ITSAN - Topical Steroid Withdrawal Syndrome Support

ITSAN - Topical Steroid Withdrawal Syndrome Support This is the official public page for the International Topical Steroid Awareness Network. Please find a supportive doctor for that purpose.

The ITSAN page offers information and inspiration about Topical Steroid Withdrawal Syndrome, but does not answer specific questions or medically advise. Please join our official ITSAN Facebook support group in the link below for discussion and support from other members:

https://www.facebook.com/groups/ITSANSupport/

Neither ITSAN nor its support group members are permitted to give medical advice or diagnose.

Today, we’re grateful for the opportunity to meet with the Office of the Assistant Secretary for Health (OASH) and share...
08/21/2026

Today, we’re grateful for the opportunity to meet with the Office of the Assistant Secretary for Health (OASH) and share more about Topical Steroid Withdrawal (TSW) and the experiences of the patients and families living with it.

A special thank you to Admiral Brian Christine for taking time to hear about TSW and for the compassion, curiosity, and genuine willingness to learn that he brought to the conversation. He listened thoughtfully to the patient perspective, engaged with the complexity of the issue, and demonstrated an openness to understanding what the TSW community has been experiencing.

We’re especially encouraged by his openness to reengage and continue learning more about TSW. For a community that has spent years advocating to be heard, that willingness means a great deal.

We’re grateful for the conversation and the opportunity to keep building bridges toward greater awareness, research, recognition, and support for those affected by TSW.

Thank you, OASH and Admiral Christine, for listening. We look forward to continuing the conversation. 💙

p.s. - For those who may not be familiar with OASH, this is an important part of the U.S. Department of Health and Human Services (HHS). OASH provides senior leadership and coordination on public health and science across HHS, helping shape policy, programs, and priorities that affect the health of people across the country. The Assistant Secretary for Health also serves as a senior public health advisor to the HHS Secretary and oversees the U.S. Public Health Service.

08/14/2026

The energy at the TSW Summit in Atlanta was nothing short of incredible! Hundreds of warriors, caregivers, and world-class experts came together under one roof, and the atmosphere was inspirational.

We packed hours of deep-dive skin education into 1.5 days, including:

The Cellular Science: NIH research and diagnostic updates on the mechanics of TSW and eczema.

Holistic Roadmaps: Eastern, Functional, and Integrative protocols for gut health, liver support, and root-cause healing.

Trauma & Resilience: Practical mental health tools to support your emotional well-being through the journey.

Community & Hope: Powerful real talk and validation from survivor leaders and advocates.
We know everyone is anxious to rewatch or see it all for the first time!

We are working on getting the files uploaded to our website and will send an email as soon as they are available.

There is still time to purchase virtual tickets on our website as well. The live event may be wrapped, but all of that insight will still be available to you! 🧡

https://www.itsan.org/register/

We are so excited to welcome Curo Skin to ITSAN's Healthy Skin Club!Curo Skin is a UK-based company dedicated to helping...
08/03/2026

We are so excited to welcome Curo Skin to ITSAN's Healthy Skin Club!

Curo Skin is a UK-based company dedicated to helping people improve their daily skincare and haircare routine by reducing common contaminants found in shower water.

Their filtered shower products are designed to reduce chlorine and certain heavy metals commonly present in tap water, helping people who are looking to minimise their exposure to these substances during showering.

Founded after the search for a solution to persistent skin irritation, Curo Skin combines independent product testing with thoughtful design to create products that support healthier everyday routines.

Through their partnership with ITSAN, they hope to help raise awareness of topical steroid withdrawal (TSW) and support the charity's work in providing education, advocacy and resources for those affected. Thank you .skin! 🧡

Healthy skin for the win!

07/31/2026

1st photo drop from the TSW Summit!!! What an EPIC weekend with our community! We can't wait to do it again! 🤩

Super grateful for our presenters who took time out of their busy summers to share with us and for our sponsors and exhibitors who helped us make this experience possible - what a gift.

If you weren't able to join virtually, you can still register for a virtual ticket and receive the recordings which will be out next week.

More to come....

TSW can affect so much more than just the skin — especially during the teen years. ❤️‍🩹Join us for a special conversatio...
07/18/2026

TSW can affect so much more than just the skin — especially during the teen years. ❤️‍🩹

Join us for a special conversation with Reva Vaddi, a TSW teen advocate, who shares the real mental and emotional challenges of navigating Topical Steroid Withdrawal.

Together, we discuss the realities many young people face during TSW, including anxiety, isolation, self-image, friendships, school, and finding hope during the healing process.

Reva is a 17-year-old junior at Weston High School in Massachusetts. Outside of school, she has a passion for dance and singing, and dedicates her free time to volunteering at local healthcare facilities. Reva is also a dedicated advocate for awareness of Topical Steroid Withdrawal (TSW). Having experienced TSW firsthand, she is committed to sharing her story to support others navigating the same journey and to ensure that patients feel seen and heard.

View the conversation here: https://youtu.be/31Zn6guBGj8

Yemisi is going into her third year of undergraduate study at the University of Cambridge studying Human, Social and Pol...
07/18/2026

Yemisi is going into her third year of undergraduate study at the University of Cambridge studying Human, Social and Political Sciences and has been suffering with TSW for 27 months. Having this condition has completed changed her outlook on health, medicine and the body and she has decided to write her dissertation on it.

She intends to look at the social aspects of the condition (e.g. how spaces like Facebook and TikTok are leveraged by sufferers and carers to raise awareness and create community in the face of medical rejection and gaslighting) and also question our understanding of medical knowledge as objective and unchanging.

