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What a month it’s been with the   and  ! 💙Our team connected with patients and families, making plenty of memories along...
08/31/2026

What a month it’s been with the and ! 💙

Our team connected with patients and families, making plenty of memories along the way. Every event is another reminder of why showing up matters. We’re grateful for the opportunity to spend time with these incredible communities.

Take a look at some of our treasured moments from the month!

Jett Foundation National MPS Society Parent Project Muscular Dystrophy Uplifting Athletes

NS Pharma employees recently attended a Jett Foundation Family Workshop in Little Rock, AR.  We're proud to sponsor this...
08/26/2026

NS Pharma employees recently attended a Jett Foundation Family Workshop in Little Rock, AR.

We're proud to sponsor this program, with the hope that every family left feeling a little more equipped and a little less alone.

Thank you to Jett Foundation for welcoming us, and to every family who shared their day with us. We're grateful to be part of the community.

A unique gameday at Fenway! Our team had a great time with Uplifting Athletes at their Red Sox Gameday Experience celebr...
08/25/2026

A unique gameday at Fenway! Our team had a great time with Uplifting Athletes at their Red Sox Gameday Experience celebrating the DMD community. Who doesn’t love connection, joy, and baseball?!

We hope every family had an unforgettable day in Boston ⚾💙!

We're honored to be part of the 2026 Volt Hockey Training Clinic and to support an event that celebrates resilience, con...
08/18/2026

We're honored to be part of the 2026 Volt Hockey Training Clinic and to support an event that celebrates resilience, connection, and the power of adaptive sports. To all of the athletes, families, coaches, and volunteers making this week possible, we love cheering you on. 💙

Thank you to the United States Volt Hockey Association for hosting such a great event!

We are honored to support the 2026 Volt Hockey Training Clinic event and their mission to build community and promote a ...
08/07/2026

We are honored to support the 2026 Volt Hockey Training Clinic event and their mission to build community and promote a sport designed for people with limited upper and lower body mobility.

We can't wait to cheer everyone on next weekend! 🏒💙

We’re thrilled to welcome NS Pharma Inc. as a Gold Sponsor and first-time sponsor of our 2026 volt hockey training clinic! NS Pharma is advancing research and developing innovative therapies for people living with rare diseases, including Duchenne muscular dystrophy, while remaining closely connected to the patients and families at the heart of its work.

With NS Pharma’s support, we’re able to create more opportunities for athletes to learn, compete, build confidence, and share an unforgettable long weekend of volt hockey.

Learn more about NS Pharma: https://www.nspharma.com/

We joined families, advocates, researchers, and healthcare professionals at the National MPS Society 40th Annual Family ...
08/03/2026

We joined families, advocates, researchers, and healthcare professionals at the National MPS Society 40th Annual Family & Scientific Conference in Columbus, OH. This year's safari theme was a wonderful reminder that every family's journey is unique—and that no one has to navigate it alone.

From meaningful conversations to inspiring educational sessions and unforgettable moments with the community, we left feeling grateful for the opportunity to connect, learn, and celebrate alongside you.

We are excited to announce a new partnership between our parent company, Nippon Shinyaku, and AB2 BIO for the commercial...
07/30/2026

We are excited to announce a new partnership between our parent company, Nippon Shinyaku, and AB2 BIO for the commercialization of Tadekinig alfa, an investigational therapy for the treatment of monogenic IL-18 driven Hyperinflammatory Syndrome in patients with NLRC4 mutation and XIAP deficiency.

This agreement exemplifies our long-term commitment to shepherding therapeutic advances into novel treatment, and we look forward to working together to improve the lives of rare disease patients and address their unmet needs.

Learn more: http://bit.ly/4yOalUo

We're looking forward to seeing you in Washington for The Akari Foundation workshop! The Akari Foundation empowers Hispa...
07/29/2026

We're looking forward to seeing you in Washington for The Akari Foundation workshop!

The Akari Foundation empowers Hispanic families living with DMD through education, advocacy, and Spanish-language resources. We're honored to support its mission of helping families access the information and community they need.

¡Esperamos verte en Washington en el taller de la Akari Foundation!

La Fundación Akari brinda educación, apoyo y recursos en español a las familias hispanohablantes que viven con DMD. Nos enorgullece apoyar su misión de ayudar a las familias a acceder a la información, los recursos y la comunidad que necesitan.


Teens and young adults in the Duchenne community: this one's for you!  We are proud sponsors of the Team Joseph What Now...
07/14/2026

Teens and young adults in the Duchenne community: this one's for you!

We are proud sponsors of the Team Joseph What Now? virtual conference, created by older teens and adults living with Duchenne. Join conversations focused on navigating the transition to adulthood and life with Duchenne.

Join us July 15-16: https://www.teamjoseph.org/what-now-conference

Another ICNMD Congress in the books! ​ It was a privilege to gather as a community of clinicians, researchers, and indus...
07/13/2026

Another ICNMD Congress in the books! ​

It was a privilege to gather as a community of clinicians, researchers, and industry leaders dedicated to advancing the understanding of neuromuscular diseases. ​

We are proud to support continued research in rare neuromuscular conditions that could potentially shape the future of patient care.

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