06/02/2026
Advocating for my daughter at her medical appointment (G.I.) Many comments on this as I have had to advocate for myself for over 15 years, so I’m sharing it here.
After two years of not getting actual tests, being told she’s fine or it’s in her head, I demanded actual specialist testing be done on my daughter, as she was buckled over in writhing pain.
-and I was listed in her notes as ‘crazy’ mom…
I’m happy to be, knowing I was the one who asked the questions to actually get things done.
When it comes down to her health or the nurse’s feelings, I’m going to choose HER.
This is not all medical situations of course, many do their best, but in many cases, you have to advocate for yourself when you can’t assume professionals to advocate for you.
I love my doctors, my surgeon & Heart Failure Team are fantastic, but man it took a long haul of horrible experiences & mistreatment in order for me to find them, because I advocated for myself.
This is not about bashing medical care, rather supporting being an advocate for yourself and your loved ones. Many doctors actually appreciate it!
It’s impossible for them to know everything, but I will always trust a doctor that says “I don’t know, let me send you to someone who would.”
Sadly, that’s not basic procedure.
You have to trust what your body is telling you and advocate for yourself and your loved ones, especially the young and the elderly; it’s just sad and incredibly frustrating that we have to.
A dear friend of mine lost his mother due to doctors telling her she was fine, it was all in her head, as tumors kept growing inside of her. She knew something was wrong, she kept asking for help, but repeatedly got sent home without further testing.
So I say to you as I said to him, ‘grab the pitchforks, we ride at dawn…’ 😉
Have you had to advocate for yourself?
Do you have a medical team that you love and trust?
That support ourselves, medical professionals and each other through it!
Share Your Heart
❤️🤟🏼, Elise