Prayers For Paisley Rae

06/14/2026

💛 A Heartfelt Thank You to Kisses for Kyle Foundation 💛

Yesterday , our family had the privilege of attending the annual Kisses for Kyle Family Day in Ocean City and we had the best day ever!! We are beyond grateful for everything this incredible organization does for families facing childhood cancer.

From the moment we arrived, we felt loved, supported, and celebrated. Families were treated to amazing gift bags, pizza coupons, mini golf, unlimited rides, and so many thoughtful surprises throughout the day. But what makes Kisses for Kyle truly special isn’t just the fun-filled events—it’s the unwavering support they provide to families during some of the most difficult moments of their lives.

As a childhood cancer family ourselves we know how much organizations like Kisses for Kyle mean. They ease burdens, create joyful memories, provide practical support, and remind families that they are never alone in their fight.

If you are ever looking for a charity or fundraiser to support, please consider Kisses for Kyle. Every dollar donated helps bring comfort, hope, and assistance to children battling cancer and the families standing beside them. Their impact reaches far beyond a single event—they are there for families throughout their journey.

Thank you Kisses For Kyle for continuing to show up for our childhood cancer community and for giving families like ours a day filled with smiles, laughter, and precious memories. We are so thankful for all that you do. 💛🎗️

🎗️

06/05/2026

🚨 XAVIER — PRAYER WARRIORS PLEASE KEEP PRAYING 🚨

When we first shared Xavier’s story, we knew this community would do what it always does—show up with faith, love, and powerful prayers. The outpouring of support has been incredible, and we know his family feels every single prayer being lifted on their behalf.

Right now, Xavier still needs our continued prayers more than ever.

As a family who has experienced firsthand the fear, uncertainty, and helplessness that comes with watching a child fight for their life, we know how important it is to have people standing in the gap when you can’t find the words yourself.

So today, we are asking you not to stop. Continue to lift Xavier up in the days ahead. Share this post, add him to your church prayer lists, pray with your families, and ask others to join you.

Please continue praying for:
🙏 Xavier’s healing and recovery
🙏 Strength for his body as he continues to fight
🙏 Wisdom for every doctor, nurse, and specialist caring for him
🙏 Peace and comfort for his family during these unimaginable days
🙏 Hope when the road feels overwhelming
🙏 God’s presence to be felt in every hospital room, hallway, and waiting area

We know many of you have followed Paisley’s journey over the years. We know many of you prayed for our family when we were facing impossible odds. We will never stop believing in the power of prayer because we have lived it.

We know prayer matters.
We know prayer changes things.
We know God hears every single prayer whispered, cried, and spoken in faith

Xavier, you are not fighting alone.
Your family is not walking this road alone.
An entire community is praying for you.

God is still working.
God is still listening.
And we are still believing.

If you’re praying for Xavier, please leave a ❤️, 🙏, or “Amen” below so his family can be reminded that they are not alone in this fight.

❤️

05/29/2026

🚨 ATTENTION PRAYER WARRIORS — WE NEED YOU! 🚨

This page has always been so much more than a cancer page. It is a community of faith, hope, love, and people who show up when others need them most. Time and time again, we have witnessed the incredible power of prayer through all of you.

Many of you have followed our daughter’s journey and have prayed for her through some of the darkest moments of our lives. We know those prayers mattered because we watched miracles happen. Our daughter is a walking miracle, and we will forever believe in the power of prayer and God’s ability to do remarkable things.

Today, we are asking you to rally around another family who desperately needs our support.

A little boy named Xavier was involved in a traumatic accident during a baseball warm-up and in still critical condition.

🙏 PRAYER WARRIORS, THIS IS YOUR CALL TO ACTION. 🙏

Please stop what you’re doing and say a prayer for Xavier. Pray for healing. Pray for strength. Pray for peace. Pray for wisdom for his medical team. Pray for comfort for his family as they navigate every parent’s worst nightmare.

We know this page. We know the hearts behind these followers. We know how powerful this community can be when it comes together in prayer.

Please flood the gates of heaven with prayers and help us cover Xavier and his family in love, faith, hope, and support.

As a mom, I know the helplessness, the fear, and the heartbreak of staring at your child and realizing that there is nothing that you can physically do to help . In those moments, I learned to lean completely into God, trusting Him when I couldn't see the outcome and believing He was holding my child. That is why this call to prayer is so personal to us. We have to always keep FAITH OVER FEAR and believe that God will bring this little boy home to his family and play baseball again.

