KC End of Life

KC End of Life A nonprofit alliance of doulas dedicated to compassionate and holistic approach to end-of-life care.

I’ve been back and forth on sharing my experience, but I feel it needs to be shared.  As an end of life doula I have lea...
09/11/2026

I’ve been back and forth on sharing my experience, but I feel it needs to be shared. As an end of life doula I have learned the importance of bearing witness and sharing stories, even if they are hard.

Twenty-five years ago, I was a freshman at St. John’s University on Staten Island. I had been living in New York for only two weeks when the world changed.

Even in that short time, I had created a routine for myself. I would take the Staten Island Ferry into Manhattan and visit a coffee shop near Battery Park. As a Midwesterner, I always waved to the security guard working next door. He would reluctantly wave back, unsure what to make of me.

On the morning of September 11, 2001, my roommates and I joined countless others, staring at the television right before we were about to head to our first classes. We ran to our bedroom window and could see the smoke rising across the water. Military planes began circling overhead. That night, we were not allowed to leave our dorms as there were hardly any first responders left on Staten Island.

The days and weeks that followed remain etched in my memory. I developed bronchitis and ended up sitting in the emergency department beside a man whose sister was missing. Together, we watched the names scroll across the ticker at the bottom of the television screen in the waiting room. He was desperate to see his sister's name, to at least know, he began crying on my shoulder, as I held his hand.

At school, I walked through the cafeteria and saw two tables filled with students doing the same. They sat close together, watching for the names of their parents in silence.

But there was also an extraordinary coming together. In our community, in the city and across the country.

I was able to be a part of a group of students as we carried supplies that had been gathered to where first responders were, quietly placing clean socks and toothbrushes as they slept on cots between shifts.

Eventually, I returned to the coffee shop near Battery Park. The security guard was back at his post, I waved.
This time, he spoke to me.
“Are you from here?” he asked.
“No, I'm from Missouri” I told him.
He looked at me and said, “You were here with us through this. You will always be a New Yorker.”

I have carried those words with me for twenty-five years.

The images of the smoke, the military planes, and the wreckage will be seared into my mind forever. But so will the memories of people holding strangers, students sitting beside grieving classmates, volunteers gathering basic necessities, and communities doing whatever they could to care for those around them.

September 11 showed us the terrible fragility of life. It also showed us the strength that can emerge when we recognize that we belong to one another.

On this anniversary, I remember those who died, those who searched and waited, the first responders who ran toward danger, and the families whose lives were forever changed. I also remember a city, and for a time, an entire country, coming together in grief, service, and love.

Twenty-five years later, I still believe that this is one of the most meaningful ways we can honor those we lost: by bearing witness to one another, showing up, and remembering that even the smallest acts of care can help carry someone through the unimaginable.

If you would like to talk to someone about your experience, don’t hesitate to reach out.

- Niki
ED
KC End of Life

(not my photo)

Join director, Nathan Deming, for an intimate conversation on his new film. Winter Hymns is a powerful drama that's been...
09/10/2026

Join director, Nathan Deming, for an intimate conversation on his new film. Winter Hymns is a powerful drama that's been connecting with audiences because of the subject matter - an honest look at death and dying in America. Set entirely in one room, the film follows a palliative care doctor as she meets with a series of dying patients and their families.

WHERE:
Glenwood Arts Theatre
3707 W 95th St
Overland Park, KS 66206

WHEN:
Sunday, September 13, 2026
4:00 pm

TICKETS:
https://ticketing.useast.veezi.com/purchase/21240?siteToken=w1srbh6gesjw1qh0zv2hbybjx4

TRAILER:
https://www.youtube.com/watch?v=oO8bOma4Xik

KCEoL Newsletter Sept. 8-Sept.13Reflections From KC End of Life Board Member and Death Doula Janet DuloheryWhen many ima...
09/08/2026

KCEoL Newsletter Sept. 8-Sept.13

Reflections From KC End of Life Board Member and Death Doula Janet Dulohery

When many imagine conversations at the end of life, they may expect them to center on fear, illness, or dying. But as KCEoL board member and doula, Janet Dulohery shares in this month’s blog, people approaching the end of life often talk about something much larger: they talk about living.

Janet recently had the privilege of accompanying a woman during her transition into hospice. Janet talks about how on warm summer days and quiet evenings she would take her outside for long, unhurried strolls in her wheelchair. Away from the confines of illness, her client shared stories about the people she loved, the experiences that shaped her, the memories that still made her smile, and the moments she understood differently as she looked back on her life.

Their conversations also made space for honest questions about dying, what may come afterward, and how we might remain connected to those we love after death.

Janet shares in her blog, since her own mother’s death eighteen years ago, a red cardinal often appears when she visits her family at Table Rock Lake. Janet chooses to receive these visits as a comforting sign from her mother, a reminder that love and connection can continue even after someone is gone.

When Janet asked her client what sign she might leave for her own children, she chose a butterfly.

A few days later, her daughter and son were outside when a large, beautiful butterfly flew directly in front of them and lingered. They both noticed the encounter and felt there was something unusual and meaningful about it. When Janet later shared the conversation she had had with their mother, the moment became even more profound. It did not require proof or explanation. It held meaning for them, and that was enough.

