Children's Brain Tumor Project

Children's Brain Tumor Project But for families affected by them, every case is one too many. These family foundations and their supporters drive funding, advocacy and awareness for CBTP.

The community of families that participate in the Children's Brain Tumor Project is dedicated to finding new options for treating pediatric brain tumors by supporting research at Weill Cornell Medicine. The families who participate in the Children's Brain Tumor Project (CBTP) are personally invested in finding new treatment options -- and ultimately cures -- for rare and inoperable brain tumors in

children and young adults. These tumors, including DIPG, gliomatosis cerebri, and AT/RT, occur so rarely that they do not get the major funding or attention that research scientists need to find a cure. The CBTP is funded in large part by a network of families who have lost loved ones to these terrible tumors, or whose families have been threatened by such a diagnosis. Dr. Mark Souweidane and Dr. Jeffrey Greenfield, Co-Directors of the CBTP at Weill Cornell, have pioneered a neuroscientific paradigm using genomic sequencing and Convection Enhanced Delivery (CED). A Phase I clinical trial is testing the safety of using (CED) to deliver a low-toxicity drug cocktail directly to the tumor site. Bench researchers are using genomic sequencing to identify genetic mutations in each patient's tumor to identify the best drugs to combat them, and investigating new ways to stop tumor progression by blocking signals from bone marrow.

Collaboration is essential to advancing research for rare pediatric brain tumors.At the 5th International Gliomatosis Ce...
06/19/2026

Collaboration is essential to advancing research for rare pediatric brain tumors.

At the 5th International Gliomatosis Cerebri Conference, researchers, clinicians, and advocates from around the world came together to share discoveries, strengthen partnerships, and accelerate progress for children affected by this devastating disease.

We were proud to see members of the Children's Brain Tumor Project helping lead these important conversations and contributing to the future of gliomatosis cerebri research.

Read more about the conference and how global collaboration is helping move the field forward at the link below. 💛

https://www.childrensbraintumorproject.org/2026/01/25/gliomatosis-cerebri-international-conference-hosted-in-london/

06/18/2026

Investing in the future of pediatric brain tumor research means investing in the people who will carry it forward.

Each year, students and volunteers contribute their time, curiosity, and passion to the Children's Brain Tumor Project, gaining firsthand exposure to the research process while supporting work focused on rare and inoperable pediatric brain tumors.

From the laboratory to mentorship opportunities, these experiences help foster the next generation of scientists, clinicians, and advocates dedicated to improving outcomes for children and families affected by brain tumors.

We are grateful for every student and volunteer who has been part of the CBTP community and the future they help build. 💛

https://www.childrensbraintumorproject.org/portfolio-items/do-something/

Intrathecal delivery is a method of administering medication directly into the cerebrospinal fluid, allowing treatment t...
06/17/2026

Intrathecal delivery is a method of administering medication directly into the cerebrospinal fluid, allowing treatment to reach the brain and spinal cord more effectively.

This approach is especially important when traditional methods cannot adequately deliver drugs across protective barriers, helping ensure therapies get where they are needed most.

Supporting research means expanding access to approaches like this for children who need them. 💛

The countdown is on. 🎉On October 22, 2026, we will gather at the Annual No Laughing Matter Gala to raise critical funds ...
06/15/2026

The countdown is on. 🎉

On October 22, 2026, we will gather at the Annual No Laughing Matter Gala to raise critical funds for pediatric brain tumor research at Weill Cornell Medicine .

For one unforgettable evening, leaders from finance, medicine, entertainment, media, fashion, real estate, and science will come together with a shared purpose: bringing hope to children and families facing a brain tumor diagnosis.

Featuring an incredible night of comedy, inspiration, and impact, No Laughing Matter supports the groundbreaking research of the Children's Brain Tumor Project, helping advance new discoveries for rare and inoperable pediatric brain tumors.

Swipe through for moments from No Laughing Matter galas past as we count down to another unforgettable evening of laughter, community, and impact.

