Empowering Everleigh

Directions Website

Empowering Everleigh Everleigh Grace has transitioned to hospice care šŸ’• She has fought since January 2024 against Aplastic Anemia and now GVHD after a bone marrow transplant.

This is her story and our fight.

09/25/2026

Camping and Hiking ā˜‘ļøā˜‘ļø

The rain held off last Friday afternoon so we could get out to Hitchcock Nature Center for camping in one of there cabins!

We decided glamping is as roughing it as we want to do. And Emery was up at 4am to experience every time of day in nature šŸ˜… BUT it was so fun to make s’mores and be on observation tower as a storm rolled in from Omaha. We are excited to go back to hike more when the leaves start changing.

Thank you Amy and Sara for making this happen for our family šŸ’•

ā˜‘ļøā˜‘ļøAll we have left on her bucket list is riding a bike which she technically has done but we are working with a few people to come up with something special!

Camping and Hiking ā˜‘ļøā˜‘ļøThe rain held off last Friday afternoon so we could get out to Hitchcock Nature Center for campin...
09/25/2026

Camping and Hiking ā˜‘ļøā˜‘ļø

The rain held off last Friday afternoon so we could get out to Hitchcock Nature Center for camping in one of there cabins!

We decided glamping is as roughing it as we want to do. And Emery was up at 4am to experience every time of day in nature šŸ˜… BUT it was so fun to make s’mores and be on observation tower as a storm rolled in from Omaha. We are excited to go back to hike more when the leaves start changing.

Thank you Amy and Sara for making this happen for our family šŸ’•

ā˜‘ļøā˜‘ļøAll we have left on her bucket list is riding a bike which she technically has done but we are working with a few people to come up with something special!

09/25/2026

Get you a friend like Chelsea!! She saved the day šŸ›¶ Thank you Nishna Valley YMCA for going above and beyond what we could have asked for. From a sign in the lobby to snacks at the pool it was incredible. We also got to join skate night and Ev finished with the massage chair. Truly SO fun!

Backstory: We went to Okana in August knowing it was an inside waterpark and an outside lagoon. We went mainly for the outdoor waterpark and had a room over looking it. On the way there we found out the outside would be closed for the entire time we were there. The girls and probably mostly me were so sad.

We even talked about staying three more days so we could see it open on the weekend, but Evs knees and body couldn’t handle it. We had an excellent time and were ready to come home. BUT Ev was so she couldn’t do the Wibit course in Oklahoma.

Enter Chelsea to save the day. I knew her pool had one and asked if we could pay for them to set it up so Ev could use it. She so gratuitously said they would do it and more and we wouldn’t have to worry about anything or pay. Beyond grateful for great friends that move mountains for our girls.

Get you a friend like Chelsie!! She saved the day šŸ›¶ Thank you Nishna Valley YMCA for going above and beyond what we coul...
09/25/2026

Get you a friend like Chelsie!! She saved the day šŸ›¶ Thank you Nishna Valley YMCA for going above and beyond what we could have asked for. From a sign in the lobby to snacks at the pool it was incredible. We also got to join skate night and Ev finished with the massage chair. Truly SO fun!

Backstory: We went to Okana in August knowing it was an inside waterpark and an outside lagoon. We went mainly for the outdoor waterpark and had a room over looking it. On the way there we found out the outside would be closed for the entire time we were there. The girls and probably mostly me were so sad.

We even talked about staying three more days so we could see it open on the weekend, but Evs knees and body couldn’t handle it. We had an excellent time and were ready to come home. BUT Ev was so she couldn’t do the Wibit course in Oklahoma.

Enter Chelsea to save the day. I knew her pool had one and asked if we could pay for them to set it up so Ev could use it. She so gratuitously said they would do it and more and we wouldn’t have to worry about anything or pay. Beyond grateful for great friends that move mountains for our girls.

09/25/2026

So many fun things in the last month! Ev’s dad teachers at Metro and they were so gracious to let Everleigh go look around at all the cool things on campus.

Seeing Dad at work was fun but I think the fire program stole the show! šŸš’šŸ”„

So many fun things in the last month! Ev’s dad teachers at Metro and they were so gracious to let Everleigh go look arou...
09/25/2026

So many fun things in the last month! Ev’s dad teachers at Metro and they were so gracious to let Everleigh go look around at all the cool things on campus.

Seeing Dad at work was fun but I think the fire program stole the show! šŸš’šŸ”„

THE LORD SHOWS UP šŸ’•Emma (my sister in law (I know confusing)) and I went to the Nebraska State Fair to see Phil Wickham ...
09/25/2026

THE LORD SHOWS UP šŸ’•

Emma (my sister in law (I know confusing)) and I went to the Nebraska State Fair to see Phil Wickham and it was a God moment. As soon as we walked in the gates Emma found friends she knew but didn’t think we would see. A few minutes later those friends called saying they had meet and greet tickets for Phil and they wanted to gift them to Ev and one more. We rushed over knowing Lilly wouldn’t be able to meet him.

I let Ev and Emma go because I knew Lil would be so sad. We went and looked at the alligators and then got a call saying they had two more tickets. We rushed over and got in line. I still don’t truly understand how but I know the Lord saw us and blessed us beyond what we could have hoped for.

It was the most beautiful night of worship with my daughter who is Homesick for Heaven and on her way soon šŸ’•

Bucket List Item ā˜‘ļøSugar Fluff has been such a treat! We got a golden retriever puppy on the way home from Oklahoma. She...
09/25/2026

Bucket List Item ā˜‘ļø

Sugar Fluff has been such a treat! We got a golden retriever puppy on the way home from Oklahoma. She is so sweet only problem she loves to chew on Evs feeds tubing. But the snuggles she gives makes it okay.

Bucket List Items Left:

āš«ļø Camping
āš«ļø Hiking
āš«ļø Bike Ride

She stood the whole time šŸ’•A few weeks ago at church I noticed something when we were almost done singing. Ev stood for t...
09/25/2026

She stood the whole time šŸ’•

A few weeks ago at church I noticed something when we were almost done singing. Ev stood for the whole worship time. That is not a usual occurrence around here anymore. Her body is getting weaker and she needs to rest. Sometimes she sleeps through church. But that day she stood and sang to the Lord the whole time. What a gift.

09/17/2026

Excited to share updates soon! It’s just been really hard to show up in a space Where you’re told you don’t belong I don’t know how you fit into the puzzle.

I wish these organizations saw her treatment plan and saw how much we had suffered as a family over the last three years and took that into account. ļæ¼

Address

Omaha, NE
68022, 68101–68164

Alerts

Be the first to know and let us send you an email when Empowering Everleigh posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Share