CHES Foundation, Inc.

09/05/2026

𝙄𝙨 𝙞𝙩 𝙉'𝘼𝙬𝙡𝙞𝙣𝙨 𝙤𝙧 𝙉'𝙚𝙧𝙡𝙞𝙣𝙨? 𝙒𝙚𝙡𝙡 𝙩𝙝𝙖𝙩'𝙨 𝙬𝙝𝙚𝙧𝙚 𝙬𝙚'𝙧𝙚 𝙝𝙚𝙖𝙙𝙚𝙙 𝙣𝙚𝙭𝙩 𝙬𝙚𝙚𝙠!

September is here and the kids are back in school here in New England. It's always a bit wild to us that other parts of the country are already behind a desk by mid-August!

Catch up on our Digital Digest here ➡️ https://ches.education/newsblog/2026/bdnews9-4-nola-inhathn-fx

Heathers back in the drivers seat expanding on my message in the last Digital Digest. We have a line up ⚾️ in this weeks edition including a key ATHN study relating to inhibitors and a special Factor 10 webinar happening on Sept 17!

09/03/2026

🎨 ꜰXᴘʀᴇꜱꜱɪᴏɴꜱ - ꜰᴏʀ ᴏᴜʀ ᴜʟᴛʀᴀ ʀᴀʀᴇ 🔟 ꜰᴀᴄᴛᴏʀ 10'ꜱ! 𝗧𝘄𝗼 𝗪𝗲𝗲𝗸𝘀 𝗔𝘄𝗮𝘆!

Living with Factor X means carrying one of the rarest bleeding disorders largely without a roadmap, and often, without anyone nearby who truly gets it.

All our upcoming webinars are in one place! ↪ https://ches.education/webinars

Join CHES and Bri Beck, LCPC, ATR-BC, for some creative reflection time, and an open group discussion, we'll explore what it means to live with Factor X not just medically, but emotionally, and the quiet power of being truly understood by someone who has lived it too.

08/28/2026

𝗨𝗹𝘁𝗿𝗮-𝗿𝗮𝗿𝗲 𝗱𝗼𝗲𝘀𝗻’𝘁 𝗺𝗲𝗮𝗻 𝘂𝗻𝘀𝗲𝗲𝗻. 𝗜𝘁 𝗺𝗲𝗮𝗻𝘀 𝗲𝘅𝘁𝗿𝗮𝗼𝗿𝗱𝗶𝗻𝗮𝗿𝘆. 💙

https://ches.education/one-drop-registration

One Drop is proud to welcome the incredible community living with ultra-rare factor deficiencies—including FId, FIId, FVd, FVIId, FXd, FXId & FXIII—and ultra-rare platelet deficiencies, including Glanzmann’s Thrombasthenia and Platelet Disorders.

This medical conference is more than a gathering—it’s a chance to connect, learn, be heard, and shine a light on conditions that affect few, yet impact lives so deeply.

Huge shout out to our Diamond Sponsor: Novo Nordisk 💎

Your rarity is your strength. Your voice matters. Your community is here. 🩸✨

08/25/2026

🩸Oɴᴇ Dʀᴏᴘ ᴀᴘᴘʟɪᴄᴀᴛɪᴏɴꜱ ᴀʀᴇ ᴏᴘᴇɴɪɴɢ ɪɴ ᴀ ᴄᴏᴜᴘʟᴇ ᴅᴀʏꜱ! 2️⃣7️⃣

Want to know more about all the ULTRA rare factor deficiencies? You may say, wow I've never heard of that one! Odds are that if you are in our community, you probably have 😉 but learning more will always solidify the saying that knowledge is power! 🦾

https://youtu.be/EdQKRxJFwRc 🎥

Dr. Brian Branchford from Versiti covered the factors at this past One Drop. Ultra-rare factor disorders can make diagnosis, care, and treatment feel overwhelming. This educational session helps patients and families build the knowledge and skills they need to better understand their diagnosis, advocate for their care, and support a better quality of life. Watch the video and empower yourself with knowledge.

08/22/2026

🎬 𝗙𝗜𝗡𝗔𝗟 𝗖𝗮𝗹𝗹 𝗳𝗼𝗿 𝗜𝗻𝗵𝗶𝗯𝗶𝘁𝗖𝗼𝗻! 📲 𝗔 𝘀𝗽𝗲𝗰𝗶𝗮𝗹 𝗴𝘂𝗲𝘀𝘁 𝗲𝗱𝗶𝘁𝗶𝗼𝗻 𝗼𝗳 𝘁𝗵𝗲 𝗗𝗶𝗴𝗶𝘁𝗮𝗹 𝗗𝗶𝗴𝗲𝘀𝘁! 📰

The summer is almost over?! Kids are going back to school?! 🚌 This is bonkers!
As we approach the end of August, we're put out one LAST call for folks to join us at InhibitCon! Registration closes this Sunday night at midnight 🕛

https://ches.education/newsblog/2026/bdnews8-21-finalinhibitcall-vagusnerve-allbleedoptions ↔️ Read this edition of the digest here!

