Every Heart Beat

Every Heart Beat Our experiences dealing with a medical tragedies and our triumphs. Learning to live again. This page is for following us during our life's obstacles.

Amylodosis, Smoldering MM and Aorta dissection

06/03/2026

Regardless of what has or is happening in our lives we should never be judged. We share our lives on social media to help others understand our ups and downs, our happiness when we accomplish something, our sadness when we fail or something bad happens,never for judgement. Sharing these things somehow makes us feel better about ourselves. We share our health of our loved ones or ourselves for education or just to let everyone know what is going on. I've always been upfront with our lives, the good and the bad. When our marriage was falling apart, when we resolved things, when Perry kept getting sicker and sicker I tried to educate by sharing our journey. Unfortunately I was judged. I didn't have to share anything with anyone. I didn't have to update anyone but I did. I tried very hard to educate because no one's journey is perfect let alone judgement thrown out there.
I have met some outstanding pages on social media, Maxine the Fluffy Corgi, Wendy Marie Wortham, Cindy Daniel Hammy & Olivia and last but not least Kevin Lawson. The list is endless. Thank you everyone for helping me get through my darkest days by making me laugh out loud when I needed to laugh. Thank you for making me cry when I needed to cry. Thank you for letting me into your world and keeping me wanting more of your lives.
This being said I am stepping away from FB. I don't know if I'll be back.
People can be so hateful, cruel and judgemental by being a keyboard warrior. I dare any of you to say crap to me in person, I promise you this, no matter how sick I am you would be on the ground.
I won't be updating anyone anymore.
Thank you to the beautiful people who have followed our journey and for the ones who committed kind words and encouragement.
I wish everyone peace and happiness.

Sue Bridges

05/26/2026

Oh Jack

05/04/2026
He's precious
03/25/2026

He's precious

03/25/2026

Living with terminal cancer is and has been crazy. One day you are feeling good and the next day you can't get out of bed. I've learned a lot these past 4 years...

I've learned that people are unpredictable

Please spread awareness for Amyloidosis. It's a bad disease. It's evil. It's overlooked and hardly tested for. New treat...
03/25/2026

Please spread awareness for Amyloidosis. It's a bad disease. It's evil. It's overlooked and hardly tested for.
New treatments are happening everyday. We need a cure!

πŸš¨π‹π’π π‘π­ 𝐒𝐭 𝐫𝐞𝐝 𝐚𝐧𝐝 𝐑𝐞π₯𝐩 𝐫𝐚𝐒𝐬𝐞 𝐚𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬! πŸ”΄πŸ’‘

π˜‹π˜°π˜―β€™π˜΅ 𝘧𝘰𝘳𝘨𝘦𝘡 𝘡𝘰 𝘱𝘢𝘳𝘀𝘩𝘒𝘴𝘦 𝘺𝘰𝘢𝘳 𝘳𝘦π˜₯ 𝘭π˜ͺ𝘨𝘩𝘡 𝘣𝘢𝘭𝘣 for your porch, driveway, home, or business 🏑🏒 and take part in Light The Night for Amyloidosis ❀️

This Amyloidosis Foundation awareness event runs throughout the entire month of March πŸ—“οΈ. Locations across the globe are lighting up for the cause 🌍, and with your help, our list will continue to growβ€”we’re excited to share it with you soon πŸ™Œ

πŸ‘‰ Get your red bulb now: https://amyloidosis.org/product/red-light-bulb/

I haven't been posting here for a while. Things have been really busy. We are ok. We're trying to figure things out. It ...
03/25/2026

I haven't been posting here for a while. Things have been really busy. We are ok. We're trying to figure things out. It hasn't been easy but we are not giving up on each other.

02/08/2026

I absolutely love watching the Olympics. The talent is wild. Rock on USA!

01/30/2026

Made me giggle

What?
01/30/2026

What?

And a beautiful thing she was… 🀍πŸͺ½
Rest in peace, Catherine O’Hara, a true light of laughter and heart.
Forever our Home Alone mama.
The incomparable Moira Rose.
Your kindness, wit, and warmth touched us all.

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