MS daily struggles with USHER

MS daily struggles with USHER Living with Multiple Sclerosis (MS) — sharing Usher's real daily journey. Every day is different. Join our community for MS tips, awareness, and honest stories.

You are not alone. 💙

Hey y’all, it’s USHER with MS Daily Struggles with USHER. 🧡MS can change your life in ways you never saw coming.Sometime...
09/10/2026

Hey y’all, it’s USHER with MS Daily Struggles with USHER. 🧡

MS can change your life in ways you never saw coming.

Sometimes it’s the big things like working, driving, walking, or seeing clearly. Other times it’s the little things — having enough energy to make plans, remembering what you were about to say, or waking up and wondering what kind of day your body is going to give you.

So today I want to hear from y’all:

👉 What is ONE thing MS changed in your life that you never expected?

There’s no wrong answer. Your struggle may be completely different from somebody else’s, but sharing it might help another person realize they aren’t alone.

We’re all fighting our own version of this disease, but we don’t have to fight it by ourselves.

Appreciate y’all, love y’all. 🧡

Hey y’all, it’s USHER with MS Daily Struggles with USHER.Here’s something about MS we don’t talk about enough…Have you e...
09/09/2026

Hey y’all, it’s USHER with MS Daily Struggles with USHER.

Here’s something about MS we don’t talk about enough…

Have you ever felt like MS changed the way you connect with people?

Not just forgetting names or losing your train of thought. I’m talking about having trouble reading somebody’s expression, figuring out what they really mean, following a conversation, or feeling like your brain just doesn’t process people the way it used to.

New research is looking at something called “social cognition” in multiple sclerosis. Researchers found that problems with episodic memory — remembering experiences and events — were connected with difficulties recognizing emotions and understanding what another person may be thinking or feeling.

That hit me because sometimes MS symptoms aren’t something anybody can see. People may think you’re distracted, uninterested, forgetful, or acting different… when really your brain is fighting battles they know nothing about.

So I want to hear from y’all today:

👇 HAS MS CHANGED THE WAY YOU TALK TO PEOPLE OR CONNECT WITH PEOPLE?

Do you forget conversations?
Have trouble finding the right words?
Misread somebody’s tone?
Get overwhelmed when several people are talking?
Or sometimes just shut down and stay quiet?

Tell me ONE thing MS has changed about the way you communicate or connect with other people.

Somebody reading your comment might finally realize they aren’t the only one dealing with it.

Appreciate y’all, love y’all. 🧡

Hey y’all, it’s USHER with MS Daily Struggles with USHER. 🧡It’s Tuesday, and I wanted to share some new MS research that...
09/08/2026

Hey y’all, it’s USHER with MS Daily Struggles with USHER. 🧡

It’s Tuesday, and I wanted to share some new MS research that gives us something worth watching.

Researchers recently announced positive Phase III results for an experimental oral MS medication called remibrutinib. In two large studies involving people with relapsing multiple sclerosis, the medication significantly reduced relapse rates compared with teriflunomide and also reduced inflammatory lesions seen on MRI. Researchers also reported encouraging results involving slowing disability progression.

Remibrutinib is a BTK inhibitor, a newer type of treatment researchers are studying to target immune activity involved in MS. The studies also reported a favorable safety profile with no liver safety signal identified in the trials. It is still experimental for MS and has not yet been approved as an MS treatment, but the company plans to submit it to health authorities around the world.

I know those of us living with MS are always hoping for that breakthrough that finally changes everything. We’re not there yet, but every successful study gets researchers another step closer to better treatments, fewer relapses, less disability, and hopefully one day something even bigger.

Would you try a new oral MS treatment like this if your doctor recommended it?

Appreciate y’all, love y’all. 🧡

Hey y’all, it’s USHER with MS Daily Struggles with USHER. 🧡Today is Monday, and it’s Labor Day.For a lot of people, toda...
09/07/2026

Hey y’all, it’s USHER with MS Daily Struggles with USHER. 🧡

Today is Monday, and it’s Labor Day.

