Ehlers-Danlos and Hypermobility Clinic at Addison’s

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Ehlers-Danlos and Hypermobility Clinic at Addison’s

Countless Ehlers-Danlos Syndrome patients have discovered that there’s a better way to treat pain and symptoms.

This is the game-changer you’ve waited for that’s quickly gaining the reputation as treatment of choice in the EDS Community.

06/06/2026

✈️ Before We Head to New York: From One EDS Family to Another

🤍🦓 As an EDS family ourselves, we understand what it’s like when complex medical needs require you to travel far from home, place your trust in specialists, and face difficult decisions in hopes of improving your quality of life.

This weekend, I’ll be heading to New York for a major neurosurgery. The plan is a revision of my previous craniocervical fusion with an extension of the fusion down to T3, along with additional evaluation for possible treatment of my jugular vein compression.

If you’ve ever prepared for a surgery like this, you know it’s about so much more than the operation itself. It’s the packing, the medication schedules, the travel arrangements, the paperwork, the waiting, and all the emotions that come with putting your life on pause for a while in hopes of getting a little more of it back.

Moments like this remind me why this clinic means so much to our family. The Ehlers-Danlos & Hypermobility Clinic at Addison’s wasn’t created because EDS was a specialty we chose. It was created because EDS is a part of our lives.

As we prepare for this next chapter, Dr. Jason has decided to begin sharing some of our family’s EDS journey from his perspective on a new page, Dr. Jason Addison, DC: The EDS Husband. Through it, he’ll be sharing the challenges, victories, humor, heartbreak, and lessons learned from walking this journey alongside someone he loves. He hopes to offer encouragement not only to those living with EDS, but also to the spouses, partners, caregivers, and family members who are walking beside them every step of the way.

Because Dr. Jason will be traveling to New York with me, the clinic will be closed June 8th through June 12th. We appreciate your patience and understanding during that time.

While I’m away, Alesea will be stepping in as our EDS Coordinator. Many of you recently had the opportunity to get to know her a little better, and it means a great deal to me knowing our patients will be supported by someone who not only cares deeply about this community, but understands it firsthand through her own experience with EDS.

Thank you for trusting us with your care, for your encouragement, and for allowing us to walk alongside you on your own journey. I look forward to recovering, returning home, and continuing to meet and support so many of you in the months ahead. 🫶🏻🤍

Warmly,
Belinda Addison

06/04/2026

Our clinic has always been built by people who truly understand this journey, and we’re continuing that in an even deeper way.

We’ve recently added someone very special to our team, and I’d love to introduce her to you. Her name is Alesea, and she brings something to this space that can’t be taught… a true, lived understanding of what it means to navigate Ehlers-Danlos Syndrome.

She’s walked her own journey with EDS, and she’s also had a front row seat to mine over the years… the appointments, the unknowns, the surgeries, and everything in between. Because of that, she carries a level of empathy and awareness that I know so many of you will feel the moment you meet her.

And in case you hadn’t already guessed… she’s also my daughter. And now, she’s also experiencing this journey as a mom… raising her own little zebra. It’s given her an even deeper perspective on what it means to navigate this condition, not just personally, but for someone you love.

This has been something really meaningful for both of us. What started as shared experiences has grown into a shared purpose… helping others feel seen, understood, and supported in a way we both wished for along the way.

I wanted you to get to know her a little more, so we put together a small Q&A series where she shares some of her personal thoughts and experiences navigating EDS, motherhood, medical care, and what compassionate support means to her.

I hope as you read through it, you’ll get a glimpse of the heart she brings into this space and the compassion that’s been shaped through her own experiences navigating EDS.

We’re so grateful to have her as part of the team, and I know many of you will connect with her in a really special way. And as always, thank you for trusting us with your care.

Warmly,
Belinda Addison
EDS Coordinator

05/26/2026

As we continue recognizing EDS & HSD Awareness Month, we wanted to take a moment to highlight someone we truly believe has become an incredible resource within the EDS community over the past year: Jaime M Prout PhD and her platform, Connective Issues. 💜🦓🧬

Dr. Jason and I had the pleasure of getting to know Jaime last year around the time she was first launching her platform. We had the opportunity to exchange stories, experiences, and perspectives surrounding EDS, and immediately appreciated both her big heart and her genuine devotion to helping this community.

Her knowledge, wisdom, scientific background grounded in biochemistry and clinical genetics, and lived EDS experience have been such a gift to so many people navigating these complex conditions.

One of the things we especially admire is her ability to take complicated research, body systems, related conditions, symptoms, and treatments and break them down into explanations that are approachable and easy to understand for patients and families. She has worked incredibly hard to create thoughtful, evidence informed content while still deeply honoring the lived experiences of patients.

🫶🏻💜 This week marks one year since the launch of Connective Issues, and we just wanted to say congratulations and thank you for the work you’re doing for the EDS community. We’re excited to see all the resources and educational tools still to come.

If you haven’t followed her page yet, we absolutely recommend checking Connective Issues out.

📸 Image Credit: Connective Issues

05/01/2026

🩶🦓 EDS & HSD Awareness Month

Before we jump into statistics, awareness ribbons, or education posts… this is for the ones living it.

