Moving Mountains: The Life of Tennison

Moving Mountains: The Life of Tennison A living miracle. God still moves.

Last night we went to the Trats game. Tennison loved seeing all of the Star Wars friends and enjoyed some of the basebal...
06/14/2026

Last night we went to the Trats game. Tennison loved seeing all of the Star Wars friends and enjoyed some of the baseball game lol he was more interested in the light saber and meeting new friends.💙💙💙

Such a happy end to a wonderful school year! Kindergarten is complete. Tennison ended the year attending all 5 days with...
06/05/2026

Such a happy end to a wonderful school year! Kindergarten is complete. Tennison ended the year attending all 5 days with 3 half days and 2 full days. What a blessing it was to have the support of the school staff who helped him make it through this school year.
Happy and sad.
My baby boy is growing up and continuing to move mountains with every breathe.
Moments I had only dreamed of are our current reality and I am oh so thankful. 💙💙💙

Enjoyed some beautiful weather today spending time at the park! 💙💙💙
05/31/2026

Enjoyed some beautiful weather today spending time at the park! 💙💙💙

05/18/2026

Tennison being silly with sissy while showing off a fresh haircut and new jam jams.💙💙💙
Also, no clue why he was signing she is sick at the end.. lol 🤷🏻‍♀️

I truly appreciate a supervisor I once worked with who identified what I experience as grief. Grief comes in waves. Grie...
05/13/2026

I truly appreciate a supervisor I once worked with who identified what I experience as grief. Grief comes in waves. Grief sometimes comes in bursts, sharp pains. At other times it's a dull distant pain.
I saw this post in a page I follow and it hit me really hard today.
Though my grief has changed from what I refer to as "the early days", it remains.
I have never stopped fighting for Tennison, advocacy since day one. Though it's not a daily thought, a distant thought is there.. when I am gone.. when we, the parents, are gone.. who fights?
Grief changes and in grief we can find meaning. In grief there can be beauty. Some days though, some days are just hard. 💙💙💙

Norovirus update: I think the full strength feed overnight was too much for Tennison's belly because he woke up with dia...
05/03/2026

Norovirus update: I think the full strength feed overnight was too much for Tennison's belly because he woke up with diarrhea. For his lunch feed I ended up splitting half with pedialyte and that seemed to help his belly.

In other news:
While at dinner tonight Tennison asked to sit up at the island and join us to eat. Even grabbing a plate and tortilla shell, chips, and water. I quickly found him licking all the seasoning off the chips and chugging his water like a champ.

For those who do not know: Tennison was intubated most of his infancy and never developed his suck/ swallow reflux, also Tennison's anatomy played a role in his ability to eat orally. When Tennison was just over 2 years old he had a gastric transposition which placed his stomach behind his left lung and heart. A part of his esophagus was branched and connected to his stomach to allow him the ability to eat typically. Tennison has been involved in feeding therapy for some time in addition to tons of practice at home. Mustard has always been the go to, favorable food. Lately, Tennison has been trying food pouches with strawberries and oats. We try and offer as much as possible to provide opportunity. Usually he doesn't bother too much but today, today, my heart is happy and he was so proud. Thankful for these celebrations! 💙💙💙

What a roller-coaster of a week. Tennison went to the local ED Monday night. We thought we could manage hydration at hom...
05/03/2026

What a roller-coaster of a week.
Tennison went to the local ED Monday night. We thought we could manage hydration at home, that failed.
After much diarrhea and loss of more fluids Wednesday morning Tenn and I headed to Children's and he was admitted.
Tennison had Norovirus. He was on IV fluids in addition to feed and pedialyte with no urine or bowel output. After a day his IV infiltrated. A second IV was placed and immediately infiltrated. Tennison has limited real-estate for IV insertion. His rate for his fluids was ultimately increased to attempt for more fluids quicker through his Jtube. He then complained of discomfort in his belly. He also had a bad headache for a while. In addition he had 2 nights with no urine or bowel output.
Today though, he drank water from a cup, was up and moving, had his pedialyte-feed mix, plus his afternoon feed, all at his normal rate AND had good urine and bowel output!! That's what I was waiting on. Around 4pm the Dr. approached and we discussed going home and that's just what we did 💙💙💙

Snuggles with momma. We took over a 4 hour, much needed, afternoon nap! Then an early bedtime! Hopefully some good rest ...
05/01/2026

Snuggles with momma. We took over a 4 hour, much needed, afternoon nap! Then an early bedtime! Hopefully some good rest will help heal little Mister. This Norovirus is no joke. Thank you all for the continued love and prayers. 💙💙💙

Update 4/30: his stool was sent to lab yesterday and confirmed for the NorovirusTennison was admitted this morning for d...
04/29/2026

Update 4/30: his stool was sent to lab yesterday and confirmed for the Norovirus

Tennison was admitted this morning for dehydration. It has been a long few days. He has had severe diarrhea (some GI bug) which has led to the dehydration. Thankfully he says he is not in any pain. Please continue thoughts and prayers for him. 💙💙💙.

Currently at the local ED. Tennison is getting fluids as we felt we were unable to keep up at home with just pedialyte. ...
04/28/2026

Currently at the local ED. Tennison is getting fluids as we felt we were unable to keep up at home with just pedialyte. So far he has had a chest xray and blood work drawn. No results yet. Right now he is thankfully sleeping. 💙💙💙

Update 1:45 AM: we are home and just settled in. Tenn received IV fluids which seemed to help quite a bit. We still needs to give pedialyte at home for the next 24 hrs to stay up on fluids. Attempting to avoid a hospital stay however, if we are unable to maintain he will need to be admitted.
His urine labs showed severe dehydration which was caused due to his GI bug. Thankfully no diarrhea in the last 6 plus hours!! And he finally went p*e!!
His blood work came back reflecting as it should. His chest xray shows he may have the start of a viral infection. Respitory pannel was negative for COVID-19, flu, and RSV.
Thank you all for your continued prayers, thoughts, and love. 💙💙💙

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8915 W Connell Ct
Milwaukee, WI
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