Join us as a sponsor, table host, or guest and help make a difference for children who need it most. Visit the link below to learn more.

nolaughingmatter2026.org

06/12/2026

Not every mile is measured in distance. Some are measured in hope. 💛

Through our Mile Dedication Program, every mile of the TCS New York City Marathon honors a child, survivor, caregiver, or loved one whose story fuels our fight against pediatric brain and spinal tumors.

When Team CBTP takes on 26.2 miles, they’ll be carrying more than a race bib. They’ll be carrying the stories, strength, and memories of the families who inspire this work every day.

Sponsor a mile and help give every step a deeper purpose. 💛

https://cbtpfoundation.org/reasons-to-run/

Ependymoma is one of the more common pediatric brain tumors, but every diagnosis comes with its own challenges.Developin...
06/11/2026

Ependymoma is one of the more common pediatric brain tumors, but every diagnosis comes with its own challenges.

Developing in the brain or spinal cord, ependymoma often requires surgery and, in some cases, radiation therapy. While treatments have advanced over the years, researchers continue to work toward better options and improved outcomes for children facing this diagnosis.

Kai's story is a reminder of why that work matters. We honor his joy, resilience, and the lasting impact he made on everyone who knew him as we continue to raise awareness and support research for children and families affected by ependymoma. 💛

We are proud to support the 9th Annual Cristian Rivera Foundation Full Steam Ahead 5K on Saturday, June 13 from 9:30AM t...
06/10/2026

We are proud to support the 9th Annual Cristian Rivera Foundation Full Steam Ahead 5K on Saturday, June 13 from 9:30AM to 12:00PM 💛

Hundreds of supporters will gather at Van Cortlandt Park (check-in begins at 8:30AM across from Lloyd’s Carrot Cake, 6087 Broadway, Bronx, NY – 251st Street & Broadway, near the Turtle & Rabbit statue) to raise funds and awareness for DIPG research and family support.

This meaningful event helps advance innovative research and clinical trials, increase public awareness of DIPG, and provide critical support for families impacted by this diagnosis.

Each step taken is a reminder of why this work matters. Together, we continue to push for progress for the 200–300 children diagnosed each year.

We are grateful to stand alongside this community in the fight for better treatments and brighter futures. 💛

DONATE HERE: https://cristianriverafoundation.org/crf5k/donate/

The Gift from a Child program was created by families who have experienced the unimaginable loss of a child to a brain t...
06/09/2026

The Gift from a Child program was created by families who have experienced the unimaginable loss of a child to a brain tumor, with one shared goal: to advance research and bring hope to future patients.

New York-Presbyterian/Weill Cornell Medicine is one of six Regional Centers of Excellence in this national initiative. As a designated center, they help coordinate, process, and store donated tissue with the highest level of care and respect, ensuring families are supported every step of the way.

Through rapid autopsy donation, researchers are able to study molecular, cellular, and genetic information that is critical to understanding and treating rare pediatric brain tumors. This work directly contributes to global research efforts, including collaborations through the Children’s Brain Tumor Network.

We recognize that this decision is deeply personal and emotional. Families are never alone in the process. From clear guidance to compassionate support, every step is handled with care, dignity, and respect for your wishes.

There is no cost to families, and donation does not interfere with funeral arrangements or time spent with your child. A single phone call at the time of passing is all that is needed to begin the process if prior consent has been given.

If you would like to learn more, or simply understand what support is available, visit GiftfromaChild.org. Together, we work toward a future where this disease no longer takes children too soon. 💛

https://www.childrensbraintumorproject.org/2020/01/01/legacy-donation/

Laser Interstitial Thermal Therapy (LITT) is a minimally invasive treatment that uses heat to precisely target and destr...
06/05/2026

Laser Interstitial Thermal Therapy (LITT) is a minimally invasive treatment that uses heat to precisely target and destroy tumor tissue in the brain.

Guided by real-time imaging, this approach offers an option for tumors that may be difficult to reach through traditional surgery, while continuing to expand what is possible in pediatric brain tumor care.

Innovation in treatment starts with research. Help us continue funding the work that moves these advances forward. 💛

🔗 https://www.childrensbraintumorproject.org/

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