This edition has a powerful advocacy message alongside articles of note that we've come across. HMB signals a bleeding disorder, hoping to close a health gap for adolescent patients, a very cool vagus nerve stimulation article and a new tool called All the Bleeding Options brings these resources together into a single, organized platform.


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08/13/2026

🚨 Applications are closing soon for InhibitCon!

Join us in New Orleans, September 10–13 for an unforgettable experience filled with connections, learning, and a whole community of those affected by an inhibitor!

If you’ve been thinking about applying, now’s the time! ✨ Don’t miss your chance to be part of it. https://ches.education/inhibitcon-registration

📅 September 11–13, 2016 | Family Camp and Leverage Pre-Con Sept 10th!
📍 New Orleans, LA - Royal Sonesta, Bourbon Street!
⏰ Applications close soon!

Apply now and we’ll see you in NOLA! 🎷🌴 Hotel and Travel ✈️ are covered!

08/11/2026

Written about one of our favorite inhibitor moms, this article delves into the rigorous hardships of managing an inhibitor with a young family. We feel privileged to provide the ONLY Inhibitor focused conference each year for a community that we feel still doesn't receive enough support 💜

An inhibitor means managing a bleeding disorder that's not responding to the tools that are given to manage it, says columnist Jennifer Lynne. https://hemophilianewstoday.com/?p=104336

08/07/2026

🎷 𝗔𝗿𝗲 𝘆𝗼𝘂 𝗰𝘂𝗿𝗿𝗲𝗻𝘁𝗹𝘆 𝗮𝗳𝗳𝗲𝗰𝘁𝗲𝗱 𝗯𝘆 𝗮𝗻 𝗶𝗻𝗵𝗶𝗯𝗶𝘁𝗼𝗿 𝗼𝗿 𝗰𝗮𝗻'𝘁 𝘂𝘀𝗲 𝘁𝗿𝗮𝗱𝗶𝘁𝗶𝗼𝗻𝗮𝗹 𝗿𝗲𝗽𝗹𝗮𝗰𝗲𝗺𝗲𝗻𝘁 𝗽𝗿𝗼𝗱𝘂𝗰𝘁𝘀? We're a little more than one month out from Yazzing it Up in NOLA! We have a few more spots open for you or your family to join us!

Sign up for InhibitCon and read everything in this issue here ↠ https://ches.education/newsblog/2026/bdnews8-7-26-jazzflute-chesatnbdf-webinars

Eric and Heather will be at NBDF in Orlando next week, if you see them be sure to say hello and wave emphatically! There are 3 webinars coming up, we have a dedicated page for all webinars now ➡️ https://ches.education/webinars

08/06/2026

🩸𝗧𝗵𝗲 𝗔𝘂𝗴 𝟭𝟴𝘁𝗵 𝗚𝗧 𝗥𝗼𝘂𝗻𝗱𝘁𝗮𝗯𝗹𝗲 𝗶𝘀 𝗙𝗮𝘀𝘁 𝗔𝗽𝗽𝗿𝗼𝗮𝗰𝗵𝗶𝗻𝗴. 𝗔𝗱𝗱 𝘆𝗼𝘂𝗿 𝗩𝗼𝗶𝗰𝗲! 🎙️

https://bit.ly/bleeding-edge-roundtable ↩ 𝘽𝙚 𝙖𝙥𝙖𝙧𝙩 𝙤𝙛 𝙩𝙝𝙚 𝙘𝙤𝙣𝙫𝙚𝙧𝙨𝙖𝙩𝙞𝙤𝙣 𝙝𝙚𝙧𝙚!

If you are living with GT, care for someone who is, or work as a provider and want a deeper understanding of the lived experience. Believe Ltd is hosting a live virtual round table and creating Episode 5 specifically for the GT community.

08/02/2026

✨ 🥩 𝐿𝑎𝑐𝑘𝑖𝑛𝑔 𝐼𝑟𝑜𝑛? 🏌 ✨

If you have a bleeding disorder, iron deficiency anemia (IDA) is especially important because ongoing or repeated bleeding can gradually deplete your body's iron stores. Even relatively small amounts of blood loss over time can lead to iron deficiency, and if it continues, your body eventually cannot make enough healthy red blood cells.

If you have joined us in the past for sessions you do not need to sign-up again. Watch your email for the Zoom details! https://form.jotform.com/250796493352163 ↩ New to us? Join the the ladies of BFFF here!

In this session, Liz will expand on diets, food and ways to improve iron and other important nutrients whilst dealing with a bleeding disorder. In this session, Liz will expand on diets, food and ways to improve iron and other important nutrients whilst dealing with a bleeding disorder.