If any of this feels familiar:

You know what it feels like to have your joints slip out of place.
You’ve ever been told “you look fine” when you’re not.
Your body feels unpredictable, but you still keep going.
You’ve had to explain your condition more times than you can count.
You’ve been told “everything looks normal” when it doesn’t feel that way.
You’ve learned how to smile through symptoms.

Then you already know that May is Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorder (HSD) Awareness Month.

Before anything else is said this month, please know this:

What you’re carrying is real.
The way you’re navigating it matters.
And even on the days it doesn’t feel like it,
you’re doing an incredible job.

The strength it takes to live in a body like this often goes unseen, but it deserves to be recognized.

This month is for you. 🫶🏻🩶

💬🦓 As we work to spread awareness, what’s something you wish others understood about living with EDS or HSD?

04/20/2026

Care Designed With You in Mind

Through working closely with individuals with Ehlers-Danlos Syndrome, one thing becomes very clear:

It affects far more than people often realize.

For many, it can include:
✦ Chronic pain that doesn’t follow typical patterns
✦ Fatigue and sensory sensitivity
✦ Nervous system dysregulation
✦ Symptoms that may appear unrelated but are actually connected

And when all of those layers are happening at once… it can feel overwhelming trying to figure out what to focus on.

That’s where our approach comes in.

At the Ehlers-Danlos & Hypermobility Clinic at Addison’s, we focus on supporting the body as a connected system and not just addressing one symptom at a time.

Our care is centered around:

✦ Stability-focused support
Helping the body feel more supported and less reactive through gentle, targeted care designed for hypermobile joints

✦ Nervous system regulation
Working to calm an overactive system so the body isn’t constantly in a heightened, reactive state

✦ Targeted, noninvasive therapies
Including Frequency-Specific Microcurrent (FSM), cold laser, and shockwave used in a way that’s adapted for sensitive systems

✦ Pattern recognition
Looking at how symptoms connect, rather than treating them in isolation

Because when the body is supported in the right way… things often start to feel more manageable, more predictable, and more sustainable over time.

🫶🏻🤍 Our goal is to help individuals with EDS feel more stable, supported, and better able to navigate their symptoms through care that is designed specifically for them.

04/02/2026

We’ve had quite a few new faces join us here over the past few days, so first, welcome. 🤍

We saw several kind comments shared in a recent EDS group about experiences at our clinic, and we’re so grateful those stories found their way to others who may be searching for something that finally helps, especially knowing that some of those who shared had actually traveled to see us. That level of trust is something we never take lightly.

At the center of that conversation was a question about something called Frequency-Specific Microcurrent (FSM)…

And if you’re like many people, you might be wondering:

“What is that… and how is it different from everything else I’ve already tried?”

Here’s the simple version:

FSM is a very gentle therapy that works below the level of sensation. There’s no tingling or stimulation, and many people find the sessions to be deeply calming and relaxing.

What makes it truly unique is how specific it is.

Instead of treating just the area that hurts, we use targeted frequencies designed for different types of tissue, like nerves, fascia, or inflammation, helping us address the underlying patterns we often see in Ehlers-Danlos Syndrome.

We also address the nervous system component, as many chronic symptoms are influenced by how the body is adapting and responding at a deeper level.

This is a big part of how we approach care in our clinic, looking a little deeper, connecting patterns, and taking into account how the body is functioning as a whole.

It’s something we’ve spent a lot of time developing, especially for individuals navigating the complexities of Ehlers-Danlos Syndrome.

If you’ve found your way here because you’ve been wondering about this approach, we’re really glad you’re here. 🤍

And if you’ve been part of our community for a while, thank you for continuing to share your experiences with others. It truly means more than you know. 🫶🏻

03/30/2026

Over the past few weeks, we’ve been a bit quieter here than usual, and I wanted to take a moment to share why.

As a family affected by Ehlers-Danlos Syndrome, I recently traveled to New York for specialized neurosurgical evaluation and procedures after experiencing increasing neurological symptoms.

Having previously undergone craniocervical fusion for craniocervical instability (CCI), this recent evaluation brought further clarity, as additional levels of instability were identified that we are now navigating.

This has been a powerful reminder of how complex and interconnected these conditions can be within the EDS community.

Recently, an important study was published titled: “Surgical screening protocol for craniocervical instability secondary to Ehlers-Danlos syndrome and other connective tissue disorders: analysis of a 347 patient case series.”
(For those interested in reading the full study, I’ll include the link in the comments).

What stood out most was how consistent the patterns were across such a large group of patients—many presenting with overlapping neurological symptoms, prolonged diagnostic journeys, and findings that required highly specialized evaluation to fully understand.

This closely aligns with what we see every day within our clinic.

Many patients come to us after years of searching for answers, often being told their imaging is “normal” or that their symptoms don’t fully align—yet their experiences are very real.

Studies like this continue to validate what so many individuals with EDS already know:
that instability and neurological involvement are not only real, but often require a more nuanced and specialized approach.

As I continue navigating this process and the next steps ahead, I’ll be gradually returning to sharing more education, insight, and support here.

If you’ve experienced similar challenges, we know how much there is to carry, and we’re here to offer support, understanding, and care that truly takes your experiences seriously.

—Belinda
EDS Coordinator
Ehlers-Danlos & Hypermobility Clinic at Addison’s

Address

1275 Shiloh Road Suite 2150
Kennesaw, GA
30144

Telephone

+14703011208

Website

http://FSMforEDS.com/

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