Sickle Cell Foundation of Minnesota

Sickle Cell Foundation of Minnesota Improving the quality of life for individuals and communities affected by sickle cell disease and sickle cell trait.

Sickle Cell Foundation of MN (SCFMN) is the ONLY active sickle cell community-based organization in the state of Minnesota. We are also a 501(c)(3), not-for-profit organization. Our Mission: Improving the lives of individuals and communities affected by sickle cell disease through education, advocacy, access to resources, and community empowerment. Our Values: Strong Individuals, Healthy Communi

ties and Equitable Access to Health Care. We exist to provide education, support, advocacy and exposure to Sickle Cell Disease as we give a face, a voice, and a purpose to a little-known community that has been under-served and ignored for far too long!

06/05/2026

🌈 Real Guests. Real Community. Real Talk.

Join us this Pride Month for an honest conversation about identity, resilience, belonging, and lived experience.

Hosted by Ms. Rae with special guest host B. Wilson, alongside our Real Guests Andre and Tristan. Join us as we create space for authentic dialogue, learning, and connection.

📅 June 23 🕕 6 PM CST

🔗 Register: bit.ly/sicklecellmn-realtalk-june

CommunityMatters

We need to stop defining sickle cell resilience only by survival. ❤️Real resilience is not just enduring indescribable p...
05/18/2026

We need to stop defining sickle cell resilience only by survival. ❤️

Real resilience is not just enduring indescribable pain.
For sickle cell warriors, resilience also means recovery, support, rest, boundaries, regulation, receiving care, and reducing the load.

Survival matters. But so does healing.

Sickle cell warriors deserve more than applause for pushing through. They deserve care, support, and systems that help them thrive. 💪🏾❤️

Stop reducing our lives to dots on a graph. In the world of research and policy, "data" can feel cold and detached. But ...
05/16/2026

Stop reducing our lives to dots on a graph.

In the world of research and policy, "data" can feel cold and detached. But at the Sickle Cell Foundation of Minnesota, we are redefining what it means to be counted. Data isn’t just a spreadsheet; it’s our lived experience turned into undeniable evidence.

Through the Sickle Cell Data Collection (SCDC) project, we are bridging the gap between clinical statistics and the heartbeat of our community. We aren’t just counting cases; we are documenting the truth of what it means to navigate a healthcare system that wasn't designed for us.

Defining community data means recognizing that the person living the experience is the expert! When we analyze the barriers to care and the gaps in education, we aren’t just looking for trends: we’re building a blueprint for survival and systemic change. Applying this data across healthcare, research, and policy ensures our stories are finally the ones driving the solutions.

It’s time to move beyond the numbers. Our reality is the data. Our voices are the evidence.

Data isn’t just a collection of numbers: it’s our collective voice in action. At the Sickle Cell Foundation of Minnesota...
05/16/2026

Data isn’t just a collection of numbers: it’s our collective voice in action. At the Sickle Cell Foundation of Minnesota, we know that community data is the most powerful tool we have to drive real change.

What does that look like in practice?

First, we define it: Community data is the lived experience, the barriers to care, and the daily realities shared by our warriors and families.

Then, we analyze it: We look for the patterns that show exactly where care falls short and where systemic gaps exist.

Finally, we apply it: This is Advocacy in Action. We take this blueprint into healthcare boardrooms, legislative offices, and research labs to ensure that outcomes are improved for everyone in the sickle cell community.

When we lead with our own data, we stop being subjects of research and start becoming the architects of our own solutions. Better care isn’t just a hope: it’s a data-driven strategy designed to work for us.

Join us in support as we continue to turn our stories into systemic change.

Happy Mother’s Day to the mothers, grandmothers, aunties, bonus moms, and caregiver warriors who love through exhaustion...
05/10/2026

Happy Mother’s Day to the mothers, grandmothers, aunties, bonus moms, and caregiver warriors who love through exhaustion, advocate through fear, and still show up with strength and tenderness every single day. ❤️

In the sickle cell community, motherhood often looks like late nights in emergency rooms, fighting to be heard, carrying generations of resilience, and loving deeply even when the world doesn’t fully understand the weight of that love.

Today, we honor you.
Not just for what you do — but for who you are.

Thank you for being protectors, nurturers, advocates, teachers, and safe places for so many. We see you. We celebrate you. We appreciate you.

With deep love and respect,
Sickle Cell Foundation of Minnesota ❤️

04/24/2026

For National Doctor’s Day, Minnesota Department Health and Sickle Cell Foundation of Minnesota are celebrating Dr. Ashish Gupta, a doctors dedicated to helping patients with sickle cell disease through gene therapy.

Today is World Book Day...I learned as a young student that there’s something powerful about opening a good book. Seriou...
04/23/2026

Today is World Book Day...

I learned as a young student that there’s something powerful about opening a good book. Seriously, good books won't let you just put them down to collect dust!

The right books can:
📖 Teach you something new
💡 Help you better understand your health
🌍 Expand how you see the world

Today is a reminder that learning doesn’t have to be complicated.
Sometimes it starts with simply… turning the page.

💛 Take a moment for yourself today.
Pick up a book. Read something that feeds your mind.

👇🏾 What are you reading right now? Got a good book to suggest?

04/02/2026

We know Sicklecell can impact your life and the ability to achieve certain career goals.

What would you be doing if you weren’t a Sicklecell advocate ?

📚 February was I Love to Read 'Month', but for the community, books can be more than a distraction. They can be langua...
04/01/2026

📚 February was I Love to Read 'Month', but for the community, books can be more than a distraction. They can be language, comfort, and power.

In case you missed it, in February we partnered with (MDH) and the Sickle Cell Data Collection (SCDC) program— and we shared book recommendations for:
👧🏾 Kids • 🧑🏾‍🦱 Young Adults • 🤲🏾 Caregivers

✨ Save this post. Share it with someone who needs it.

💬 Drop a comment: What book helped you (or your child) feel seen?

Medical Breakthroughs are here—but access is not!At we see the realities of these new and exciting innovations coming i...
03/28/2026

Medical Breakthroughs are here—but access is not!

At we see the realities of these new and exciting innovations coming into focus every day, BUT our Minnesota community deserves more than the idea of innovation. We deserve — EQUITY. ACCESS. ACTION.

We’re here and we're advocating every day to make sure breakthroughs reach every across and beyond 🤝🏾

Address

P. O. Box 22306
Minneapolis, MN
55422

Telephone

+17636075555

Website

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