05/06/2024
Long Covid update - shortly after the infection, my vision started to go blurry randomly. Leaning close to 40 at the time, the eye doctor stated my eyes were aging—glasses, followed by more eye issues, walking issues, and overall pain. Moving forward three years, I was still having the same problems, including more balance issues. I asked to try contacts. It’s been a rough journey, but the contacts have helped me more than anything. My eyes still go blurry; I have to shut them for a few minutes and lie down. I have balance issues, but it’s not the same. I can tell my eyes are not as strained, the pain behind my eyes has lessened, and I can avoid the nerve pain in my nose. I can also go into a room with LED lights! They have to be turned down low. Eye sensitivity is legit. I still have dry eyes, and sometimes it feels like sand is there. It’s a small and mighty victory. The needle nose pliers are there because I struggle with hand pain. Opening those little packages is tough!
Other bullet points -
🌻The heat and cold are brutal for my symptoms. POTS is no joke, and my BP and HR are still low and go up and down like a pinball game
🌻Chronic fatigue has increased
🌻I am still fragile
🌻I look “fine,” but I’m 100% miserable 24/7
🌻I have more intense joint pain, and using my hands is becoming more and more complex - still testing negative for RA, inflammation, and other connected issues
🌻when I walk, I feel like a puppeteer is controlling me and that, at any moment my body will fall apart
🌻mornings and nights are still very tough
🌻I have to stand on my bathroom floor many times throughout the night because I feel like my legs and feet are burning to death.
🌻 I am stressed beyond belief and have had a challenging year. I don’t want to keep doing this, and I am exhausted from fighting the system.
🌻 saying I’m tired too, I have joint pain too, is rude, please stop. It’s not the same, and it’s not helpful. You cannot begin to imagine how this feels and how much it takes from your life.
