Children's Brain Tumor Project

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Children's Brain Tumor Project

But for families affected by them, every case is one too many. These family foundations and their supporters drive funding, advocacy and awareness for CBTP.

The community of families that participate in the Children's Brain Tumor Project is dedicated to finding new options for treating pediatric brain tumors by supporting research at Weill Cornell Medicine. The families who participate in the Children's Brain Tumor Project (CBTP) are personally invested in finding new treatment options -- and ultimately cures -- for rare and inoperable brain tumors in children and young adults. These tumors, including DIPG, gliomatosis cerebri, and AT/RT, occur so rarely that they do not get the major funding or attention that research scientists need to find a cure. The CBTP is funded in large part by a network of families who have lost loved ones to these terrible tumors, or whose families have been threatened by such a diagnosis. Dr. Mark Souweidane and Dr. Jeffrey Greenfield, Co-Directors of the CBTP at Weill Cornell, have pioneered a neuroscientific paradigm using genomic sequencing and Convection Enhanced Delivery (CED). A Phase I clinical trial is testing the safety of using (CED) to deliver a low-toxicity drug cocktail directly to the tumor site. Bench researchers are using genomic sequencing to identify genetic mutations in each patient's tumor to identify the best drugs to combat them, and investigating new ways to stop tumor progression by blocking signals from bone marrow.

09/09/2026

Two people. Two stories. One very meaningful reason to run. 💙

This November, Christine Ritzen will take on the TCS New York City Marathon carrying two very special people with her.

Her dear friend Kathleen O’Connell lost her son Lucas to DIPG in 2010. He was just 14 years old.

Now, brain cancer has touched Christine’s extended family on Long Island. Eowyn, just 7 years old, was diagnosed with Medulloblastoma last year. After surgery, radiation and nine cycles of chemotherapy, her strength has earned her the name “Warrior Princess.”

For Christine, every mile is for them.

“Both Kathleen and Eowyn are constantly in my thoughts. They are my inspiration.”

Help Christine turn that inspiration into impact. Donate through the link below. 🏃‍♀️💙

🔗 https://cbtpfoundation.org/campaign/tcs-nyc-marathon-2026/fundraiser/149/

09/08/2026

We’re thrilled to announce the headliner for this fall’s No Laughing Matter: Zarna Garg! 🎤

Outspoken Indian immigrant comedian Zarna Garg won't stop with the hit comedy specials and sold-out live shows. She’s now touring with her new show Million Dollar Excuses, about how to get out of anything.

Zarna’s inspiring memoir This American Woman, about her treacherous climb from homeless Mumbai teen to internationally beloved stand-up comedian, is a New York Times Bestseller with over 10,000 4- and 5-star reviews on Goodreads and Amazon, where it was named one of their Best of 2025 books.

Zarna frequently opens for icons Tina Fey and Amy Poehler, and is currently building a new sitcom Zarna with Mindy Kaling and Kevin Hart. She also made her acting debut in indie superhit A Nice Indian Boy, a New York Times Critic’s Pick (calling Zarna “a standout”). You can next see her on the Hulu series, Not Suitable for Work and in the upcoming Amazon feature film, Clashing Through the Snow.

Her hugely popular ‘Zarna Garg Family Podcast’ explores modern family life with her husband and kids.

Zarna is a recipient of the inaugural Instagram Ring Award for the world's top 25 creators (the Oscars of the Internet). With millions of social media followers and billions of views, Zarna just can’t stop laughing her way to the top.

We can’t wait to welcome Zarna to No Laughing Matter this fall in support of the Children’s Brain Tumor Project. Stay tuned for more details! ❤️

🔗 https://nolaughingmatter2026.org/

09/03/2026

September is Childhood Cancer Awareness Month, and there are a few numbers worth knowing.

Every year, thousands of children and teens are diagnosed with cancer, including around 4,000 who are diagnosed with a brain or spinal cord tumor. For children with DIPG, the numbers are even harder to look at.

There’s still so much we don’t know about childhood brain tumors, that’s why research matters and why continuing to fund it matters.

Learn more about the work being done through the Children's Brain Tumor Project at Weill Cornell Medicine to find better treatments for children with brain tumors.

https://www.childrensbraintumorproject.org/

09/02/2026

A pediatric brain tumor diagnosis changes everything.

For children and their families, life quickly becomes filled with hospital visits, difficult decisions, and countless moments of uncertainty. Behind every diagnosis is a child who deserves the chance to grow up, and a family hoping for better treatment options and brighter tomorrows.

At the Children's Brain Tumor Project, we're committed to advancing research that brings us closer to safer, more effective treatments and, ultimately, better outcomes for every child facing a brain tumor.

Whether you choose to support our mission by sharing our work, attending an event, making a donation, or simply learning more, you're helping move this research forward.

Together, we can continue creating hope for children and the families who need it most. 💙

https://engage.weill.cornell.edu/childrens-brain-tumor-project

09/01/2026

MEET PETER CHABOT, ONE OF OUR 2026 NYC MARATHON RUNNERS!

Throughout college and medical school, Peter Chabot has had the privilege of working in the laboratory and operating room to study brain tumors and care for patients affected by them.

