Testing for Tots

05/26/2026

05/06/2026

New York Patients and Caregivers — We Need Your Voice!

In the coming weeks, the New York State Legislature will be voting on Assembly Bill A10521A, which would add Fabry disease to the state’s newborn screening panel.

Early detection can make a meaningful difference for individuals and families affected by Fabry. Personal stories are incredibly powerful in helping decision-makers understand the real impact.

If you are a patient or caregiver in New York and are willing to share your story—especially if you believe earlier diagnosis through newborn screening could have changed your experience—we would love to hear from you.

Please call, write or email your state legislator or senator and ask them to support the passage of AB A10521A.
https://nyassembly.gov/mem/search/

Please send us a message to learn more about how you can help.

Testing for Tots

04/07/2026

We are just $830 from 50% of our goal! Many great items still have no bids!! Help us raise funds for Fabry Newborn Screening!

Silent auction 'Testing for Tots Online Auction' hosted online at 32auctions.

04/01/2026

We are almost to 20% of our goal in the first day of our online auction! Go check it out and share!

https://www.32auctions.com/Testingfortots2026

04/01/2026

Testing for Tots has several projects in the works and we are grateful for your continued support! Starting today April15 (at 10 pm ET) there will be an online auction of some fun curated items. Check out the QR code to bid, making donations to on Venmo.

Thank you for helping support our mission!

03/28/2026

's go!

03/27/2026

Final hours of prep include making beautiful arrangements for our sponsors tables! Thank you for sponsoring our floral this year!