Praising Him in the storm

Praising Him in the storm Follow along my journey of living life with vascular Ehlers Danlos, and how God is still good!

05/28/2026
05/21/2026

Ever feel like your body is having a “panic attack”… but emotionally you’re actually fine?

That’s one of the most confusing parts of POTS.
Symptoms like a racing heart, shaking, sweating, chest tightness, or even sudden waves of panic can show up out of nowhere and they’re often misread as anxiety.

But in POTS, this is your autonomic nervous system misfiring, not a psychological trigger.

Your body isn’t “overreacting” for no reason, it’s caused by autonomic dysregulation that others can’t see
💙

05/21/2026

Heat Intolerance and Autonomic Dysfunction 🔥🚨

Heat intolerance is common in people with syringomyelia, EDS, dysautonomia, or POTS. When the autonomic nervous system struggles to regulate heart rate, blood pressure, circulation, and body temperature, heat can trigger symptoms like rapid heart rate, dizziness, fatigue, increased pain, and brain fog. Heat-related blood vessel dilation may also reduce blood flow to the brain, worsening symptoms.

Check out Christie’s Survival Toolkit �https://bobbyjonescsf.org/apps/uploads/2026/04/BJCSF_Flare-Heat-Weather-Toolkit-Handout.pdf
Learn more and check out more resources: https://bobbyjonescsf.org/whatshappening/sm-awareness/

05/20/2026
04/13/2026

Part one

I love how she explains this! My goal is still, and always will be raising awareness of this disease!
03/16/2026

I love how she explains this!
My goal is still, and always will be raising awareness of this disease!

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