Miesha & Tilyn

Miesha & Tilyn Together, we navigate each day with resilience, love, and the support of our community. Learn about his journey and how your support can make a lasting impact.

Autoimmune mama + Rare disease advocate
💙 Raising my TUBB4A Leukodystrophy warrior & sharing our real-life adaptation.
💛 Help us raise awareness & support our journey—every share, prayer, or gift matters for this solo mama & son! Our Fight for a Brighter Future As a single mother managing my own autoimmune condition, I’m also caring for my incredible son, Tilyn, who faces a rare, life-changing d

isorder. To give Tilyn the best quality of life, we need every bit of help we can get. Read our story "My Heart Shattered" & share as much as YOU can to help with supportive care. http://spot.fund/SupportiveCareForACowboy

Free medical supplies located in Tuttle Oklahoma! Open today!
06/06/2026

Free medical supplies located in Tuttle Oklahoma! Open today!

Every day is a fight when living with a rare disease!
05/20/2026

Every day is a fight when living with a rare disease!

Caregiver burn out is a real thing and it affects many including those caring for someone with a rare disease. And for parents of kids with h-abc/tubb4a related Leukodystrophy, it’s around the clock.

05/20/2026

Such an amazing story!!! if you wanna learn more, please check out NARBE House

05/03/2026

Tomorrow we lace up to support Willow & Wind, CNF's grief support community for families who have lost a child to a neurologic condition — and we couldn't be more ready for you, PigAbilities! 🏁

There's still time to be part of it! You can:
🌿 Support Willow & Wind as a $100 supporter and receive a t-shirt honoring the families at the heart of this work: https://tinyurl.com/WWSupporterShirts
🎟️ Enter the Piggest Raffle Ever for your chance to win big: piggestraffleever.com
💻 Join us virtually from wherever you are: https://tinyurl.com/CNFPigabilitiesRegister

Cheer us on, show up however you can, and help us cross the Finish Swine strong!
Link in bio for all the details.

Help Ben make his goal
05/01/2026

Help Ben make his goal

04/27/2026

Tubb4a Leukodystrophy life

Open today
04/25/2026

Open today

Hey friends!! Check this out!!
04/23/2026

Hey friends!! Check this out!!

03/01/2026
02/11/2026

Some of the Barber crew out on assignment today at The Lodge at Brookline, taking care of more of our elders in the community! Great job guys!

Address

Moore, OK
73170

Opening Hours

Monday 9am - 2pm

Website

https://amzn.to/48XGDxU

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