He has first-hand understanding of the impact these diagnoses make on patients and families and the need for funding this vital research.

Peter is applying into neurosurgery residency this year, where he plans to continue his work in studying and treating central nervous system malignancy. This November, he’ll be putting that passion into motion as he runs the TCS New York City Marathon on behalf of the Children’s Brain Tumor Project.

“I am so happy and lucky to be able to run on behalf of this cause.”

We’re so grateful to have Peter on Team CBTP and can’t wait to cheer him on for every mile! 💙

Want to support Peter and help advance critical brain tumor research? Donate through the link below and help us get Team CBTP across the finish line!

https://cbtpfoundation.org/campaign/tcs-nyc-marathon-2026/fundraiser/175/

08/31/2026

The final .2 miles are often the hardest. They can also be the most meaningful.

For Ty's mom, the decision to dedicate the .2 mile of Team CBTP's 26.2 Reasons to Run campaign wasn't random.

"If life is a marathon, then that fraction of time Ty was with us... the all-too-short .2... was the hardest and most rewarding time in my life's journey."

Ty's legacy continues to inspire hope, strengthen our runners, and remind us why every mile matters. As Team CBTP trains for the 2026 TCS New York City Marathon, they'll carry stories like Ty's with them every step of the way.

Through our 26.2 Reasons to Run campaign, you can dedicate a mile in honor or memory of someone who has been impacted by a brain or spinal tumor. Every dedication becomes a source of inspiration for our runners and a tribute to the people who fuel our mission.

💙 Because sometimes it's the final .2 that changes everything.

Visit the link below to dedicate a mile and read Ty's full story.
https://tylouis.blogspot.com/2026/06/2-is-dedicated-to-you.html

08/28/2026

By sponsoring No Laughing Matter, you're doing more than supporting an unforgettable evening of comedy. You're helping fund groundbreaking pediatric brain tumor research at Weill Cornell Medicine while aligning your organization with a mission that brings hope to children and families facing a brain tumor diagnosis.

Whether you're looking to become our All Kidding Aside Presenting Sponsor, join us as a Kings of Comedy, Side Splitting, or Knee Slapper sponsor, there's an opportunity to make a meaningful difference while receiving valuable recognition before, during, and after the event.

📅 October 22, 2026
📍 New York Athletic Club

Interested in becoming a sponsor? Visit the link below or reach out to learn more. Together, we can help move pediatric brain tumor research forward.

🔗 https://nolaughingmatter2026.org/

08/27/2026

Gliomas are among the most common types of pediatric brain tumors, but they are not all the same. These tumors can vary in how quickly they grow, how they respond to treatment, and how they impact a child's health.

Pediatric low-grade gliomas (pLGGs) are typically slower-growing tumors that may be treated with surgery, targeted therapies, or careful monitoring. High-grade gliomas (HGGs) are more aggressive tumors that remain some of the most challenging pediatric brain tumors to treat.

At the Children's Brain Tumor Project at Weill Cornell Medicine, researchers are working to better understand these tumors and develop more effective treatments through precision medicine, innovative drug delivery, tumor immunology, and developmental biology.

💛 Learn more about our research and how you can support the future of pediatric brain tumor care through our website: https://www.childrensbraintumorproject.org/

08/26/2026

The countdown to the TCS New York City Marathon is on! 🏃‍♀️

Our incredible team is training, fundraising, and running with one goal in mind: bringing hope to children and families facing pediatric brain tumors.

Every mile they run represents the progress we’re working toward through the Children’s Brain Tumor Project at Weill Cornell Medicine. Every donation helps support groundbreaking research focused on finding safer, more effective treatments for children.

Want to be part of the journey? You can support our marathon team by making a donation and helping us get closer to the finish line, both on race day and in the fight against pediatric brain tumors.

💙 Donate today and help make every mile matter.

https://cbtpfoundation.org/campaign/tcs-nyc-marathon-2026/

08/25/2026

Delivering on the Promise of Precision Medicine

Thanks to seed funding from the Patrick Bayly Marsano Foundation in 2020, the Children’s Brain Tumor Project has made tremendous strides in advancing our precision medicine program, bringing more personalized, effective treatment options to children with brain tumors.

We’ve built a powerful foundation, but we need continued financial support to maintain this momentum:

🔬 230+ patients enrolled, with 1200+ tumor samples from 40+ pediatric tumor types
🧪 24 faithful preclinical models, including 8 novel cell lines and 16 patient-derived xenograft models across 8 tumor types
💊 1,800+ compounds in our cancer-targeting drug library for high-throughput drug screening

And we’re just getting started.

Looking ahead, we aim to expand this life-changing work globally by distributing tissue collection kits before surgery, making access to precision medicine possible for more children, no matter where they live.

Stay tuned as we continue to push the boundaries of what’s possible in pediatric brain tumor research.

Address

525 E. 68th Street, Box 99
New York, NY
10065

Website

https://interland3.donorperfect.net/weblink/WebLink.aspx?name=wcmc&id=52, https://www.childrensbraintumorproject.org/

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