Sickle Cell Disease Foundation

Sickle Cell Disease Foundation The Sickle Cell Disease Foundation provides life-enhancing education, services, and programs for ind

We offer FREE Sickle Cell Disease services in Southern California! We provide education and programming throughout Southern California for infants, children, teens, and adults with Sickle Cell Disease.

✨ Soft skin. Handmade love. A whole lot of purpose behind every product. 🍑🧴🤍Meet Hand Full of Love — a business built on...
05/27/2026

✨ Soft skin. Handmade love. A whole lot of purpose behind every product. 🍑🧴🤍

Meet Hand Full of Love — a business built on faith, family, self-care, and the heart of a hardworking mama determined to turn passion into purpose. Every lotion, soap, oil, and body wash is handcrafted with love to help you glow, relax, and feel your absolute best. ✨

🍑 “If you want skin so soft and smell so sweet, all you need is a Hand Full of Love baby.” 💕

From nourishing ingredients to peach-perfect scents, this isn’t just skincare… it’s a self-care experience. 💧✨

Supporting this business means supporting a beautiful family affected by Sickle Cell Disease — helping a strong mother continue building something meaningful while caring for the people she loves most. Every purchase, share, referral, and word of encouragement helps keep this dream alive and growing. ❤️

Treat yourself. Support handmade. Glow with purpose. ✨

Shop here:
https://handfulloflove.company.site/
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✨ Piel suave. Amor hecho a mano. Un montón de propósito detrás de cada producto. 🍑🧴🤍

Conoce a Hand Full of Love, un negocio construido sobre la fe, la familia, el autocuidado y el corazón de una madre trabajadora decidida a convertir la pasión en propósito. Cada loción, jabón, aceite y gel de baño está hecho a mano con amor para ayudarte a brillar, relajarte y sentirte lo mejor posible. ✨

🍑 “Si quieres una piel tan suave y un olor tan dulce, todo lo que necesitas es una mano llena de amor, cariño”. 💕

Desde ingredientes nutritivos hasta aromas perfectos de melocotón, esto no es solo cuidado de la piel... es una experiencia de autocuidado. 💧✨

Apoyar este negocio significa apoyar a una hermosa familia afectada por la enfermedad de células falciformes, ayudando a una madre fuerte a seguir construyendo algo significativo mientras cuida a las personas que más ama. Cada compra, participación, referencia y palabra de aliento ayuda a mantener este sueño vivo y creciendo. ❤️

Date un capricho. Soporte hecho a mano. Brilla con propósito. ✨

Compra aquí:
https://handfulloflove.company.site/

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Module 1 is an Introductory Course | Online TrainingThis is a self-paced course, but attendance at one live Cohort Rev...
05/11/2026

Module 1 is an Introductory Course | Online TrainingThis is a self-paced course, but attendance at one live Cohort Review session is required after completing Units 1–6. Please Select from the following: May 15th or May 22nd from 11:00 am – 12:00 pm (PT).

Registration for this cohort will be from May 1st-May 20th, 2026.

Time & Location
Module 1 is an Introductory Course Online Training

About the event
The Sickle Cell Counselor Training & Certification Program (SCCTCP) is designed for healthcare professionals and paraprofessionals, community health workers & educators, and others interested in learning more about sickle cell conditions. Many individuals work in health, social services, community education organizations, medical offices, clinics, or hospitals. This course does not provide SCD care and management information for parents needing court-ordered SCD parenting classes.

People seeking a general overview and up-to-date information on sickle cell disease, sickle cell trait, and related hemoglobinopathies can take the online self-paced eLearning introductory course (Module I). Attending the introductory course will result in a certificate of completion.

