So Southern at Heart

So Southern at Heart Inspire. Connect. Create. Let’s Be Better Together � Be Well | �Health, Fitness, Lifestyle Network ... Work in progress. Be the Light!

09/03/2026

You ARE enough.

You CANNOT lead people farther than you are willing to grow yourself.

September arrives. Watch us 🧹!

Better Get to Livin’ … Dolly Parton ☀️ ✨ Thank you, for sharing “our why”. Just like you, but sometimes some of us wal...
08/28/2026

Better Get to Livin’ … Dolly Parton ☀️ ✨

Thank you, for sharing “our why”. Just like you, but sometimes some of us walk in a world where life is just a bit of a struggle.

Thank you for featuring Samantha Stallings ! Want to know more about this and “why” it’s so important to be seen?

Samantha’s hardest-earned trophies aren’t trophies. 🏆They’re the casts she outgrew. The referrals that sometimes led nowhere. The impossible appointment won because a fellow board member vouched for her with the front office. Anna-Maria Beck Christian Beck

That’s what happens when you age out of pediatric care - even when you’re a tireless advocate. Even with connections most patients don’t have.
Samantha is a Middle Person. She advocates for everyone who’s had to fight this hard just to be seen.

Grateful for communities like Loeys-Dietz SyndromeFoundation and HCU Network America who walk this road every day. Tag someone who needs to see this. 💜
™ raredisease HealthcareAdvocacy LoeysDietzSyndrome

~ Pam Stallings 💃📸 Loeys-Dietz SyndromeFoundation The Marfan Foundation EveryLife Foundation .awareness Conquer Chiari Patient Worthy Patients Rising Advocates BraveHearts Kentucky VOICES of Kentuckiana VOICE-TRIBUNE WLKY Cincinnati Children's Norton Children's Kosair for Kids Baptist Health University of Iowa Health Care Stead Family Children's Hospital Health UK HealthCare National Institutes of Health Julie Raque Adams Susan Tyler Witten Morgan McGarvey RandPaul The Health Institute Social Health Network UofL Health flok Health HCU Network America Danae Austin Bartke

08/28/2026

How can patients and families feel more empowered in their rare disease care?

Join NORD this Thursday from 3–4 p.m. ET for a free Living Rare, Living Stronger webinar about improving your care. Register here: https://bit.ly/4vZmIei

Submit your questions when you register, then join us for a live Q&A! Can’t attend live? Register anyway, and we’ll send you the recording after.

08/28/2026

Our Train for Victory endurance events support our life-saving mission! Sign up to run for someone you love! Email [email protected] for details.



*As always, please consult with your expert provider before taking part in any physical activity. Medical clearance is required for runners.

08/28/2026

Reminder to register for the 2026 Newborn Screening Bootcamp! Co-hosted by the EveryLife Foundation for Rare Diseases and Expecting Health (TAG), the Newborn Screening Bootcamp provides attendees with the opportunity to learn about and discuss developments in newborn screening with experts and patient advocates currently navigating the newborn screening process.

📍Location:
Faegre Drinker
1500 K St NW #1100
Washington, DC 20005

⏰ When:
September 24, 2026
10:00 a.m.–4:00 p.m. ET
Reception: 4:00 p.m.–5:00 p.m. ET

Spots are filling up! If you are interested in learning more about newborn screening, register for the bootcamp now: https://hubs.li/Q04tBvFJ0

08/28/2026

“Hi, have you ever heard of Marfan syndrome?” Rent original cast member Fredi Walker-Browne and team could be heard asking hundreds of people that question today at The Festival in Kingston, NY. We are so grateful that Fredi is raising awareness alongside her podcast RENTStories - The Podcast

08/20/2026

We are so grateful to the original cast members who brought their friend Jonathan Larson’s memory to the Rent reunion at The Festival this weekend in so many ways, here united with purple "Remember Jonathan. Save Lives" The Marfan Foundation bracelets.

People living with Marfan have a 250x greater chance of experiencing an aortic dissection than the general population. Awareness and medical monitoring help to save more lives.

YOU can help save lives and improve quality of life by knowing the signs.
Visit marfan.org/larsonlove

Know the signs, support awareness.



The Festival RENTStories - The Podcast BroadwayWorld Broadway.com Playbill

08/15/2026

Back-to-school fun! 🍎✏️📚

Being a teacher means inspiring curiosity, building confidence, celebrating every little victory, and helping children discover just how far they can go.

As Woody says, “Reach for the sky!” 🤠⭐️

Good luck to all the amazing teachers, students and families beginning a new school year. You’ve got a friend in me! 💛

05/28/2026

Registration for Rare Across America 2026 is officially open! Meet with your Members of Congress virtually and at their in-district offices and educate them on the issues that are most important to the rare community by sharing your story.

Meetings will take place from August 10 to 21, and registration closes on Friday, July 17. Make an impact in your community at

Register here: https://hubs.li/Q04gjLFM0

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Louisville, KY
MAJOR: 402XX, MINOR: 400XX, 401XX

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