For a lot of people, today means a day off, cookouts, family, and relaxing. But when you’re living with MS, your body doesn’t always take the holiday with everybody else.

The fatigue can still be there.
The pain can still be there.
The numbness, weakness, vision problems, brain fog, and everything else MS throws at us can still show up.

So today, I want to remind you of something — just because you may not be able to work, move, or do everything the way you once did does NOT mean you aren’t still fighting hard every single day.

Sometimes simply getting out of bed, getting dressed, making it through the heat, or pushing through another difficult day is work all by itself.

Give yourself some credit today.

Rest when you need to.
Enjoy the good moments when they come.
And never measure your worth by what your body can or can’t do.

To everybody out there fighting MS today — Happy Labor Day. 🧡

You are not alone. We’re going to keep doing this together, one day at a time.

Appreciate y’all, love y’all.

Hey y’all, it’s USHER with MS Daily Struggles with USHER.It’s Sunday, and I just want to remind somebody this morning th...
09/06/2026

Hey y’all, it’s USHER with MS Daily Struggles with USHER.

It’s Sunday, and I just want to remind somebody this morning that you don’t have to have everything figured out today.

MS can wear you down in ways other people never see. The fatigue, the pain, the vision problems, the numbness, the brain fog — sometimes just getting through the day takes everything you’ve got.

So today, give yourself some grace.

If all you can do is rest, then rest. If you’ve got enough strength to get up and enjoy the day, enjoy it. And if you’re somewhere in between, that’s okay too.

We didn’t choose MS, but we still get to choose how we face today.

Keep your faith. Keep pushing when you can. Rest when you need to. And remember, you are not doing this alone.

We will do this together.

Appreciate y’all, love y’all. ❤️🧡

Hey y’all, it’s USHER with MS Daily Struggles with USHER.It’s Saturday, and I just want to remind somebody today that yo...
09/05/2026

Hey y’all, it’s USHER with MS Daily Struggles with USHER.

It’s Saturday, and I just want to remind somebody today that you do not have to have everything figured out.

Living with MS can wear you down in ways other people may never see. Some days it’s the pain. Some days it’s the fatigue, the vision problems, the weakness, the brain fog, or just trying to keep your head up when your body isn’t cooperating.

But if today is one of those hard days, don’t count yourself out.

Maybe all you can do today is slow down, rest, and make it through the day. That still counts. You’re still here. You’re still fighting. And you are definitely not alone.

Different journeys. Different symptoms. Same hope.

Let’s keep showing up for one another and reminding each other that even on the rough days, we’re still in this together.

You are not alone. Let’s do this together.

Appreciate y’all, love y’all. 🧡

Hey y’all, it’s USHER with MS Daily Struggles with USHER. 💙BRAND-NEW MS RESEARCH UPDATE — SEPTEMBER 2026Here’s something...
09/04/2026

Hey y’all, it’s USHER with MS Daily Struggles with USHER. 💙

BRAND-NEW MS RESEARCH UPDATE — SEPTEMBER 2026

Here’s something that caught my attention.

Researchers just announced new Phase 3 results for an experimental MS medication called remibrutinib — a once-daily pill being studied for people with relapsing multiple sclerosis.

Two large studies called REMODEL-1 and REMODEL-2 compared remibrutinib with teriflunomide, also known as Aubagio.

And the early results are encouraging.

💙 People taking remibrutinib had fewer MS relapses.

🧠 They also had fewer new inflammatory lesions showing up on MRI.

🚶 And when researchers combined the results from both trials, they saw encouraging evidence that it may also help delay disability progression.

Something else researchers are watching closely is safety. Other drugs in this same BTK-inhibitor family have had problems in development, especially involving the liver. So far, researchers reported no liver-safety signal with remibrutinib in these trials.

Now, I want to make something clear: this is NOT a cure for MS, and the medication is not yet approved for MS.

These are the first top-line Phase 3 results. The complete results still need to be presented and reviewed, and the company plans to submit the drug to health authorities for approval.

