09/30/2026
You know what day it is, ! 💙 💚
Today, we’re highlighting Katie Pettee, a 23 year old NF1 Hero participating in the NF Walk Atlanta!
Katie first began experiencing noticeable symptoms of NF at 17. After an abnormal MRI, a neurologist told her that it appeared she had NF1, but she was never given an official diagnosis or much information about the condition. For years, Katie navigated confusing symptoms without fully understanding what was happening with her body.
Five years later, Katie found a new neurologist who officially diagnosed her with NF1 and provided more information. But it was finding the Children’s Tumor Foundation that truly gave Katie the clarity and understanding she had been searching for. Through CTF, she discovered resources, learned more about her condition, and found comfort in knowing there is a community of people who understand the NF journey.
For Katie, participating in the NF Walk is about breaking through the isolation that can come with NF and connecting with others who have shared experiences. She is especially excited to meet other people living with NF and raise awareness together!
As an EMT, teacher, and aerialist, Katie says NF can impact her life every day and sometimes make the things she loves more difficult. But she refuses to let it stop her.
💙 “Never quit doing what you love just because something is trying to bring you down. Show it that you’re stronger.”
Katie’s story is a reminder that finding your community can make all the difference, and that no one should have to navigate NF alone.
Thank you, Katie, for sharing your story and bringing your strength, determination, and faith to the NF Walk community. We can’t wait to see you at the NF Walk Atlanta this weekend! 💙
