Miesha & Tilyn

Miesha & Tilyn Together, we navigate each day with resilience, love, and the support of our community. Learn about his journey and how your support can make a lasting impact.

Autoimmune mama + Rare disease advocate
πŸ’™ Raising my TUBB4A Leukodystrophy warrior & sharing our real-life adaptation.
πŸ’› Help us raise awareness & support our journeyβ€”every share, prayer, or gift matters for this solo mama & son! Our Fight for a Brighter Future As a single mother managing my own autoimmune condition, I’m also caring for my incredible son, Tilyn, who faces a rare, life-changing d

isorder. To give Tilyn the best quality of life, we need every bit of help we can get. Read our story "My Heart Shattered" & share as much as YOU can to help with supportive care. http://spot.fund/SupportiveCareForACowboy

Do you have a child with special health care needs or disabilities if so then join us for pajama and movie night on Augu...
08/14/2026

Do you have a child with special health care needs or disabilities if so then join us for pajama and movie night on August 6th, 2026 from 5PM -8PM.

We will have light snacks! We will also be giving away summer safety bags while they last. Must register to get location. You can register by emailing me at [email protected] or by calling (405) 271 -4511 Option 2. Thanks, hope to see you all there!! Latte with LaKisha

Moore Oklahoma!!!!
08/14/2026

Moore Oklahoma!!!!

πŸ’™ Together We Are Moore (Ages 6-17 yrs.)πŸ’™
Everyone deserves a place to belong, create, and have fun! Together We Are Moore is designed specifically for children with special needs, providing a safe, welcoming environment to explore creativity, make new friends, and create lasting memories.
πŸ“… Upcoming Activities:
🏈 September 18: Football Fandom
πŸ‘» October 9: Monster Mind Mayhem
🍁 November 13: Things of Thankfulness
πŸŽ„ December 18: Christmas Canvas
⏰ 6:30–7:30 PM
πŸ“ The Station Recreation Center
πŸ’² FREE β€” Advance registration required
πŸ‘¨β€πŸ‘©β€πŸ‘§ Participants of all ages must be accompanied by a parent. Adult participation is required.
πŸ’™ Please note: This program is specifically designed for children with special needs. Those who do not meet this requirement are encouraged to register for Doing Moore for Kids.
Come create, connect, and make memories together! Together We Are Moore! πŸ’™

They need your help!
07/05/2026

They need your help!

One year of building joy, one game at a time with the NARBE Foundation πŸŽ‰

None of this would exist without this community. As we head into year two, we are asking for your support to keep building free, switch-accessible games for people with disabilities who deserve to play. πŸ’œ

Thank you for sharing and for those who have already contributed. πŸ™ To help us reach our goal and to learn more about our mission: givebutter.com/narbe-2026

Free medical supplies located in Tuttle Oklahoma!  Open today!
06/06/2026

Free medical supplies located in Tuttle Oklahoma! Open today!

Every day is a fight when living with a rare disease!
05/20/2026

Every day is a fight when living with a rare disease!

Caregiver burn out is a real thing and it affects many including those caring for someone with a rare disease. And for parents of kids with h-abc/tubb4a related Leukodystrophy, it’s around the clock.

05/20/2026

Such an amazing story!!! if you wanna learn more, please check out NARBE House

05/03/2026

Tomorrow we lace up to support Willow & Wind, CNF's grief support community for families who have lost a child to a neurologic condition β€” and we couldn't be more ready for you, PigAbilities! 🏁

There's still time to be part of it! You can:
🌿 Support Willow & Wind as a $100 supporter and receive a t-shirt honoring the families at the heart of this work: https://tinyurl.com/WWSupporterShirts
🎟️ Enter the Piggest Raffle Ever for your chance to win big: piggestraffleever.com
πŸ’» Join us virtually from wherever you are: https://tinyurl.com/CNFPigabilitiesRegister

Cheer us on, show up however you can, and help us cross the Finish Swine strong!
Link in bio for all the details.

Help Ben make his goal
05/01/2026

Help Ben make his goal

Address

Moore, OK
73170

Opening Hours

Monday 9am - 2pm

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