister thinks sinus infection but I'm thinking the Sjogrens flare got hulk strength, everything went super dry and affected my ear.

On the chance that it's a migraine, I'll caffeinate or maybe try some kind of eardrops. I can't take NSAIDS or ibuprofen and absolutely NOT trying the old timey urine in the ear remedy 🤢😵‍💫

Totally me with my chamomile tea!
06/02/2026

Totally me with my chamomile tea!

Well CKD is causing foamy urine, it looks like beer foam, it has to do with filtering protein so I'm gonna have to be a...
06/02/2026

Well CKD is causing foamy urine, it looks like beer foam, it has to do with filtering protein so I'm gonna have to be a jack vegan aka vegan that bends rules a little.
I guess I'm in a Sjogrens flare, I'm sleeping a lot again, brushing and wiping my tongue, chapstick and the eye drops are blurring my "Netflix stories" (gonna try some weird looking moisture chamber glasses for nighttime)and the nerve thing that feels like biting flies on arms and legs. It was weird zaps on fingers and toes last week.
I barely knew anything about autoimmune diseases but Sjogrens is like a crazy unpredictable rabid crackhead turned loose in your body. My hair is growing fast but shedding as bad as the dogs EXCEPT for my frickin leg hair! WTH man? I haven't had to shave much in a few years or deal with chin hairs until recently and it's not cool!
My hands are kind of cooperating with some light crafts though. I steamed a hat to get rid of some creases(stretched it over an upside down pan lol) and the top was wonky, still need to attach flowers and stuff for a high tea birthday for a friend. Taped and used leather dye on some exceptionally ugly sandals, now they're red ugly sandals 😆
I still can't do liquid eyeliner, tried it.
I'm having trouble with makeup. I have to moisturize because of dryness so my face smears, powder should set it but it cakes and flakes. UGH! I've always had dark circles but they're worse when dry skin doesn't plump so I look like Nosferatu except when I'm fresh from the shower. I need a super hydrating face serum, there's so many out there it's dizzying to research! Give me recommendations please!
I've gotta get off of here, one of the dogs has gas so I've got to vacate! 🤢

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