Content of Module I – Introductory Overview Course
6-hour self-paced eLearning course with one 1-hour live virtual cohort session.
* An overview of patterns of inheritance

* An overview of basic hemoglobin functions

Register:
https://www.scdfc.org/event-details/may-2026-module-1-sickle-cell-counselor-training-certification-program




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These tests check how well your child’s lungs are working. Your child puts a plastic mouthpiece in their mouth and takes...
05/05/2026

These tests check how well your child’s lungs are working. Your child puts a plastic mouthpiece in their mouth and takes deep breaths in. They blow out into a machine that measures how the lungs expand and take in oxygen. Starting at around 6 years old, these test should be done regularly if your child has a history of lung problems. These problems include asthma, pneumonia, or acute chest syndrome. It is very important for your child to have this testing done if they have had to take medicine for any breathing problems, including asthma. The results of these test will help the medical providers figure out the best medicines and treatment to help your child breathe more easily.
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Estas pruebas comprueban qué tan bien funcionan los pulmones de su hijo. Su hijo se mete una boquilla de plástico en la boca y respira profundamente. Soplan en una máquina que mide cómo se expanden los pulmones y absorben oxígeno. A partir de alrededor de los 6 años, estas pruebas deben hacerse regularmente si su hijo tiene antecedentes de problemas pulmonares. Estos problemas incluyen asma, neumonía o síndrome torácico agudo. Es muy importante que su hijo se haga esta prueba si ha tenido que tomar medicamentos para cualquier problema respiratorio, incluido el asma. Los resultados de estas pruebas ayudarán a los proveedores médicos a encontrar los mejores medicamentos y tratamientos para ayudar a su hijo a respirar más fácilmente.

¡Ningún guerrero debería ir sin estos elementos esenciales! 🌙❤️

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In a groundbreaking medical achievement, 21-year-old Sebastien Beauzile became the first patient in New York State to be...
05/04/2026

In a groundbreaking medical achievement, 21-year-old Sebastien Beauzile became the first patient in New York State to be cured of sickle cell disease using an innovative gene therapy.
Announced in March 2025, doctors at Cohen Children’s Medical Center on Long Island revealed that Beauzile had undergone treatment on December 17, 2024, and had shown no symptoms of the disease since. Beauzile had battled the chronic pain, joint issues, and debilitating skin ulcers caused by sickle cell disease for his entire life. Now, with this new gene therapy, he stands as a living testament to the potential of modern medicine to cure once thought-incurable conditions.
The gene therapy that changed Beauzile’s life is called Lygenia, developed by Bluebird Bio. This treatment works by altering a patient’s own bone marrow cells to produce healthy hemoglobin, which effectively addresses the root cause of sickle cell disease. According to Dr. Jeffrey Lipton, the director of pediatric hematology at Cohen Children’s Medical Center, this therapy is “a fix” for patients suffering from the condition. It marks a significant breakthrough in treating sickle cell disease, which has historically been managed through pain relief and blood transfusions rather than a definitive cure.

Article by: Cultural Creatives

*PLEASE NOTE THAT THESE THERAPIES ARE NOT OFFICIAL CURES BUT HAVE THE ABILITY TO CURE SICKLE CELL DISEASE! - Sickle Cell Disease Foundation

Your mind matters just as much as your body. 💚During Mental Health Awareness Month, the Sickle Cell Disease Foundation i...
05/04/2026

Your mind matters just as much as your body. 💚

During Mental Health Awareness Month, the Sickle Cell Disease Foundation is shining a light on the emotional and mental well-being of individuals living with sickle cell disease. Living with SCD comes with daily challenges that aren’t always visible—but your strength, courage, and resilience never go unnoticed.

✨ It’s okay to not be okay.
✨ It’s okay to ask for help.
✨ It’s okay to take time for YOU.

Let’s continue to build a community where our Warriors feel supported, heard, and uplifted—because no one should have to face this journey alone.

Warriors, we’re built different. 💪🏾
And that includes taking care of our mental health.

📞 Check in with yourself.
🤝 Check in with your loved ones.
💬 Reach out for support when you need it.

Together, we create a world where individuals with sickle cell disease receive the care and compassion they deserve. 💚

Contact the Sickle Cell Disease Foundation to schedule your appointment today:
(909)743-5226
[email protected]
www.scdfc.org



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05/01/2026

Proper Rest Presented by our favorite pal Peewee, make sure you all develop healthy habits to stay strong!💪🏾🌙❤️

Video created by: Tanya Gentry
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Descanso adecuado Presentado por nuestro amigo favorito Peewee, ¡asegúrense de que todos desarrollen hábitos saludables para mantenerse fuertes! 💪🏾🌙❤️

Vídeo creado por: Tanya Gentry

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Supporting Warriors, One Meal at a Time 🍽️Sickle Cell Disease FoundationWARRIOR PANTRY🌙At the Sickle Cell DiseaseFoundat...
04/29/2026

