Families for HoPE, Inc.

10/03/2026

We’re celebrating 20 years of Families for HoPE! ⚓️

In 2006, a group of moms of children with Holoprosencephaly came together because they wanted families to have somewhere to turn—to find support, information, understanding, and most importantly, to know they weren’t alone.

Twenty years later, we are so grateful for the foundation those moms created and for all of the families, friends, volunteers, and supporters who have helped Families for HoPE grow along the way. We truly wouldn’t be here without you.

To celebrate this milestone, we’re offering limited-edition 20th Anniversary shirts with two different design options:

• Front Print Design
• Small Front + Back Design (link posted in comments)
• Baby (link posted in comments)
• Toddler (link posted in comments)

There are 9 different item options for each design, with 5 colors to choose from for each item, so there’s something for everyone!

A portion of the proceeds from each shirt sale will be donated to Families for HoPE and will help support our mission to advocate, educate, and support families affected by Holoprosencephaly.

One quick note before ordering: these shirts are made through a print-on-demand website, meaning each item is produced when it’s ordered. Because of this, shipping costs may be a little higher than what you’re used to.

Thank you for celebrating 20 years of Families for HoPE, raising awareness of HPE -and especially honoring the moms who started it all. What they created in 2006 continues to make a difference in the lives of families today.

Celebrate 20 years of HoPE !

Advocating, educating & supporting families affected by Holoprosencephaly since 2006.. For 20 years, Families for HoPE has brought hope, strength, and connection to families...

07/28/2026

05/19/2026

Are you someone who would be interested in welcoming new Spanish-speaking families into our HPE support community? Please let us know by emailing [email protected] or [email protected]
Thank you!

03/06/2026

⚓Two Ways to Wear Your HoPE⚓

Our 2026 Awareness shirts are officially here, and they are designed to tell our story of connection. This year, we are featuring 2 designs: 👕 The "Foundation Anchor" 👕 The "Anchor Chain" Both designs are a physical reminder that you are never sailing alone and are featured on the back of the shirt. Be Ready: Wear it for Blue/Anchor Day on March 25th! (Available in multiple colors and sizes for adults and youth!) 👉
Grab your favorite design here:

https://www.bonfire.com/store/families-for-hope/?utm_source=copy_link&utm_medium=store_page_published_share&utm_campaign=families-for-hope&utm_content=default

Official apparel for HPE Awareness Week 2026. Support  Families for HoPE, celebrate our warriors & spread awareness. Connected by HoPE.

03/04/2026

Join us in congratulating and welcoming the newly appointed President of the Families for Hope Board John Michael Hunsinger.

John Hunsinger, President The board of directors of Families for HoPE elected John Hunsinger president of the board at its annual meeting on February 23. John has served on Families for HoPE’s board since November 2024. He is a resident of Wilmington, NC. His wife Amanda and John are the parent....

03/04/2026

Please join us in welcoming and congratulating John Hunsinger as the President of the Families for HoPE Board of Directors. Read about John in the website Blog.

John Hunsinger, President The board of directors of Families for HoPE elected John Hunsinger president of the board at its annual meeting on February 23. John has served on Families for HoPE’s board since November 2024. He is a resident of Wilmington, NC. His wife Amanda and John are the parent....

02/26/2026

Connected by HoPE, United by Love

At Families for HoPE, we know that the journey with Holoprosencephaly can often feel like navigating a vast and unpredictable sea. This year, our theme—Connected by HoPE, United by Love—is a reminder that no family has to sail alone. The Anchor symbolizes the stability we find in one another; it is the strength that keeps us from drifting during the storms of medical uncertainty.

Our week is designed to strengthen these vital links through shared stories, collective wisdom, and visible support. We aren’t just a resource; we are a harbor. Together, we are anchored in a love that never let's go.

Our Week of Connection
We have a powerful lineup of daily challenges and celebrations to keep us connected from March 22nd to March 28th:
• The Thread Challenge (Mar 22): Tag another family who has helped you through tough times.
• The Unwritten Manual (Mar 23): Share the wisdom you've gained that isn't found in any pamphlet.
• Connection Clips (Mar 24): Share a video or comment finishing the sentence: "I feel most connected when..."
• Blue/Anchor Day (Mar 25): Wear blue or anchor-themed clothing to show your support.
• Small Victories Day (Mar 26): Celebrate the "inch-stones" and milestones reached this week.
• Support Circle Shout-outs (Mar 27): Post a photo of the person who serves as your personal anchor—those who strengthen your circle.
• Woven Memories (Mar 28): A day for families who have lost a child to share the beautiful things their child "wove" into their lives.

How to Use Our Twibbonize Profile Frames
Show your colors! We’ve created special "Connected by HoPE" frames on Twibbonize to unite our profiles across social media.
Visit our link: https://twb.nz/hpeawarenessweek
Upload your photo: Click "Choose a Photo" and select a picture of your child or family.
Adjust and Download: Position your photo within the anchor frame, click "Next," and download the final image.
4. Set as Profile Pic: Upload the saved photo as your new Facebook or Instagram profile picture!
Get Your Awareness Gear on Bonfire
Our official 2026 Awareness shirts are now live on Bonfire! Featuring our custom HoPE Anchor designs, these shirts are a physical reminder that we are all part of the same anchor chain. Every purchase helps fund the resources and connections that keep our harbor strong. Bonfire Link: https://www.bonfire.com/store/families-for-hope/?utm_source=copy_link&utm_medium=store_page_published_share&utm_campaign=families-for-hope&utm_content=defaul

12/01/2025

Families, please share this on your social media pages to not only help make our Costume Contest a success, but also, to increase our awareness footprint regarding Holoprosencepahly.

Thank you for standing with Families for HoPE! Your support so far has been incredible, and because of you, we’re closer to making a real difference for families who need us most. But we’re not there yet—and time is running out.

With only two days left in our 2025 Halloween Costume Contest, we need one final surge of generosity to reach our $5,000 goal by midnight on Tuesday, December 2nd.

Every dollar you give helps fund programs that bring comfort and hope—like bereavement support groups, caregiver burnout resources, and a stronger Parent-to-Parent network. These aren’t just plans; they’re lifelines for families navigating unimaginable challenges.
This is your moment to make an impact. For a limited time, every $1 donation = 3 votes, tripling your power to help us cross the finish line.

Fundraiser for Families for HoPE