Children's Brain Tumor Project

Children's Brain Tumor Project But for families affected by them, every case is one too many. These family foundations and their supporters drive funding, advocacy and awareness for CBTP.
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The community of families that participate in the Children's Brain Tumor Project is dedicated to finding new options for treating pediatric brain tumors by supporting research at Weill Cornell Medicine. The families who participate in the Children's Brain Tumor Project (CBTP) are personally invested in finding new treatment options -- and ultimately cures -- for rare and inoperable brain tumors in

children and young adults. These tumors, including DIPG, gliomatosis cerebri, and AT/RT, occur so rarely that they do not get the major funding or attention that research scientists need to find a cure. The CBTP is funded in large part by a network of families who have lost loved ones to these terrible tumors, or whose families have been threatened by such a diagnosis. Dr. Mark Souweidane and Dr. Jeffrey Greenfield, Co-Directors of the CBTP at Weill Cornell, have pioneered a neuroscientific paradigm using genomic sequencing and Convection Enhanced Delivery (CED). A Phase I clinical trial is testing the safety of using (CED) to deliver a low-toxicity drug cocktail directly to the tumor site. Bench researchers are using genomic sequencing to identify genetic mutations in each patient's tumor to identify the best drugs to combat them, and investigating new ways to stop tumor progression by blocking signals from bone marrow.

Laser Interstitial Thermal Therapy (LITT) is a minimally invasive treatment that uses heat to precisely target and destr...
06/05/2026

Laser Interstitial Thermal Therapy (LITT) is a minimally invasive treatment that uses heat to precisely target and destroy tumor tissue in the brain.

Guided by real-time imaging, this approach offers an option for tumors that may be difficult to reach through traditional surgery, while continuing to expand what is possible in pediatric brain tumor care.

Innovation in treatment starts with research. Help us continue funding the work that moves these advances forward. 💛

🔗 https://www.childrensbraintumorproject.org/

Facing a brain tumor diagnosis or preparing for surgery can feel overwhelming, but you do not have to go through it alon...
06/03/2026

Facing a brain tumor diagnosis or preparing for surgery can feel overwhelming, but you do not have to go through it alone. 💙

The Patient Companionship Program helps connect pediatric brain tumor patients with peer mentors who have been through similar experiences. These one-on-one connections are designed to offer support, reassurance, and understanding from someone who truly gets it.

Whether you are preparing for surgery, navigating recovery, or simply looking for someone to talk to, this program was created to help young patients feel supported every step of the way.

Learn more about being matched with a peer companion here: https://www.childrensbraintumorproject.org/companionship-program

Families facing a pediatric brain tumor diagnosis are suddenly navigating a world they never expected, often while still...
06/02/2026

Families facing a pediatric brain tumor diagnosis are suddenly navigating a world they never expected, often while still trying to hold on to the rhythms of everyday life.

From hospital visits and treatment decisions to the emotional weight carried at home, the impact reaches far beyond the child’s diagnosis. That’s why support for the whole family matters. Siblings, parents, and caregivers all need care, resources, and space to process what they are going through.

CBTP is here to walk alongside families at every step. Through resources, education, and community connection, we help ensure no family has to face this journey alone.

If you’re able, please consider supporting this work by sharing, donating, or volunteering. Together, we can strengthen the support system families deserve. 💛

🔗 https://www.childrensbraintumorproject.org/

Dr. Mark Souweidane is a pioneer in direct drug delivery, and he was the first to prove the safety of using Convection-E...
06/01/2026

Dr. Mark Souweidane is a pioneer in direct drug delivery, and he was the first to prove the safety of using Convection-Enhanced Delivery (CED) in children. The procedure has since been adopted in many other treatment protocols across the country and around the world.

CED is an innovative approach that allows treatment to be delivered directly into brain tumor tissue, bypassing the blood-brain barrier that often prevents drugs from reaching where they are needed most.

