Empowering Everleigh

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Empowering Everleigh Everleigh Grace has transitioned to hospice care 💕 She has fought since January 2024 against Aplastic Anemia and now GVHD after a bone marrow transplant.

This is her story and our fight.

28/08/2026

What a week!! Kansas Oklahoma and a Puppy!!

We got to see the Kansas Capital on the way to Oklahoma City. That is capital #8 for Lillian in her Capitol Passport.

Then we got to Okana which was so much fun for the girls. So much fun I apparently didn’t take any pictures! We were so blessed with a place where Ev could play and then nap and then play again!

Last but not least on the way home we saw the beautiful Oklahoma capitol (might be my favorite) #9 for Lillian. Then we got to pick up a puppy on the way home! Such a busy blessing filled month for us.

What a week!! Kansas Oklahoma and a Puppy!! We got to see the Kansas Capital on the way to Oklahoma City. That is capita...
28/08/2026

What a week!! Kansas Oklahoma and a Puppy!!

We got to see the Kansas Capital on the way to Oklahoma City. That is capital #8 for Lillian in her Capitol Passport.

Then we got to Okana which was so much fun for the girls. So much fun I apparently didn’t take any pictures! We were so blessed with a place where Ev could play and then nap and then play again!

Last but not least on the way home we saw the beautiful Oklahoma capitol (might be my favorite) #9 for Lillian. Then we got to pick up a puppy on the way home! Such a busy blessing filled month for us.

23/08/2026

When someone asks if you want to see the bearcat you say yes 🔥

Thank you Douglas County Sheriff's Office for showing Ev the SWAT team Bearcat, the Goat, and K9 Jing.

Such a fun morning seeing all they do to keep us safe and then getting some dance gear on the way home! Tomorrow we leave for Oklahoma City to spend a few days at OKANA Resort & Indoor Waterpark. Prayers she has more energy and quiet drives.

When someone asks if you want to see the bearcat you say yes 🔥Thank you Douglas County Sheriff's Office (NE) for showing...
23/08/2026

When someone asks if you want to see the bearcat you say yes 🔥

Thank you Douglas County Sheriff's Office (NE) for showing Ev the SWAT team Bearcat, the Goat, and K9 Jing.

Such a fun morning seeing all they do to keep us safe and then getting some dance gear on the way home! Tomorrow we leave for Oklahoma City to spend a few days at OKANA Resort & Indoor Waterpark Prayers she has more energy and quiet drives.

21/08/2026

Thank you G Phi for a special night with our girls ✨

We had cupcakes, dance performances, karaoke, and more girl time. Thank you Creighton University for Evs Honorary Admission. I was not prepared to cry last night! What a blessing the Dance Marathon at Creighton has been to us and Children's Nebraska.

In a few months Ev will be a Miracle Child at the Dance Marathon raising money for Children’s. We will keep you updated on fundraising!

Thank you G Phi for a special night with our girls ✨We had cupcakes, dance performances, karaoke, and more girl time. Th...
21/08/2026

Thank you G Phi for a special night with our girls ✨

We had cupcakes, dance performances, karaoke, and more girl time. Thank you Creighton University for Evs Honorary Admission. I was not prepared to cry last night! What a blessing the Dance Marathon at Creighton has been to us and Children's Nebraska.

In a few months Ev will be a Miracle Child at the Dance Marathon raising money for Children’s. We will keep you updated on fundraising!

First day of school and second day! Day 1 Ev was having a hard day and didn’t have any energy. Some days she can barely ...
12/08/2026

First day of school and second day!

Day 1 Ev was having a hard day and didn’t have any energy. Some days she can barely wake up enough to do normal things but others she is fine. Day 2 she was so ready. It’s so hard to manage this constant change in every symptom. No two days are alike. No two nights are the same. But we push for the most normal kid experience we can.

We are so excited to be home schooling for the third year and Ev to be starting second grade!

10/08/2026

Ev said she wanted to pray today 💕

08/08/2026

Thank you 55th Wing Headquarters for a great day for our girl!

Thank you 55th Wing Headquarters for putting together a great tour and air show for our girl!! 💕 Everleigh got to go loo...
08/08/2026

Thank you 55th Wing Headquarters for putting together a great tour and air show for our girl!! 💕 Everleigh got to go look at all the planes and was golf carted around to watch the air show. Our girls love to see the planes over our house and seeing them up close yesterday was so special. No way we could have enjoyed it without the preparation and coordination from the base. Thank you Offutt!

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