Curepsp

Curepsp To raise awareness, build community, improve care and find a cure for PSP, CBD and MSA. CurePSP is a registered 501(C)(3) charity within the United States.

CurePSP is the leading non-profit organization dedicated to the awareness, care and cure for 3 neurodegenerative diseases: progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and multiple system atrophy (MSA). As a catalyst for new treatments and a cure, we establish important partnerships and fund critical research. Through our advocacy and support efforts, we enhance education

, care delivery, and quality of life for people living with PSP, CBD and MSA and their families. Science, community, and hope are at the heart of CurePSP’s mission and all of our services. EID: 52-1704978. Our work is possible thanks to the generous donations and support of those in our community and beyond.

If you or a loved one is navigating PSP, CBD or MSA — what questions do you have? What information would make the bigges...
06/05/2026

If you or a loved one is navigating PSP, CBD or MSA — what questions do you have? What information would make the biggest difference for you right now?

Drop them in the comments below. Your questions help us create resources that matter most to you.

CurePSP was proud to represent the PSP, CBD and MSA community at the World Parkinson Congress in Phoenix. We had meaning...
06/03/2026

CurePSP was proud to represent the PSP, CBD and MSA community at the World Parkinson Congress in Phoenix. We had meaningful conversations with healthcare professionals, advocates and members of the Parkinson's community about the importance of better understanding these diagnoses and how to support those living with them. So many people left with our resources and a desire to further support our community.

Thank you, World Parkinson Congress, for making space for these important conversations and for including the atypical parkinsonism community.

Changes to voice and speech are common in PSP, CBD and MSA — but losing the ability to communicate doesn't have to be pa...
06/02/2026

Changes to voice and speech are common in PSP, CBD and MSA — but losing the ability to communicate doesn't have to be part of the story.

Augmentative and alternative communication (AAC) tools range from simple gestures and picture boards to smartphone apps and speech-generating devices. A speech-language pathologist can help find the right fit for you or your loved one.

And if you're interested in preserving your unique voice for future use, our Louder Than Words: CurePSP Voice Program is here to help. Learn more at psp.org/voice-program.

This November, leading researchers and clinicians from around the world will gather in London for Neuro2026: The PSP & C...
06/01/2026

This November, leading researchers and clinicians from around the world will gather in London for Neuro2026: The PSP & CBD International Research Symposium, hosted in partnership with PSPA.

Focused on progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD), the symposium will highlight the latest advances in research, clinical care and scientific collaboration. Sessions will explore both preclinical and clinical neuroscience, helping drive progress toward better understanding and treatment of these rare neurodegenerative diseases.

🗒️ This gathering is designed for researchers and clinicians with an interest in PSP, CBD and related diseases, bringing together experts advancing research and care.

Our Director of Clinical Affairs and Advocacy had an immersive experience during a recent CurePSP Center of Care visit t...
06/01/2026

Our Director of Clinical Affairs and Advocacy had an immersive experience during a recent CurePSP Center of Care visit to the Rossy PSP Centre in Toronto, Canada — one of the foremost PSP centers in the world.

Through their 'embedding research in clinical care' approach, the team collects comprehensive data on each patient to better understand symptom impact on daily life, differences in eye tracking and gait (as demonstrated by Jessica Shurer in the photos), toxic exposures, genetic factors, disease presentation and progression across genders and ethnicities. They also offer clinical trials, biomarker research, a supportive care clinic, and brain donation services.

Thank you to Dr. Tony Lang, Dr. Gabor Kovacs, Ms. Puja Bhakta, Ms. Yasmina Mohensi, and the entire team at the University of Toronto for being a part of our network!

How do we talk about the end of life with honesty, compassion and dignity? 🤍CurePSP and Mission MSA are coming together ...
05/31/2026

How do we talk about the end of life with honesty, compassion and dignity? 🤍

CurePSP and Mission MSA are coming together to hold a thoughtful conversation about end-of-life care and autonomy for people living with PSP, CBD and MSA.

This session will explore what it truly means to support a loved one through the final chapter of their life, including options like Medical Aid in Dying (MAID) and hospice care guidance.

🗓️ June 23, 2026 at 2:00 PM ET
🎙️ Featuring: Lonny Shavelson, MD and Thailia DeWolf, RN, CHPN from the Academy of Aid-in-Dying Medicine, joined by former care partners of people with PSP and MSA sharing their intimate and personal experiences.

Register today and share with someone who may find comfort in this conversation. 🔗 https://tr.ee/ReflectionsWebinar

05/29/2026

We started this Month of Awareness in Los Angeles surrounded by our incredible community at Spring Community Weekend, and the connections made there stayed with us all month long.

You cannot replace being in the same room with others who get it. We're closing out the month the same way we opened it: grateful for every person who showed up, shared their story, donated or simply passed a post along to someone who needed it. You kept this month moving.

Thank you for being here. The work continues, and so does this community. ❤️

A huge thank you to Leah Sherman for turning her 50th birthday celebration into a meaningful fundraiser for CurePSP! Lea...
05/29/2026

A huge thank you to Leah Sherman for turning her 50th birthday celebration into a meaningful fundraiser for CurePSP! Leah hosted a fabulous "Golden Girls"-themed costume party with around 30 guests and raised an incredible $1,250 to support CurePSP's mission. From sharing educational materials to creating a dedicated CurePSP display, Leah used her special day to raise awareness and bring people together for a cause that matters. We're so grateful for Leah's generosity, creativity and advocacy — and for everyone who attended and donated to make the event such a success. Thank you, Leah, for helping us move closer to a world free of PSP, CBD and MSA.

Support Leah's fundraiser here: https://give.curepsp.org/fundraiser/6899174

We are excited to share that, for the first time, a Resolution recognizing May as PSP & CBD Awareness Month was introduc...
05/27/2026

We are excited to share that, for the first time, a Resolution recognizing May as PSP & CBD Awareness Month was introduced in the Senate, by Sen. Richard Blumenthal, as a companion to the House Resolution introduced by Rep. Subramanyam! We need your help to grow support and attention.

Take action and email your Senators today: https://mstr.app/95ced01c-e4c4-4f51-ba55-042c41d741b0

Address

325 Hudson Street 4th Floor
New York, NY
10013

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+18004574777

Website

Alerts

Be the first to know and let us send you an email when Curepsp posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Share