By increasing drug concentration at the tumor site while limiting exposure to the rest of the body, CED is helping researchers explore more effective and targeted therapies for children with brain tumors.

Advancing how treatment reaches the brain is critical to improving outcomes. Support the research that makes approaches like this possible. 💛

Your story could help another young patient feel seen, supported, and less alone. 💙The Patient Companionship Program is ...
05/29/2026

Your story could help another young patient feel seen, supported, and less alone. 💙

The Patient Companionship Program is looking for young brain tumor survivors interested in becoming peer mentors for current pediatric brain tumor patients. Sometimes the most meaningful support comes from someone who truly understands the experience firsthand.

By sharing encouragement, connection, and understanding, mentors can help provide comfort to patients preparing for brain surgery, treatment, and recovery.

Interested in becoming a mentor? Learn more here: https://www.childrensbraintumorproject.org/companionship-program

Gray is the color of brain tumor awareness.Not bright or celebratory, but heavy. Uncertain. Quiet.For families facing pe...
05/26/2026

Gray is the color of brain tumor awareness.
Not bright or celebratory, but heavy. Uncertain. Quiet.

For families facing pediatric brain tumors, gray isn’t just a color, it’s a feeling. It’s the weight of unanswered questions, the moments you replay, and the memories that never quite settle. It’s watching a child you love experience things no child ever should.

Ty was just two years old when the early signs began. Headaches that went unnoticed. Nights that felt long and exhausting. Moments that, in hindsight, meant so much more. By the time answers came, his family was already stepping into a world no one is prepared for.

What followed was a journey marked by long hospital nights, complex treatments, and unimaginable challenges. Brain tumors don’t just interrupt childhood, they can take away the simple, joyful milestones so many of us take for granted. Walking. Playing. Speaking. Creating.

Ty’s story is one of love, resilience, and the devastating reality so many families face.

Brain tumors remain the leading cause of cancer-related death in children, yet so much is still unknown. Families are left navigating the gray, searching for answers, better treatments, and hope for the future.

This Brain Tumor Awareness Month, we Go Gray in honor of children like Ty and the thousands of families walking this path.

Help us bring clarity where there is uncertainty.
Fund research. Support families. Share their stories.

💛

Read more: https://tylouis.blogspot.com/2023/05/so-gray-today.html?m=1

Ty Louis Campbell Foundation

To some, a mile is just a warm-up.To others, it’s a finish line they’ve worked hard to reach.And for many, it represents...
05/25/2026

To some, a mile is just a warm-up.
To others, it’s a finish line they’ve worked hard to reach.
And for many, it represents resilience, recovery, and hope—proof of how far they’ve come and the strength it took to get there.

No two miles mean the same thing, and that’s what makes them powerful.

With CBTP’s Sponsor a Mile, you can dedicate your mile to something that matters to you—and turn that meaning into real impact. Whether it’s honoring someone you love, supporting a cause close to your heart, or simply standing behind the mission, your mile becomes part of something bigger than the distance itself.

Every step helps move the mission forward.

💬 What would your mile stand for?

🔗 https://cbtpfoundation.org/reasons-to-run/

A pediatric brain tumor diagnosis can feel incredibly isolating, especially for teens and young patients preparing for s...
05/22/2026

A pediatric brain tumor diagnosis can feel incredibly isolating, especially for teens and young patients preparing for surgery and treatment. That’s why the Patient Companionship Program was created. 💙

This program connects pediatric brain tumor patients with young survivors who have experienced similar diagnoses, surgeries, and recovery journeys. Through peer support and shared experiences, patients can find comfort, encouragement, and a sense of community during an overwhelming time.

Created by brain tumor survivor Isabelle Melnick, the program is rooted in the belief that no young patient should have to navigate this journey alone.

Learn more about the Patient Companionship Program and how to get involved through the link: https://www.childrensbraintumorproject.org/companionship-program/

Address

525 E. 68th Street, Box 99
New York, NY
10065

Website

https://www.childrensbraintumorproject.org/

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