Viviendo con cavernomas - Our life with CCM

Viviendo con cavernomas - Our life with CCM Darle publicidad a las enfermedades raras, especialmente al ( CCM ) Cerebral Cavernomas Malformation

June is Cavernous Malformation Awareness Month. Share the awareness in hopes for more research and treatment ❤️
06/01/2026

June is Cavernous Malformation Awareness Month. Share the awareness in hopes for more research and treatment ❤️

Hi All! We are proud for Guillermo for trying hard new things. He can not use his left hand to play the drums but he can...
05/26/2026

Hi All!
We are proud for Guillermo for trying hard new things. He can not use his left hand to play the drums but he can follow rhythm and have fun. It has been challenging for him to find joy in things, like playing an instrument, when is not always perfect.
Now his recovery is more mental than physical. We as parents are willing to try everything to make him happy and hopeful for a real future.

¡Hola a todos!
Estamos orgullosos de Guillermo por esforzarse en probar cosas nuevas. No puede usar su mano izquierda para tocar la batería, pero logra seguir el ritmo y divertirse. Ha sido un desafío para él encontrar alegría en actividades —como tocar un instrumento— cuando el resultado no es siempre perfecto.
Ahora, su recuperación es más mental que física. Nosotros como padres estamos dispuestos a tratar cualquier cosa que le pueda producir alegría y esperanza por un futuro.

We are so blessed to have found for PT. Ken has been so professional and knowledgeable. His patience with Guillermo is ...
05/26/2026

We are so blessed to have found for PT. Ken has been so professional and knowledgeable. His patience with Guillermo is incredible, and that is what he needs right now. Look him up in Katy.

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