But this is exactly why I keep following the research.

Every new treatment that can reduce relapses, protect the brain, slow disability, or give somebody more good years is another step forward.

And one day I still believe we’re going to be talking about more than just slowing MS down.

We’re going to be talking about repairing what MS has already taken from us. 💙

👇 QUESTION FOR EVERYBODY:

If a new MS treatment could give you ONE thing, which would you choose?

A. Fewer relapses
B. No new lesions
C. Stop disability from getting worse
D. Repair old nerve/myelin damage

I already know which one I’m choosing. 💙

Appreciate y’all, love y’all.

Hey y’all, it’s USHER with MS Daily Struggles with USHER. 🧡Some days with MS, the biggest victory isn’t getting everythi...
09/03/2026

Hey y’all, it’s USHER with MS Daily Struggles with USHER. 🧡

Some days with MS, the biggest victory isn’t getting everything done.

Sometimes the victory is simply getting up.
Taking the shower.
Answering the phone.
Walking a little farther than yesterday.
Laughing when you really don’t feel like it.
Or just making it through a rough day without giving up.

People don’t always see those little battles, but WE know how big they can be.

So today I want to ask y’all something:

👉 What is ONE small victory you’ve had this week that somebody else might not understand?

Maybe you cooked dinner.
Maybe you made it through work.
Maybe you got out of the house.
Maybe you rested when your body told you to.
Maybe you simply woke up and decided to keep fighting.

Drop yours in the comments. 👇🧡

Somebody reading your answer might need to see that they aren’t the only one fighting these invisible battles.

You are not alone.
Let’s do this together.

Appreciate y’all, love y’all. 🧡

MS Daily Struggles with USHER postHey y’all, it’s USHER with MS Daily Struggles with USHER. 💙🧡Let’s do a fun one today a...
09/02/2026

MS Daily Struggles with USHER post

Hey y’all, it’s USHER with MS Daily Struggles with USHER. 💙🧡

Let’s do a fun one today and check in with everybody.

Which is your favorite “ber” month — September, October, November, or December? 🍂🎃🦃❄️

For some, it’s the cooler weather.
For some, it’s Halloween.
For some, it’s Thanksgiving and being grateful.
For others, it’s Christmas time and family memories.

No matter which one you choose, I know this time of year can bring a mix of comfort, joy, and hard days too — especially when living with MS. But one thing I love about this community is that we keep showing up for each other. We remind each other that we are not alone in this fight.

So let’s hear it…

What’s your favorite ber month, and why? 👇

MS — Together We Help Each Other.
Appreciate y’all, love y’all. 💙

Hey y’all, it’s USHER with MS Daily Struggles with USHER. 💙🧡Good Wednesday morning, MS family!One of the hardest things ...
09/02/2026

Hey y’all, it’s USHER with MS Daily Struggles with USHER. 💙🧡

Good Wednesday morning, MS family!

One of the hardest things about Multiple Sclerosis is that no two people experience it exactly the same way. MS can affect the brain, spinal cord, and nerves—and that means the symptoms can look completely different from one person to the next.

Some of us battle vision problems. 👁️
Some fight crushing fatigue. 😴
Some deal with numbness, tingling, weakness, balance problems, memory issues, pain, bladder problems, or muscle spasms. And some days, several of those symptoms decide to show up at the same time.

That’s why I always say: just because someone looks okay on the outside doesn’t mean they aren’t fighting something on the inside.

There still isn’t a cure for MS, but treatments, therapy, exercise when possible, healthy choices, and having people who understand can help us keep moving forward.

So for this Wednesday morning, I want to hear from y’all:

💬 What is the ONE MS symptom you wish people understood better?

Drop it in the comments. Somebody reading your answer might realize they’re not alone in what they’re going through.

Keep fighting. Keep showing up. Even on the days when all you can do is make it through the day—that still counts. 💪🧡

Appreciate y’all, love y’all. 🧡💙

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