Sickle Cell Coalition of Maryland

09/03/2026

Happy Sickle Cell Awareness Month! Great night watching J Snow, You Look Fine, at the Greenbelt Cinema!

09/02/2026

🎬 IN HONOR OF SICKLE CELL AWARENESS MONTH — JOIN US TOMORROW!❤️

This September, we’re coming together to raise awareness, amplify warrior voices, and shine a light on the realities of living with sickle cell disease.

Join us for a **FREE community screening of *YOU LOOK FINE***, a powerful documentary by comedian and filmmakerJ. Snow that takes audiences beyond what they can see and into the everyday realities of living with sickle cell disease.

❤️ Sickle Cell Warriors
💜 Caregivers & Families
🩺 Healthcare Professionals
📣 Advocates & Community Leaders
🤝 Friends and Supporters of the Sickle Cell Community

📅Thursday, September 3, 2026
📍Greenbelt Cinema | Greenbelt, Maryland
🎟️ FREE Admission — Registration Required
🚌 FREE Transportation Shuttle Service Available from Greenbelt Metro Station
🎤Special Q&A with Writer & Director J. Snow

During **Sickle Cell Awareness Month**, help us create greater understanding, visibility, and support for the sickle cell community.

Bring a friend. Bring your family. Bring your voice.

👉Reserve your FREE seat today:
https://www.eventbrite.com/e/better-exists-presents-you-look-fine-screening-in-maryland-tickets-1993970971853?aff=oddtdtcreator&keep_tld=true

Join us in person for an exclusive screening of the award-winning film YOU LOOK FINE SCREENING — presented by Better Exists Org.

08/26/2026

🚨 FINAL CALL — ONLY 9 SEATS LEFT! 🚨

Join us tonight for a FREE Sickle Cell Gene Therapy Education Dinner in North Bethesda.

🧬 Learn more about gene therapy for sickle cell disease
💬 Ask questions and connect with the community
🍽️ Enjoy a complimentary dinner

📅 Wednesday, August 26, 2026
🕕 Check-in: 6:00 PM | Program: 6:30–8:30 PM
📍 Seasons 52, North Bethesda, MD

🎟️ Only 9 seats remain — registration is required.

Register now:

bit.ly/scdgenetherapy

Please share with sickle cell warriors, caregivers, families, nurses, and healthcare professionals who may be interested.

08/24/2026

Maryland, join us to break bread and learn about gene therapy! 🩸🍽️

We’re creating a welcoming, safe space for good food, meaningful conversation, connection, and education.

Sickle cell warriors, caregivers, and families are invited to join the Sickle Cell Coalition of Maryland and Genetix Biotherapeutics for a FREE Dinner & Gene Therapy Education Session.

Spend the evening connecting with others while learning more about:

🧬 Gene therapy for sickle cell disease
🔬 The science behind LYFGENIA
📚 Patient support and educational resources
💜 The evolving future of sickle cell care

📅 Wednesday, August 26, 2026
🕕 Check-in begins at 6:00 PM | Program starts at 6:30 PM and ends at 8:30 PM
📍 Seasons 52
11414 Rockville Pike, North Bethesda, MD 20852

🎟️ Free to attend | Registration required

🚗 Need transportation assistance? Email us at [email protected].

👉 Reserve your seat: bit.ly/scdgenetherapy

Bring your questions. Bring your appetite. Come learn, connect, and join the conversation. 💜

05/25/2026

🍓🌽 Maryland has some hidden gems when it comes to fresh fruits and vegetables — and Miller Farms is definitely one of them! If you’re looking for affordable, farm-fresh produce, local organic options, and a fun family outing, you have to check this out! 🍅🥕🍑

Healthy eating is so important for sickle cell warriors and families. Fresh fruits, vegetables, hydration, and nutritious meals can help support overall wellness, energy, and healthy living. 💚

We love seeing families support local farms while also making healthier choices for their households. From juicy strawberries and sweet corn to fresh greens and seasonal fruits, there’s nothing like food straight from the farm.

https://www.millerfarmsclinton.com/

Miller Farms of Clinton is a family owned and operated produce farm proudly serving Prince George's County, Maryland. Fresh Produce, Bakery, Nursery, Hayrides, Pick Your Own Strawberries, Wholesale, and more!

05/23/2026

Thank you, Dr. Lisa, for an incredible live juicing demonstration! 🍎🥬🥒

Our community learned how fresh fruits and vegetables can support overall wellness, strengthen the body, and help fight disease naturally. From leafy greens to fresh produce, Dr. Lisa showed us simple and healthy ways to nourish our bodies through nutrition.

We appreciate your passion, knowledge, and commitment to educating our community on healthier living! 💚

05/23/2026

Join us Today for a free, family-friendly Community Health Fair & Resource Event designed to connect you with valuable health services, wellness education, and trusted community resources—all in one place.

Whether you’re looking for health screenings, expert advice, educational workshops, or a great community experience, this event has something for everyone.

