National Bleeding Disorders Foundation

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National Bleeding Disorders Foundation Dedicated to finding better treatments and cures for inheritable blood disorders and to preventing the complications of these disorders through education.
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Have an idea for a session at ? We'd love to hear it!Whether you're living with a bleeding disorder, supporting someone...
10/19/2026

Have an idea for a session at ? We'd love to hear it!

Whether you're living with a bleeding disorder, supporting someone who is, or working with the bleeding disorders community, your perspective could help educate and inspire others.

Who can apply?
❤️ Community members and loved ones with lived experience
❤️ Professionals working with the bleeding disorders community (some restrictions apply)

Submit your proposal by November 20, 2026.

Learn more about eligibility and apply: https://bit.ly/4B63GG7

The October edition of NBDF's Donor Digest is here! From memorable moments at the 2026 Bleeding Disorders Conference to ...
10/15/2026

The October edition of NBDF's Donor Digest is here!

From memorable moments at the 2026 Bleeding Disorders Conference to Team NBDF runners going the distance, this issue highlights the people making a difference in our community.

Explore stories of generosity, advocacy, monthly giving, and the lasting impact of legacy giving.

Read the latest Donor Digest: https://bit.ly/4yKBHdA

Two caregivers. Two different stages of the journey. One conversation about what it means to hold it all together. Bridg...
10/15/2026

Two caregivers. Two different stages of the journey. One conversation about what it means to hold it all together.

Bridget Tyrey reflects on raising a son with a bleeding disorder, what she's learned along the way, and how she's found strength in the bleeding disorders community.

🎙️ Listen to Holding It All Together: Caregivers and Families, the latest episode of https://bit.ly/3TiK9RL.

Available on Apple Podcasts, Spotify, and YouTube.
🔗 https://bit.ly/4hCw221

Meet NBDF’s 2026 Postdoctoral Research Fellowship recipients! 🎉❤️Congratulations to Matthias Blanc, PhD, recipient of th...
10/14/2026

Meet NBDF’s 2026 Postdoctoral Research Fellowship recipients! 🎉❤️

Congratulations to Matthias Blanc, PhD, recipient of the Dr. Abdullah Kutlar Postdoctoral Research Fellowship, and Aabid Hussain, PhD, recipient of the Judith Graham Pool Postdoctoral Research Fellowship.

Their research will explore new possibilities in bleeding disorders, from better understanding blood vessel changes in HHT to advancing next-generation gene therapy approaches for hemophilia A.

We’re proud to support researchers working toward discoveries that could help shape the future of bleeding disorders care.

🔗 Meet our 2026 fellows and learn more about their research: https://bit.ly/4jVHAQx

We’re thrilled to announce the return of our Call for Consumer and Chapter Sessions for . Do you have a session idea fo...
10/14/2026

We’re thrilled to announce the return of our Call for Consumer and Chapter Sessions for .

Do you have a session idea for the consumer or chapter tracks to share your experience or knowledge to inspire and educate the bleeding disorders community? Submit your proposal today.

Deadline: November 20, 2026
📍 BDC 2027: August 12–14, 2027 | National Harbor, Maryland

Learn more and apply here: https://bit.ly/4B63GG7

10/14/2026

Speaker: Brad Schoenfeld, Director of Advocacy and Community Engagement, Pfizer | In this webinar, we’ll dive into a rebalancing treatment option. From how it works to clinical trial learnings, you’ll gain the latest information to help you or your loved ones understand this treatment option with confidence. Sponsored by Pfizer.

10/13/2026

The appointments may end. The medication may be put away. The game may start. But for many caregivers, the worrying doesn’t simply switch off.

From wondering whether a bruise could be something more to thinking about emergencies, insurance, and what comes next, caregiving can mean carrying questions that others never see.

Hear Steven Weber, Ally Coakley, Bridget Tyrey, and Emily Oulette share what it’s like when part of your mind is always on.

🔗 Find resources and connect with support at https://bit.ly/47rp6zU

A new chapter for the bleeding disorders community in Guam! We’re excited to announce the official establishment of the ...
10/13/2026

A new chapter for the bleeding disorders community in Guam!

We’re excited to announce the official establishment of the Guam Chapter of the National Bleeding Disorders Foundation!

This milestone follows years of collaboration with local advocates, healthcare providers, and community members to expand access to specialized care, education, advocacy, and support.

The celebration continues October 16–17 with community events, including Guam’s first-ever Unite for Bleeding Disorders Walk!

🔗 Learn more about this exciting milestone and what’s next for the Guam community: https://bit.ly/4yRNqXG

Understanding a Rebalancing Therapy Option for HemophiliaBrad Schoenfeld, Director of Advocacy and Community Engagement ...
10/12/2026

Understanding a Rebalancing Therapy Option for Hemophilia

Brad Schoenfeld, Director of Advocacy and Community Engagement at Pfizer, will take a closer look at a rebalancing treatment option for hemophilia, including how it works and learnings from clinical trials.

Whether you’re living with hemophilia or supporting a loved one, join us to learn more about this treatment option and get information to help you feel more informed about care.

📅 Wednesday, October 14th
🔗 Register today: https://bit.ly/43yV6B3

A heartfelt thank you to Kedrion Biopharma for supporting the Factor X Awareness campaign. Your partnership allows NBDF ...
10/11/2026

A heartfelt thank you to Kedrion Biopharma for supporting the Factor X Awareness campaign. Your partnership allows NBDF to provide education, advocacy, and research that make a real difference in the lives of those with bleeding disorders.

Address

1230 Avenue Of The Americas 16th Floor
New York, NY
10021

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+12123283700

Website

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