Living with Alpha-Gal

Living with Alpha-Gal Welcome to Living with Alpha-Gal. We’re a community for those diagnosed with Alpha Gal Syndrome, a severe allergy to mammalian products.

Join us for support, resources, and shared experiences. Together, we navigate this journey. 💚

I just learned of a new dangerous untreatable virus being spread by ticks called the Powassan Virus.
06/17/2026

I just learned of a new dangerous untreatable virus being spread by ticks called the Powassan Virus.

Ticks spread Powassan virus. Illness is uncommon but can be severe.

This abstract is a fascinating read on the studies and research that joined together to discover Alpha Gal Syndrome.
06/17/2026

This abstract is a fascinating read on the studies and research that joined together to discover Alpha Gal Syndrome.

Anaphylaxis is a severe allergic reaction that can be rapidly progressing and fatal; thus, establishing the etiology of anaphylaxis is pivotal to long-term risk management. Our recent work has identified a novel IgE antibody response to a mammalian ...

I vow to never saturate this groups feed with Ai slop. You all deserve more effort than that even if it is a pen on pape...
06/17/2026

I vow to never saturate this groups feed with Ai slop. You all deserve more effort than that even if it is a pen on paper.

Day 3: What to do when bit by a tick?1. Remove it. (Save and send to a research lab if it is a lonestar tick, dm for mor...
06/16/2026

Day 3: What to do when bit by a tick?

1. Remove it. (Save and send to a research lab if it is a lonestar tick, dm for more info.)
2. Clean the area where you were bit.
3. Take a picture of the bite
4. Monitor for 30+ days to keep an eye out for a bullseye rash that expands or health changes like fever, fatigue, etc. (Call your doctor!)

TUFF Momma Salt Craft I used your Maple Bacon salt on my breakfast sandwich today. I cannot thank you enough for this li...
06/16/2026

TUFF Momma Salt Craft I used your Maple Bacon salt on my breakfast sandwich today. I cannot thank you enough for this little touch of bacon heaven.

Day 1: What to do when bit by a tick?1. Remove it. (Save and send to a research lab if it is a lonestar tick, dm for mor...
06/12/2026

Day 1: What to do when bit by a tick?

1. Remove it. (Save and send to a research lab if it is a lonestar tick, dm for more info.)
2. Clean the area where you were bit.
3. Take a picture of the bite
4. Monitor for 30+ days to keep an eye out for a bullseye rash that expands or health changes like fever, fatigue, etc. (Call your doctor!)

06/12/2026
06/11/2026

Noo! I was bit again. I live in a tick infested area and tonight found one on my stomach that had latched on...who knows when. I feel lucky it was not a Lonestar Tick, but goodness the PTSD is a real thing sometimes with this...Dammit dammit.:(

06/09/2026

Pardon my language, but HOLY S**T.

I just tried the Maple Bacon Salt from TUFF Momma Salt Craft and it is the closest thing to real bacon I've tasted since getting Alpha-Gal. I honestly can't believe how accurate the flavor is.

Their brochure included this quote: "You are the salt of the earth, but what good is salt if it has lost its flavor?" That pretty much says it all.

If you've been missing bacon, check them out at www.tuffmomma.com. Small family-run business out of Missouri with an amazing selection of salts, gift sets and accessories.

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Lusby, MD

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