⸻

📅 Event Details
🗓️ Saturday, May 23, 2026
🕙 10:00 AM – 3:00 PM
📍 The Church of Jesus Christ of Latter-day Saints
5300 Auth Road, Camp Springs, MD 20746

⸻

🤝 Hosted By:
Sickle Cell Coalition of Maryland & The Church of Jesus Christ of Latter-day Saints

⸻

🎤 Featured Breakout Sessions

🩺 HIV PrEP Education Session
Learn about HIV prevention, access to care, available resources, and how PrEP can help protect individuals and communities.

🧬 Sickle Cell Gene Therapy Breakout Session
Hear important information about emerging gene therapy treatments, advancements in sickle cell care, eligibility, patient experiences, and the future of transformative therapies.

🦷 Pediatric Dental Education Session – Tooth, Mouth & Oral Care
Designed for children, parents, and families, this interactive session will focus on the importance of proper tooth, mouth, and oral hygiene. Participants will learn healthy dental habits, preventive care tips, and ways to support long-term oral health for children and teens.

🥤 Wellness Juicing Demonstration (Limited to 50 Participants)
Join a hands-on wellness session featuring a live juicing demonstration designed to promote nutrition, hydration, and healthy lifestyle choices. Learn simple, practical ways to incorporate fresh fruits and vegetables into your daily routine to support overall health and wellness.

⸻

📢 Don’t miss this opportunity to invest in your health, connect with local experts, and engage with your community!

05/22/2026

We are excited to welcome Agios Pharmaceuticals, tomorrow, as a featured breakout session host at our 2026 Community Resource & Health Fair!

🕑 Breakout Session: 2:15 PM – 3:00 PM
📚 Presentation Title: The Power of Partnering with Patients Through the Development Process: Learnings from our RISE UP Clinical Trial & Campaign

Join us as Rachel Kroouze, Patient Community Ambassador, shares valuable insights on patient engagement, clinical trials, advocacy, and the importance of collaboration in advancing healthcare and sickle cell awareness.

We are grateful for Agios Pharmaceuticals’ partnership and commitment to the sickle cell community.

05/21/2026

🌟 You’re Invited! 2026 Community Health Fair & Resource Event 🌟

Join us for a free, family-friendly Community Health Fair & Resource Event designed to connect you with valuable health services, wellness education, and trusted community resources—all in one place.

Whether you’re looking for health screenings, expert advice, educational workshops, or a great community experience, this event has something for everyone.

⸻

📅 Event Details
🗓️ Saturday, May 23, 2026
🕙 10:00 AM – 3:00 PM
📍 The Church of Jesus Christ of Latter-day Saints
5300 Auth Road, Camp Springs, MD 20746

⸻

🤝 Hosted By:
Sickle Cell Coalition of Maryland & The Church of Jesus Christ of Latter-day Saints

⸻

💡 About the Event:

This community-driven health fair is focused on increasing access to care, providing education, and addressing health disparities across our community. It’s a chance to learn, connect, and take meaningful steps toward better health for you and your family.

⸻

🎤 Featured Breakout Sessions

🩺 HIV PrEP Education Session
Learn about HIV prevention, access to care, available resources, and how PrEP can help protect individuals and communities.

🧬 Sickle Cell Gene Therapy Breakout Session
Hear important information about emerging gene therapy treatments, advancements in sickle cell care, eligibility, patient experiences, and the future of transformative therapies.

🦷 Pediatric Dental Education Session – Tooth, Mouth & Oral Care
Designed for children, parents, and families, this interactive session will focus on the importance of proper tooth, mouth, and oral hygiene. Participants will learn healthy dental habits, preventive care tips, and ways to support long-term oral health for children and teens.

🥤 Wellness Juicing Demonstration (Limited to 50 Participants)
Join a hands-on wellness session featuring a live juicing demonstration designed to promote nutrition, hydration, and healthy lifestyle choices. Learn simple, practical ways to incorporate fresh fruits and vegetables into your daily routine to support overall health and wellness.

⸻

📢 Don’t miss this opportunity to invest in your health, connect with local experts, and engage with your community!

Come hang out and get all the health tips and resources you need to feel your best in 2026!

03/23/2026

📣 Our Executive Director’s Powerful Op‑Ed on Maryland’s Sickle Cell Crisis 🩸

We’re deeply proud to share that our Executive Director, Teanika Hoffman, MA, CHW, has a compelling op‑ed in The Baltimore Sun about the urgent sickle cell crisis in Maryland — and why our health care system must do more for the thousands of people living with this disease. 

👉 Read the full op‑ed here: https://www.baltimoresun.com/2026/03/21/maryland-sickle-cell-crisis/

In her writing, Teanika highlights:
✨ The gaps in care and awareness that leave sickle cell patients underserved
✨ The need for better health care policy, education, and resources
✨ Why bold action and community support are essential now

This is more than an opinion — it’s a call to action for equity, support, and real change for sickle cell warriors across our state and nation. 💪❤️‍🩹

Please take a moment to read, reflect, and share — together we can lift every voice and push for health justice.

Opinion: Thousands of Marylanders are living with sickle cell disease, but our health care system has not kept pace with our needs, writes Teanika D. Hoffman.