11/05/2025
Happy ! 💙
Today we’re proud to feature Isobelle Mick, 19-year-old NF1 hero from our Shine a Light Walk Florida!
Diagnosed shortly before her 3rd birthday, Isobelle’s NF1 was suspected from birth due to several large café-au-lait spots that continued to appear as she grew, along with delayed milestones. Her family found the Children’s Tumor Foundation after she was diagnosed and they’ve been part of our community ever since, hosting fundraisers, attending events, and even participating in Racing4Research! 🏁
Each year, Isobelle looks forward to the Shine a Light Walk as a place to meet new people, raise awareness, and feel a sense of belonging.
Isobelle shares, “I participate in the walks because it helps me feel a since of belonging. I was a spontaneous mutation so I am the only one in my family with NF. Most of the time I feel isolated due to not having anyone near me that has NF and can understand what I’m going through. The NF walks gives me a signs of belonging and an odd sense of comfort. I’m around people with the same condition who can relate, as well as seeing people that look like me, they have spots, freckles, and bumps over their body.”
And of course, Isobelle says she loves getting the chance to scream at the top of her lungs!
She leaves us with a quote as a reminder that every person is enough, just as they are:
“Today is coming to be a good day and here’s why, because today you’re you and that’s enough” - Dear Evan Hansen
Thank you so much for sharing your story, Isobelle! Looking forward to your bright energy at Florida’s walk on Sunday 🎊
Good luck to Florida and Houston this weekend as they finish out our Shine a Light Walk season!
