NS Pharma Inc.

06/18/2026

📣 Calling the Duchenne community in Massachusetts!

The United States Volt Hockey Association offers individuals living with disabilities or chronic conditions the chance to connect with peers and experience the fun of team sports in an adaptive environment. If you know a child living with Duchenne who may be interested in the event, we encourage you to see the original post for details.

🚨 REGISTRATION IS OPEN!!! 🚨

Want to try a fast-paced team sport in chairs that can reach speeds of up to 9 mph? If you love speed, strategy, teamwork, and the chance to experience a competitive adaptive sport, this is your opportunity! ⚡🏒

Our beloved Volt Hockey Training Clinic is back for 2026, and we couldn’t be more excited to bring athletes together for four days of training, learning, on-court action, and community!

This year, our elite Norwegian coaches and athletes are returning to help players train with some of the best in the world. Whether you’re brand new to volt hockey or already playing with a team, this clinic is open to athletes of all experience levels.

📍 Charles River Campus of UMass Amherst — Newton, Massachusetts
📅 August 13–16, 2026
⏰ 9:30 AM–5 PM

Open to U.S. residents ages 7+ with disabilities or chronic conditions that affect mobility (including invisible disabilities!)

No prior experience is required, and we’ll have equipment available to borrow and customize with options like additional strapping, cushioning, headrests, ventilator mounts, joystick adaptations, and more.

Registration is $100 per athlete, and scholarships are available to help with registration, travel, and lodging.

Spots are limited, and registration closes July 1 or when capacity is reached.

Register now: volthockeyusa.org/clinic

Let’s get back on the court!!! ⚡

06/17/2026

From puzzling to playing baseball, Emmett is always on the go, all while living with Duchenne muscular dystrophy.

Learn more about Emmett's story and other Duchenne heroes: https://bit.ly/4okVoUT

06/09/2026

The NS Pharma team was proud to get moving alongside our friends at the Jett Foundation for their annual Virtual Walk &Roll 5K!

It is always a pleasure to show up and support fun and inspiring programming for patients, families, and caregivers in the community.

06/01/2026

The is off to the races!

From now until June 7th, join in raising awareness and critical funds to support the .

Get your family and friends involved as we move together for this meaningful cause. Let's make every mile count!

The 2026 National Challenge 5K officially starts NOW and there’s still time to join us in moving 3.1 miles your way, wherever you are. Walk, roll, run, bike, swim, dance… every mile helps support individuals and families impacted by Duchenne muscular dystrophy. 💙👟

This week is all about community, movement, and making an impact together. Whether you’re participating solo, with friends, family, coworkers, or teammates, we’re so excited to have you with us for this year’s challenge.

📸 Don’t forget to share your photos and tag us throughout the week so we can celebrate with you!

Start your fundraiser: https://www.facebook.com/fundraiser/with_presence/create_dialog/?challenge_id=1525621396239945&default_beneficiary_id=241119512215404&default_beneficiary_type=charity&prefill_type=fundraiser_for_challenge

05/27/2026

Many thanks to the for a wonderful time at the national conference!

We’re so grateful to CureDuchenne for bringing everyone together, and to the incredible families who shared their stories. We are continuously inspired by your strength and resilience and are proud to stand together with this phenomenal community.

05/20/2026

It’s almost time to ! NS Pharma is proud to once again sponsor the annual Virtual Walk & Roll 5K! 👟

The inspiring, week-long invites individuals, families, advocates, and organizations to move forward with purpose and pledge their support for people and families living with .

So, whether you walk, run, use wheels, or cheer from the sidelines, each mile traveled by helps support research, education, and programming to empower the .

Join the challenge from June 1-7 to help move forward: https://bit.ly/4fu7DMv

05/15/2026

Join us in wishing our NS Pharma ambassador Jordan McLinn a very happy 17th birthday! 🎉

Every day Jordan inspires us to uplift people and families living with . Thank you for serving as a powerful voice for the , you are a true inspiration to us all!

Here's to a wonderful celebration and another year of making meaningful impacts, Jordan! 💙

Your friends at NS Pharma

05/15/2026

Today is , a day to heighten visibility for Mucopolysaccharidoses ( ), a group of rare, genetic disorders that impacts individuals and families worldwide.

NS Pharma is committed to advancing MPS research, expanding treatment options, and raising awareness for those impacted.

To learn more, explore educational resources from our advocacy partner, National MPS Society: https://mpssociety.org/en/

05/12/2026

Happy ! 💙 To the incredible nurses on our team and everywhere who bring comfort, care, and hope to patients every single day, thank you! At NS Pharma, we see your impact, especially within the rare disease community, and we are endlessly grateful for your dedication.

05/08/2026

NS Pharma is driven to serve the individuals and families who make up the DMD community. We remain fully prepared to commercialize CAP-1002 upon its expected approval in August. Read the letter here:https://www.nspharma.com/wp-content/uploads/2026/05/Capricor-Litigation-Community-Letter.pdf