Dandy-Walker Alliance

06/02/2026

⛳💙 Join Us for a Meaningful Day on the Greens!
We’re excited to invite you to our Golf Event for Dandy-Walker Awareness on August 24th in Hebron, CT!
This special event brings our community together to raise awareness and support for individuals and families affected by Dandy-Walker Syndrome. Whether you're an avid golfer or just want to contribute to a great cause, your participation makes a difference.
🏌️‍♂️ Golf
💙 Awareness
🤝 Community
🎗️ Support
Mark your calendars and get ready to tee off for a cause that matters!
Link for registeration is in the 1st comment.

04/12/2026

Save the date!!!

Gather some colleagues or friends and enjoy an evening out at Two Roads on Thursday May 21st!

Reach out to Krystal Lacey at [email protected] with any questoins.

03/20/2026

Hi DW families! Krystal Lacey, the Northeast Coordinator for the Dandy Walker Alliance, is currently working on proclamations for towns in CT and CT as a whole state for Dandy Walker and Hydrocephalus Awareness. Please reach out to Krystal through her DW email if you:
-would like the template for drafting a proclamation for your town/state.
-if you are from CT and would like to be a part of a town proclamation reading/photo-op next month.
-also any other CT located families it would be great to connect with in general! Am hoping to coordinate a May Fundraiser event here in CT.
Please feel free to reach out, email is [email protected] (it's also on the Dandy Walker Alliance website).

Thank you

Send a message to learn more

03/13/2026

FORE-get your plans this August 24!

We’re teeing up for a day of laughs, friendly competition, and a whole lot of heart at the charity golf fundraiser for the Dandy-Walker Alliance in beautiful Connecticut.

Whether you’re a scratch golfer, a professional ball-loser, or just here for the snacks and sunshine, you’re officially invited. Expect mulligans, questionable swings, and great people, all for an exceptional cause.