Myasthenia Warrior

Myasthenia Warrior Artist and MG advocate sharing life with Myasthenia Gravis. Empowering others through awareness, education, and lived experience.
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NOT MEDICAL ADVICE—just real insight from my journey.

This week has been a rough one.Physically.Mentally.Emotionally.But I am still here! I am still surviving.One day I hope ...
06/19/2026

This week has been a rough one.
Physically.
Mentally.
Emotionally.

But I am still here!
I am still surviving.

One day I hope to not have to worry about stress and the effects on my body.

I would love to get to a place of peace at some point in my life.

I know I will get there.
And you will too.

Sending everyone positivity and strength vibes to get through whatever you’re going through.

75 years ago, Myasthenia Gravis could have been considered a death sentence.A lot of the modern medications and treatmen...
06/19/2026

75 years ago, Myasthenia Gravis could have been considered a death sentence.

A lot of the modern medications and treatments have really only come out in the last few years.

With modern treatment combining cholinesterase inhibitors, immunosuppressive drugs, plasmapheresis, and immunotherapy, most patients now have a near-normal life span.

Mortality has dropped to just 3–4%, compared to as high as 30–40% historically.

By raising awareness, we are one step closer to a cure!

Here is an opportunity tomorrow in Minnesota!!
06/19/2026

Here is an opportunity tomorrow in Minnesota!!

You can love me.You can hate me.But you cannot bring me down! Happy Friday! Thanks for the shirt Pat!
06/19/2026

You can love me.
You can hate me.
But you cannot bring me down!

Happy Friday!
Thanks for the shirt Pat!

These are great for someone who has Myasthenia Gravis and a Pacemaker! Thank you Pullover Pal for making such an importa...
06/19/2026

These are great for someone who has Myasthenia Gravis and a Pacemaker!

Thank you Pullover Pal for making such an important resource for those living with chronic illnesses!

The hardest part of being a disabled parent is having to admit you cannot do something.Having to say No.Having to say I ...
06/18/2026

The hardest part of being a disabled parent is having to admit you cannot do something.

Having to say No.
Having to say I don’t have the energy to do something.

Moms are supposed to do it all.
But I can’t.

We need to stop putting high expectations on everyone.

We can only do what we can do.
When we say we are done.
Unfortunately, we are done.

This is where the mental battles far outweighs the physical battle.

Another scam post spotted!! They are using my photo and changing the tshirt design. THIS IS A SCAM!! If you see any of t...
06/18/2026

Another scam post spotted!!

They are using my photo and changing the tshirt design.

THIS IS A SCAM!!

If you see any of these photos with my face, but it is not from my page….scam!

Please report all of these you see!

Just drinking from my new MG cup!
06/18/2026

Just drinking from my new MG cup!

June is Myasthenia Gravis Awareness Month.⚕️Myasthenia Gravis is a rare neuromuscular autoimmune disease that breaks the...
06/18/2026

June is Myasthenia Gravis Awareness Month.

⚕️Myasthenia Gravis is a rare neuromuscular autoimmune disease that breaks the connection between nerves and muscles.

🫨A common symptom is blurry/double vision.

My double vision usually is more diagonal than it is side to side.

👀But this is what it can look like for someone living with Ocular Myasthenia Gravis or Generalized Myasthenia Gravis.

💪The eye muscles are some of the smallest muscles in the body.

With Myasthenia Gravis, the more we use our muscles the weaker they get.

🫩The more we use our eyes, the weaker they get, giving us blurry/double vision.

🚗This is often times why people living with MG stop driving.

This is terrifying to live with, and even worse go try and drive like this.

🫶Share this with someone to show them what your vision is like.

Here is another opportunity for an MG event!
06/18/2026

Here is another opportunity for an MG event!

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Janesville, WI

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