Crohn's & Colitis Foundation

Crohn's & Colitis Foundation Please report any posts that you believe violate our community guidelines. Repeated offenses may result in being muted or banned.
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The mission of the Crohn's & Colitis Foundation is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases. Community Guidelines:

1) Overview: The Crohn’s & Colitis Foundation reserves the right to remove comments, images, or other content that violate our Community Guidelines. Personal attacks or hateful or objectionabl

e comments will be deleted. This includes language abusive, vulgar, obscene, racist, threatening, or harassing comments, libel, slander, and the use of offensive terms that target specific individuals or groups. Posts, images, and/or videos using such language will be removed.

2) Privacy: We welcome posting photos & videos of personal experiences. However, please do not post overly graphic photos. Do not post personal details or share personal information about others. Conversations that occur outside of this page are the responsibility of the individuals concerned.

3) Links: Do not post anything that advertises or sells products and/or services. Do not post links to research that hasn’t been published by a peer-reviewed research journal. Spam posts will be removed.

4) Fundraising: We know many individuals participate in fundraising activities – either personal or through the Foundation or other organizations. However, no posts promoting an individual or team of fundraisers may be shared on this page.

5) Consult a Doctor: We are not medical professionals and cannot offer medical advice. The information shared on this page is meant to be for educational purposes only and should not replace the care of your physician.

6) Contact: This page is managed by Foundation staff members. If you need to contact an administrator, please send us a direct message or email [email protected]

09/03/2026

Heading out with IBD? A little preparation can go a long way. 🎒

In this video, Kaylaa' and Ella — members of the Foundation's National Council of College Leaders (NCCL) — share the essentials they keep on hand when traveling, spending time with friends, or simply on the go.

See what's in their bags — from medications and hydration to ostomy supplies and snacks — for a peek at how they stay prepared wherever life takes them.

What's one item you never leave home without? Share it in the comments 👇

Progress worth sharingWe’re proud to share the strides we’re making toward our 2026 goals. Explore the numbers and stori...
09/03/2026

Progress worth sharing

We’re proud to share the strides we’re making toward our 2026 goals. Explore the numbers and stories behind how we’re advancing promising research, expanding resources, and driving policy change for people living with Crohn’s disease and ulcerative colitis.

See how your support is helping change what’s possible for the IBD community.
https://bit.ly/48p9Qpd

When should you see a doctor about digestive symptoms? Dr. Alan Moss, the Foundation's Chief Scientific Officer, shares...
09/02/2026

When should you see a doctor about digestive symptoms? Dr. Alan Moss, the Foundation's Chief Scientific Officer, shares the warning signs to watch for.

Not every stomachache is cause for concern. But recurring digestive symptoms — diarrhea, fatigue, abdominal pain, or re**al bleeding — could be your body signaling something more.
In our latest blog, Dr. Moss breaks down the signs of IBD, including Crohn's disease symptoms and ulcerative colitis symptoms, and explains when to see a doctor for stomach pain that won't go away.

https://bit.ly/45n8JDF

09/02/2026

⚜️ Now is the time to register for the 10th annual Crohn’s & Colitis Congress in NOLA, January 21-23, 2027⚜️

Our exciting program features new sessions, hot topics, and interactive panels addressing the most critical challenges facing research and patient care. Whether you are a physician, scientist, or an IBD professional from any discipline, the Crohn’s & Colitis Congress delivers immediately applicable takeaways to advance your practice.

Early Bird discounts expire on September 16! Explore the agenda and register now to secure your lowest rate. We’ll see you in the Big Easy! https://bit.ly/4yjAI4l

Summer 2026 is officially over, and we're celebrating a truly magical season at Camp Oasis 🧡1,051 campers came together ...
09/02/2026

Summer 2026 is officially over, and we're celebrating a truly magical season at Camp Oasis 🧡
1,051 campers came together across 10 residential weeks and 1 virtual week at Camp Oasis, our camp experience for kids and teens with IBD, where they connect with others who truly understand what they're going through.

The result? Campers are 48% less likely to feel embarrassed about their IBD.

That's the power of connection.

Swipe through to relive the summer 👉
Thank you to every camper, counselor, and supporter who made it happen. 💛

Learn more about Camp Oasis: https://bit.ly/3B5OjAk

Great news for people with IBD: UnitedHealthcare announced today that it will eliminate prior authorization requirements...
09/01/2026

Great news for people with IBD: UnitedHealthcare announced today that it will eliminate prior authorization requirements for a broad range of services starting October 1, including colonoscopies, as part of a broader effort to cut prior authorization by 30% by the end of the year. The changes apply across commercial, Medicaid, Medicare Advantage, and ACA marketplace plans.

This progress builds on the advocacy work the Foundation has led since 2023, when we rallied outside UnitedHealthcare to protest added prior authorization barriers to preventive care. It's a meaningful step toward reducing unnecessary obstacles between patients and the care they need, and we're hopeful other insurers will follow suit.

Imagine hiding a part of yourself every single day — that's what IBD stigma feels like for so many people. We're rewriti...
08/31/2026

Imagine hiding a part of yourself every single day — that's what IBD stigma feels like for so many people. We're rewriting that story.
🏕️ Camp Oasis campers are 48% less likely to feel embarrassed about their IBD
💬 96% of our Support Group participants talk more openly about their condition
📱 Half of Let's Go There viewers say they're now more open about their IBD experience

Every number here represents someone who felt a little less alone.

Read the full story of how we're building a future without IBD stigma: https://bit.ly/4vZ0Nnk

08/28/2026

Cooking in a dorm is hard. Cooking with IBD? Next level. 🍳 Kagan, an alum of the Foundation’s National Council of College Leaders program, is starting her master's in social work this semester — and she's sharing 3 tips for cooking for yourself at college with ulcerative colitis, which she's lived with since 2021. This is Back to School with IBD: because managing a chronic illness in college means planning for more than just your class schedule.

“I was diagnosed with Crohn’s disease at just 11 years old, during the height of COVID. My journey to remission included...
08/26/2026

“I was diagnosed with Crohn’s disease at just 11 years old, during the height of COVID. My journey to remission included 20 weeks of formula-only nutrition, five blood transfusions, four hospitalizations, four colonoscopies, and seven long months.” 💜

Lincoln never let those challenges define him. Today he's a top high-school runner in his state, and he's turned his experience into action by starting a fundraiser for the Crohn’s & Colitis Foundation that has raised more than $1,800 to support others living with IBD.

The Foundation's campaign is breaking the silence around IBD by sharing real stories like Lincoln's. Share your story today:
https://bit.ly/4i1fv6M

Living with a j-pouch and frequent bowel movements? A new clinical trial is evaluating an investigational probiotic biol...
08/25/2026

Living with a j-pouch and frequent bowel movements? A new clinical trial is evaluating an investigational probiotic biologic, EXE-346, to see if it can help reduce bowel movement frequency in adults with an ileal pouch-anal anastomosis (IPAA). Learn more about the study, eligibility, and participating locations through our Clinical Trials Community.

https://bit.ly/3TRhqDt

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