Her client eventually died peacefully, surrounded by her loving family, while Janet remains grateful for the opportunity to accompany her through that small but sacred part of her journey.

The Sacred Gift of Listening
Death doulas create space for people to tell their stories, ask difficult questions, laugh, wonder, reflect, and make meaning of the lives they have lived. We do not need to have all the answers. Often, the greatest gift we can offer is our willingness to be present and listen.
At the end of life, people talk about:
The people they have loved
The memories they carry
The experiences that shaped them
The things they hope their families will remember
The questions that remain
The signs they may leave behind
These conversations remind us that dying is still part of living, and that every person deserves the opportunity to be heard, witnessed, and honored.

A Question for Reflection
If you could leave a sign for the people you love, what would it be?
Perhaps a cardinal, a butterfly, a familiar song, a certain flower, or a gentle breeze arriving at just the right moment.
Whatever you choose, consider sharing it with someone you love today. Conversations about death do not take away from life. They can bring us closer, help us understand one another more deeply, and remind us to cherish the time we have together.

About the Author
Janet Dulohery is a KC End of Life board member and death doula who offers compassionate presence and meaningful support to individuals and families navigating the end of life.

Read Janet’s full blog here:
https://kcendoflife.org/blog-and-resources/f/what-people-talk-about-at-the-end-of-life---by-janet-dulohery?zlinkid=60001538-0058-4328-9263-b4c4d8b79c89

Read Janet’s bio here:
https://kcendoflife.org/our-team

If you need someone to talk to, we are here. 💜
09/06/2026

If you need someone to talk to, we are here. 💜

We are honored to share the When You Die movie screenings as part of our ongoing educational programming. Interested in ...
09/03/2026

We are honored to share the When You Die movie screenings as part of our ongoing educational programming.

Interested in watching these meaningful films from the comfort of your own home? Or would you like to bring a screening to your community center, senior living community, faith community, or other local organization?

We’d love to help make that happen.

Email our ED Niki at [email protected] or send us a DM to learn more about viewing or hosting a When You Die screening.

KCEoL Newsletter 8/31 to 9/6What We Carry Forward: Turning Grief Into a Living LegacyThe recent deaths of Dolly Parton, ...
08/31/2026

KCEoL Newsletter 8/31 to 9/6

What We Carry Forward: Turning Grief Into a Living Legacy
The recent deaths of Dolly Parton, Tim Curry and others has left people around the world grieving, not only the loss of their careers and unmistakable presence, but also what they represented.

As I read through the many tributes shared in their honor, a reflection written by Brian Mann on Facebook stayed with me:
“When someone famous dies who we looked up to, even though we didn’t know them personally, we are grieving what they represented to us: a particular vision of what a human being can be. And maybe the best way to grieve someone like that is not simply to miss them, but to become more like what we loved in them.”

There is something deeply true in those words.
Grief is not reserved only for those we knew personally. Public figures can become part of the landscape of our lives. Their voices, stories, values, and work may accompany us through childhood, hardship, celebration, and change. When they die, we may grieve the way they made us feel, and the possibilities they helped us see in ourselves and in the world.

Perhaps the most meaningful way to honor people like Dolly and Tim are to carry forward what we loved most about them.

Share the joy of being you, like Dolly Parton and Tim Curry.

Build community rooted in kindness and belonging, like Fred Rogers.

Protect animals and share your wonder for the natural world, like Steve Irwin.

Slow down long enough to notice beauty in the “happy little trees,” like Bob Ross.

We can give away a book. Be authentically us. Welcome a neighbor. Care for an animal. Plant a tree. Encourage someone’s dream. Create something beautiful. Help another person feel seen.

Death asks us to consider what remains after a life ends. Legacy is not found only in awards, recordings, movies, programs, or paintings. It lives in the people who were changed by someone, and who choose to carry that goodness forward.

That may be one of the most beautiful ways we can say: “I will always love you.”

08/29/2026

Dear Doula,

Someone I care about is dying. I want to help their family, but I'm afraid I'll get in the way. What should I do?

- Afraid to Get in the Way

Dear Afraid to Get in the Way,

Start by asking rather than assuming.
Instead of saying, “Let me know if you need anything,” try offering something specific:

“Can I bring dinner Thursday?”
“Would it help if I walked the dog?”
“Can I sit with them while you take a shower or get some rest?”
“Would you like me to update friends so you don't have to?”

You don't need to have the perfect words or know how to fix what is happening. Sometimes the greatest gift is simply being willing to show up.

A death doula can also help families identify their existing support system and find meaningful ways to bring those people into their circle of care.

Care doesn't have to be complicated to matter.

Your village may be bigger than you realize.It's the neighbor who knows your favorite recipe. The person you see every w...
08/26/2026

Your village may be bigger than you realize.
It's the neighbor who knows your favorite recipe. The person you see every week at trivia. The friend from work who always seems to “get it.” The person at the dog park who would gladly help care for your pet.
End-of-life planning doesn't only have to be about documents and medical decisions. It can also mean asking: Who are my people, and what unique gifts could they bring to my circle of care?
Our August blog invites us to look at community a little different.

Here is August blog link: https://kcendoflife.org/blog-and-resources/f/how-community-care-can-transform-end-of-life-support



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