Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

06/17/2026

The June 2026 edition of RSDSA's digital newsletter, In Rare Form, is now available: https://bit.ly/3Sskl4T

🔬 Research 🔬
We continue to spread the word about the Complex Regional Pain Syndrome-Relief and Improvement Study for Efficacy (CRPS-RISE) trial by Ambros Therapeutics which now has 14 sites across the country.

Click above (or visit our pinned posts) to learn how the trial works and to see if you qualify. ↑

A list of additional CRPS research studies can be found on page 5.

🫂 Support 🫂
June is National Safety Month so we share a reminder regarding natural disaster and home evacuation planning that you can coordinate with your county.

Two of our support groups in the Carolinas are hosting events this fall. This is a great opportunity to meet and connect with fellow CRPS Warriors. Click through to learn more about the August event in Myrtle Beach and the September event in Charlotte.

As always, you can find a link to all of our current in-person, Zoom, Facebook, and peer support groups on page 13. If you want to start your own support group, or if you want to share what's new with your group, let us know!

🎗️ Community 🎗️
RSDSA's 7th Annual Walk for CRPS took place earlier this month and we recapped the event with photos and a link to a news segment. On page 7, we also shared photos from Burning Hope’s Walk Strong event that took place at the end of April.

Don’t forget to register for The CRPS Connection: RSDSA's Adult Weekend Retreat taking place this October in Philadelphia. There are also two scholarships available for this event!

If you are interested in sponsoring a future issue of In Rare Form, please contact us at [email protected].

06/15/2026

By Jan Vollert In 2006, Carl Koch sued his employer for damages after burn injuries during a workplace accident left him with chronic pain. The employer accused him of malingering, so the judge admitted a neuroscientist as an expert witness, who testified that he could see Koch’s pain on a brai

06/12/2026

June is National Safety Month!

Some local governments have resources to help assist with medical needs (electricity for a medical device during an emergency, evacuation assistance, etc.) but they cannot help if they don’t know who (and where!) you are.

Does your county have a “Special Needs Program” that can assist you during a natural disaster?

Contact your county to learn more about resources. Start by researching your local Office of Emergency Management, Department of Health or call your town/city hall. Please note that the name of this office may vary depending on where you live.

06/11/2026

We enjoyed chatting with Tina and the Embers of Strength for Tina team during our livestream for RSDSA's 7th Annual Walk for CRPS on Saturday.

Thank you for joining us and for continuing to spread awareness for year after year. 🧡

06/10/2026

Thank you to the Peat Family for walking with us on Saturday for RSDSA's 7th Annual Walk for CRPS!

06/09/2026

Thank you to the Hymels for walking with us on Saturday for RSDSA's 7th Annual Walk for CRPS!

06/08/2026

Thank you to WMBF News for speaking with the Conway Riverwalk, SC team during RSDSA's 7th Annual Walk for CRPS on Saturday! 🧡

Click through to watch the full segment. ↓

More than a dozen people gathered at the Conway Riverwalk Saturday morning to raise awareness for complex regional pain syndrome.

06/08/2026

Keep the photos from RSDSA's 7th Annual Walk for CRPS coming! 🧡

Team Disabled Advantage had several teams in various states walking for Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) CRPS awareness walk yesterday 😄🧡

I'm proud of everyone on our team who signed up and participated, in whatever capacity they were able. Austin & I did 1.86mi with our friend & her dog, on a scenic trail alongside a river.

06/06/2026

Join us as we engage with CRPS Warrior teams across the country for RSDSA's 7th Annual Walk for CRPS! 🧡