Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) RSDSA's mission is to provide support, education, and hope to everyone affected by CRPS.

Our executive director is at PAINWeek 2026 and has come up in multiple presentations throughout the last few days. The...
09/10/2026

Our executive director is at PAINWeek 2026 and has come up in multiple presentations throughout the last few days. There was even a full session about CRPS and CY200 pain therapy.

It has been great to see that more and more medical professionals are trying to better understand CRPS and work towards improved treatments and a cure. It has been a great week networking with others who understand. More to come!

09/09/2026

Good news: our September CRPS Support Group is back on.

We had originally planned to cancel this month’s meeting, but we are grateful that Kathy Tennaro, a member of our support group community, has volunteered to step in as our guest host.

Kathy will lead an informal conversation around:

“What Works for You: Celebrating Our Positive Little Wins”

This will be a chance to share the things; big or small that have helped you cope, manage symptoms, get through difficult days, or simply make life with CRPS a little easier.

You are welcome to participate as much or as little as you are comfortable with.

📅 Saturday, September 12, 2026
🕐 1:00–3:00 PM EST

To RSVP and receive the meeting link, email [email protected].

A special thank-you to Kathy for stepping up and helping us keep the community connected this month. 💛

09/09/2026

Join our Livestream with Dr. Kiran Patel - SCSs and DRGs on Tuesday, September 22nd at 7PM.

As the title suggests, Dr. Patel will join us to discuss the difference between spinal cord stimulators (SCS) and Dorsal Root Ganglion (DRG) stimulation. Patients with will also join us live to discuss their experiences.

Dr. Patel is board certified in Pain Management and Anesthesiology. She completed both her Interventional Pain Medicine fellowship and Anesthesiology residency at the prestigious Columbia University Medical Center-New York Presbyterian Hospital.

She specializes in the treatment of back and neck pain caused by arthritis, degenerative disc disease, spinal stenosis and pain following spine surgery. She also has expertise in treating neuropathic pain, cancer related pain, CRPS, atypical facial pain, pelvic pain, headache and peripheral neuralgias.

Comment below with any questions you have for Dr. Patel. You can also send them to us in a private message here on Facebook or by emailing us at [email protected].

*Abbott is an annual sponsor of RSDSA.*

Thank you to Kira K. of the Horry & Brunswick Counties & Surrounding Areas CRPS/RSD Support Group for helping to spread ...
09/08/2026

Thank you to Kira K. of the Horry & Brunswick Counties & Surrounding Areas CRPS/RSD Support Group for helping to spread awareness of during last month's Myrtle Beach Pelicans vs. Fayetteville Woodpeckers Game! 🧡

If you are interested in hosting an event (like a walk, expo, sports tournament, etc.), please send us a message!

09/01/2026

🔹 All Ages🔹 Countless Diagnoses🔹 Millions of Stories🔹 One Movement 🔹

Pain looks different for everyone. But the need to be seen, heard, understood, and supported connects us all.

This Pain Awareness Month, we’re bringing together millions of individual experiences to create —a collective voice too powerful to ignore.

Your story matters. Your voice matters. And together, our voices can create change.

This September, join the movement. Share. Learn. Speak out.

—together.

Follow along all month: https://uspainfoundation.org/painawarenessmonth

As of Monday, August 31st, Ambros Therapeutics' neridronate trial now has 24 sites.Visit crps-rise.com for more details ...
08/31/2026

As of Monday, August 31st, Ambros Therapeutics' neridronate trial now has 24 sites.

Visit crps-rise.com for more details as well as their study page on the ClinicalTrials.gov website (https://bit.ly/4u7YSfa) as new trial sites are rolling out weekly!

This is *not* RSDSA’s study. Please direct study questions and comments to [email protected].

→ Phoenix, AZ
→ Tucson, AZ
→ La Jolla, CA (new)
→ Napa, CA
→ Pasadena, CA
→ Tustin, CA
→ Washington, DC
→ Brandon, FL
→ Daytona Beach, FL
→ Pembroke Pines, FL
→ Lawrenceville, GA
→ Newnan, GA
→ Chicago, IL
→ Orland Park, IL
→ Overland Park, KS (new)
→ Reno, NV
→ Shrewsbury, NJ
→ Charlotte, NC
→ Wilmington, NC
→ Winston-Salem, NC
→ Dayton, OH (new)
→ Fort Worth, Texas
→ Houston, TX
→ Charlottesville, VA

08/18/2026

THIS SUNDAY! | If you're in the Myrtle Beach, SC area, the Myrtle Beach Pelicans vs. Fayetteville Woodpeckers Game Fundraiser will take place this Sunday, August 23rd at 6:35PM. It will be a great opportunity to connect with others who have while enjoying America's pastime. ⚾️

Learn more inside the Facebook event! ↓

08/14/2026

Watch as our guests answer your questions related to having surgery when you have a CRPS diagnosis.

Dr. Joshua Prager is a distinguished board-certified pain medicine physician at the California Pain Medicine Center in Santa Monica. His professional activities include chairing and participating in evidence-based guideline projects, developing a revised treatment algorithm for CRPS, and serving on the RSDSA Board of Directors. He is also analyzing data on managing ketamine infusion side effects for treating CRPS and depression.

Dr. Salim Hayek is the Chief of the Division of Pain Medicine at University Hospitals Cleveland Medical Center and a Professor of Anesthesiology at Case Western Reserve University. He is well published and serves on the editorial board of most pain journals. Dr. Hayek has had a number of service accomplishments at the local and national levels including being the former president of the North American Neuromodulation Society.

Learn more about RSDSA at rsds.org.

Address

PO Box 502
Milford, CT
06460

Telephone

+18776627737

Website

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