Yemisi will be travelling to Atlanta to attend the ITSAN TSW Summit as part of her fieldwork, both to observe the event as a site of knowledge production and conduct interviews. For Yemisi, attending this summit is vital in making her dissertation as robust and informative as possible. Yemisi aims to produce a solid body of work which reflects on the struggles and resilience of the TSW community, while encouraging reflection of the medical industry and our attitudes to health in general.

As a UK student, Yemisi kindly asks for your generosity in donating towards the cost of her attending the summit. While very important for her research, she cannot sustainably fund this trip alone. This said, assistance from the wider TSW community would be deeply appreciated. Every little helps!

More information about Yemisi's dissertation and fundraising goals can be found below on her JustGiving page.

https://www.justgiving.com/crowdfunding/tsw-summit-dissertation?utm_medium=FA&utm_source=CL

✨ ONE WEEK TO GO! ✨In just ONE WEEK, our community will come together for what promises to be one of the most unforgetta...
07/17/2026

✨ ONE WEEK TO GO! ✨

In just ONE WEEK, our community will come together for what promises to be one of the most unforgettable weekends in TSW history. 💙

If you've been thinking about joining us... this is your sign.

Whether you're attending in person or tuning in by livestream, you'll experience two incredible days filled with:
* Expert speakers & the latest TSW research
* Meaningful connections with people who truly understand
* Healing experiences and thoughtful wellness activities
* Special surprises designed to make this weekend one to remember

🎟️ Please reserve your ticket in advance! We have limited space, and advance registration helps us prepare seating, meals, wellness experiences, and all the special touches we've planned just for you.

Don't wait until the last minute—we'd love to know you're coming and make sure everything is ready for you!

Secure your spot today:
https://www.itsan.org/tsw-summit-event/

Who's counting down with us? 🙋‍♀️🙋‍♂️

There is still time to book your ticket to the inaugural TSW Summit July 24-25 in metro Atlanta!Come join us for top-not...
07/08/2026

There is still time to book your ticket to the inaugural TSW Summit July 24-25 in metro Atlanta!

Come join us for top-notch speakers sharing the latest on TSW, one-on-one time with the TSW community, an exhibit hall filled with fabulous companies, and lots of additional goodies.

Your ticket includes:
*Complimentary Massage
* Complimentary Acupuncture
* Complimentary Reflexology
* Complimentary Acrylic nail set
(secure your spot for the above at the conference)
* Premium Skin Products and time with Founders of the Brands
* Community Art Exhibit and Reception
* Breakfast, Lunch and Dinner on Saturday
* Hugs, laughs, and conversations with people who actually understand what you've
been through
*Face-to-face time with compassionate doctors and researchers dedicated to
advancing TSW science and improving patient care
* All the latest on TSW from doctors and encouragement from people who have been
through the fires of TSW and living life again

Imagine spending a weekend surrounded by people who don't need an explanation. No awkward looks. No "Have you tried moisturizer?" Just understanding, hope, learning, and connection.

Don't be the one scrolling everyone else's Summit photos wishing you had come. 😉

🎟️ Grab your ticket and come make memories, learn something new, and leave feeling inspired. We're saving you a seat. 💙

Book your in-person or virtual ticket by clicking: https://www.itsan.org/tsw-summit-event/

🚨 NEW TSW SURVEY!🚨For too long, the true impact of TSW has remained invisible. The medical trauma. The emotional toll. T...
07/07/2026

🚨 NEW TSW SURVEY!🚨

For too long, the true impact of TSW has remained invisible. The medical trauma. The emotional toll. The financial burden. The isolation. These experiences deserve to be understood—not just by our community, but by the clinicians and researchers working to improve care.

ITSAN is proud to partner with UK consultant dermatologists Dr. Andrew Affleck and Dr. Sibel Demirel on a new anonymous research survey designed to capture the full lived experience of TSW.

As Dr. Andrew Affleck shares:
"I believe TSW is real and can be extremely distressing for those affected. We need to work together to make progress."

Every response brings us one step closer to better recognition, stronger research, and more compassionate care.

If you've experienced TSW, please consider taking a few minutes to share your story. Your voice matters, and your experience could help shape the future of care for thousands of others.

👉 Take the survey here: https://forms.office.com/Pages/ResponsePage.aspx?id=DQSIkWdsW0yxEjajBLZtrQAAAAAAAAAAAAO__rS2vE9UNEIzRENERzVTUjQ5UEJOMkpYTzhaUDRMSi4u

Thinking about coming to the TSW Summit in metro-Atlanta July 24-25... but haven't grabbed your ticket yet? 👀This is you...
07/01/2026

Thinking about coming to the TSW Summit in metro-Atlanta July 24-25... but haven't grabbed your ticket yet? 👀

This is your friendly reminder that you're not just signing up for a conference... you're signing up for THE TSW weekend of the year. 💙✨

Your ticket includes:
*Complimentary Massage
* Complimentary Acupuncture
* Complimentary Reflexology
* Complimentary Acrylic nail set
(secure your spot for the above at the conference)
* Premium Skin Products and time with Founders of the Brands
* Community Art Exhibit and Reception
* Breakfast, Lunch and Dinner on Saturday
* Hugs, laughs, and conversations with people who actually understand what you've
been through
*Face-to-face time with compassionate doctors and researchers dedicated to
advancing TSW science and improving patient care
* All the latest on TSW from doctors and encouragement from people who have been
through the fires of TSW and living life again

Imagine spending a weekend surrounded by people who don't need an explanation. No awkward looks. No "Have you tried moisturizer?" Just understanding, hope, learning, and connection.

Don't be the one scrolling everyone else's Summit photos wishing you had come. 😉

🎟️ Grab your ticket and come make memories, learn something new, and leave feeling inspired. We're saving you a seat. 💙

Book your in-person or virtual ticket by clicking the link below:
https://www.itsan.org/tsw-summit-event/

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North Palm Beach, FL

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