Supporting Warriors, One Meal at a Time 🍽️

Sickle Cell Disease Foundation
WARRIOR PANTRY🌙

At the Sickle Cell Disease
Foundation, we understand that fighting sickle cell is more than a medical journey

* Free groceries and nutritious meals available to our registered clients
* Pantry staples and nonperishable items designed to support wellness and strength
* Compassionate, confidential and judgment-free support

📍Location: Ontario, California
Open: Monday - Friday 10am - 4pm

📱Sickle Cell Disease Foundation:
(909)743-5226
[email protected]
www.scdfc.org

Link to register:
https://form.jotform.com/211306532688153
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Apoyando a los guerreros, una comida a la vez 🍽️

Fundación para la enfermedad de células falciformes

DESPENSA DE GUERREROS🌙

En la enfermedad de células falciformes

Fundación, entendemos que la lucha contra la célula falciforme es más que un viaje médico

* Comestibles gratuitos y comidas nutritivas disponibles para nuestros clientes registrados

* Productos básicos de despensa y artículos no perecederos diseñados para apoyar el bienestar y la fuerza

* Apoyo compasivo, confidencial y sin prejuicios

📍Ubicación: Ontario, California

Abierto: de lunes a viernes de 10 a. m. a 4 p. m.

📱Fundación para la enfermedad de células falciformes:
(909)743-5226
[email protected]
Www.scdfc.org

Enlace para registrarse:
https://form.jotform.com/211306532688153

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Autosomal Recessive Disorders:Sickle Cell Disease is a autosomal recessive disorder and in these disorders, two copies(1...
04/28/2026

Autosomal Recessive Disorders:
Sickle Cell Disease is a autosomal recessive disorder and in these disorders, two copies(1 from Mom & 1 from Dad) of the altered/ mutated gene must be inherited to have an autosomal recessive disorder. Individuals with one altered gene and one unaltered gene are “carriers” who have a genetic trait, but do not show any symptoms of the disease.
Examples:
* Sickle cell disease
* Tay-Sachs disease
* Cystic fibrosis
* Phenylketonuria
Sickle Cell Disease can only be genetically pass down through your Parents DNA.
No it’s not contagious, no you can get it from eating bad foods, and no not only African Americans are affected by sickle cell disease. Sickle cell disease is most prevalent in places with high levels of Malaria

No Warrior should go without these essentials!🌙❤️
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La enfermedad de células falciformes es un trastorno autosómico recesivo y en estos trastornos, se deben heredar dos copias (1 de mamá y 1 de papá) del gen alterado/mutado para tener un trastorno autosómico recesivo. Los individuos con un gen alterado y un gen no alterado son “portadores” que tienen un rasgo genético, pero no muestran ningún síntoma de la enfermedad.
Ejemplos:
* Enfermedad de células falciformes
* Enfermedad de Tay-Sachs
* Fibrosis quística
* Fenilcetonuria
La enfermedad de células falciformes solo se puede transmitir genéticamente a través del ADN de sus padres.
No, no es contagioso, no puedes contraerlo por comer alimentos malos, y no, no solo los afroamericanos se ven afectados por la enfermedad de células falciformes. La enfermedad de células falciformes es más frecuente en lugares con altos niveles de malaria

¡Ningún guerrero debería ir sin estos elementos esenciales! 🌙❤️

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Daniel Cressy has become the first patient in the state of Louisiana to receive gene therapy for sickle cell disease.The...
04/28/2026

Daniel Cressy has become the first patient in the state of Louisiana to receive gene therapy for sickle cell disease.
The 23-year-old from Metairie completed the treatment at Manning Family Children’s Hospital in New Orleans.
Doctors collected his stem cells, and edited them in a lab to produce healthy hemoglobin. The modified cells were then returned to his body after a few sessions of chemoth OXTEDLY BEEN CURED OF Sickle cell disease had initially blocked his dream of becoming a commercial pilot, but now there’s hope tor him again. “I really just wanted to be cured so I could fly.” Cressy said.
Black News
He is no longer hospitalized and is now recovering at home.


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Address

3602 Inland Empire Boulevard , C315
Ontario, CA
91764

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 3pm

Telephone

+19097435226

Website

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