Praising Him in the storm

04/13/2026

Part one

04/11/2026

03/16/2026

I love how she explains this!
My goal is still, and always will be raising awareness of this disease!

08/21/2024

Pain is exhausting!! Today is one of those days I don’t have the strength to fight, where the pain wins.
I’m laying here trying not to move because EVERYTHING hurts… even typing this hurts… these days are hard! But it reminds me how truly thankful I am for Jesus! He’s already won my battle with pain! When it’s time I’ll rest safely in his arms! It hurts my heart to think of how hopeless you would feel, and how alone you would feel if you didn’t know Jesus!!

05/11/2024

This is such a good explanation of a chronic illness like Ehlers Danlos.

05/04/2024

Day 3 – Zebra Strong

The zebra is our symbol and we are Zebra Strong. No two zebras have identical stripes just as no two people with a type of EDS or HSD are identical. We have different symptoms, different types, and different experiences—and we are all working towards a time when a medical professional immediately recognizes someone with these conditions, reducing the time to diagnosis, and improving pathways to care.⁠

⁠Living with an EDS or HSD is not easy. Being zebra strong is facing challenges with EDS or HSD, facing struggles and difficulties daily. Being zebra strong is making adaptions to continue doing things you love, or adapting to no longer being able to do things you may have once done. Being Zebra Strong is finding strength in the face of adversity, or just weathering the storm.

These are some shirts we had made. I’m thankful for a family that supported me, and fights with me!

05/04/2024

What are the types of EDS?

The current classification includes 13 types of Ehlers-Danlos syndrome (EDS).

Each type of EDS has its own set of features with distinct diagnostic criteria. Some features are seen across all types of EDS, including joint hypermobility, skin hyperextensibility, and tissue fragility.

🧬Arthrochalasia EDS (aEDS)⁠
🧬Brittle Cornea Syndrome (BCS)⁠
🧬Cardiac-valvular EDS (cvEDS)⁠
🧬Classical EDS (cEDS)⁠
🧬Classical-like EDS (clEDS)⁠
🧬Dermatosparaxis EDS (dEDS)⁠
🧬Hypermobile EDS (hEDS)⁠
🧬Kyphoscoliotic EDS (kEDS)⁠
🧬Musculocontractural EDS (mcEDS)⁠
🧬Myopathic EDS (mEDS)⁠
🧬Periodontal EDS (pEDS)⁠
🧬Spondylodysplastic EDS (spEDS)⁠
🧬Vascular Ehlers-Danlos Syndrome (vEDS)⁠
⁠
Each type of EDS is caused by variants in specific genes that provide the instructions for making collagens and related proteins. Some types of EDS are associated with multiple different genes. The genetic cause(s) of hEDS have not been identified.

Day 2 of EDS awareness month.

05/03/2024

My name is Christine and I live in a small town in southeast Georgia. I’m a wife of 24 years, and mom to lots of babies ❤️
Day 1 of EDS awareness month❤️
The Ehlers-Danlos Society

02/28/2024

Sharing in hopes that one day we would have more knowledge, better treatments, and Lord willing a cure!

Learn how to Show Your Stripes on Rare Disease Day

02/25/2024

That’s me! God made me special, and He loves me very much!

Learn how to Show Your Stripes on Rare Disease Day

02/05/2024

First hospital stay for 2024.

I’ve been having lots more chest pain, and trouble breathing. I made an appointment with my doctor to see if we could figure it out. He initially thought it was pericarditis. An infection of the sac around your heart. Thankfully the labs, echo, and chest X-rays came back clear. Last night the pain got much, much worse. Off to the ER to get some help and Lord willing, answers. Just finished my echo, and getting ready for my nuclear stress test. The silver lining… I get to share my story, and all that God has done for me.😊❤️

Things are not always glamorous. Loving and trusting God isn’t always easy. This is where the rubber meets the road. This is a pain level of 9/10. This is praying with everything in your body to get even 5 minutes without pain. This is praising Him in the storm.