God is still in the business of miracles, and today we are boldly asking for one for Xavier.

❤️🙏

03/31/2026

11/18/2025

Thank you so much Murrmaid Manes for giving us an absolutely beautiful day getting Paisley's hair cut!! Paisley's been struggling with confidence between her glasses and her hair struggling to grow comparing herself to all the other little girls around her and it's been absolutely breaking my heart but Sara stepped in to help us, going above and beyond to make sure Paisley felt special and beautiful the entire time!! Paisley smiled nonstop during the entire appointment and afterwards told me how pretty she was! She was beaming with confidence as she deserves to be ! I Highly recommend anyone who has little girls to book with Murrmaid Manes ASAP 🩷

🧜‍♀️✨ Murrmaid of the Week: Paisley! ✨🧜‍♀️

This week’s spotlight is on one of the bravest, brightest little mermaids to ever swim into my salon… Paisley. 💖🌊

Before her appointment, Paisley’s mom shared a story that touched my heart deeply. When Paisley was younger, she went through multiple rounds of chemo and lost her hair three times. Despite everything she has faced, she has grown into the most beautiful, strong, magical 5-year-old — inside and out. ✨

Her mom told me how Paisley sometimes feels self-conscious about her hair, especially when she compares herself to friends with “long princess hair.” Her curls are shorter, and her texture has changed, and they’ve tried so many things to help her feel confident again. What her mama sees — and what I see — is a resilient, sparkling little warrior with the kindest spirit and the sweetest smile. 💗

At her appointment, Paisley absolutely blossomed. We laughed, chatted, and created a little mermaid makeover just for her adding tinsel, magic, and confidence to match her beautiful personality. She told me all about her love for Hello Kitty and how her favorite character is Cinnamoroll, the cute white puppy who can fly with his ears! 🐶💙✨

Paisley reminded me that beauty isn’t measured by hair length it’s shown through courage, joy, imagination, and the way you light up a room. And this sweet girl shines brighter than ANY glitter strand. 💫

Paisley, you are brave. You are strong. You are magical.
And you are absolutely perfect, just the way you are. 💖🧜‍♀️✨

Congratulations to our Murrmaid of the Week — keep swimming with confidence, sweet girl. The whole ocean is cheering for you. 🌊💗

09/07/2025

Wow from the bottom of our hearts, THANK YOU EVERYONE ! We can’t thank you enough for the incredible love and support you’ve shown throughout this fundraiser 💛

Thanks to your generosity, Paisley Rae is currently in 2ND PLACE for fundraising! 💛 None of this would be possible without YOU!! With your help, we can push even further before the fundraiser ends TONIGHT

Every donation, big or small, makes a huge impact!

Let’s finish strong together — we couldn’t do this without you!”

https://givebutter.com/e1O3zP/paisleyperrone

08/30/2025

Hi Everyone!! Before hitting the beach this morning stop by Primal Surf Shop 1219 W Brigantine Ave to say hi or grab some lemonade to help support Kisses for Kyle Foundation . This organization helps families fighting childhood cancer . The little girl here Paisley Rae is celebrating coming up on almost 5 years being Cancer free and truly wouldn't have been able to get by without the support of Sharon and Kisses for Kyle. 100% of the proceeds go directly to this organizations and to the families affected by Childhood cancer!! Stop by we have Lemonade, Berry juice for the kiddos, childhood cancer ducks for our Jeep peeps keychains , homemade cookies and homemade sour dough graciously donated by Mothers Dough, a locally owned baker! Please stop by we'll be here until 12 PM! If you want to help but can't make it in person please feel free to use the link . Thank you so much for all your support!

https://givebutter.com/e1O3zP/paisleyperrone

08/20/2025

Almost 5 years since diagnosis day and we are happy to say Labs are great! We are even in talks and whispers about moving into the next phase at oncology clinic: SURVIVORSHIP 💫

After being diagnosed at 10 weeks old with less then a 20% chance at life Paisley has fought hard and has overcome relapses and setbacks only to come back stronger and prove she's one tough cookie . The epitome of perseverance . Fast forward to today we are honored to be able to Watch our baby girl get ready for kindergarten - the feeling is simply profound .

It deserves a huge celebration!!! What does Paisley want to do?? GIVE BACK . Help other little girls and families who were in our position not too long ago. How you may ask?? .
By raising funds for Kisses for Kyle Foundation
an incredible organization dedicated to helping families who are impacted by childhood cancer.

This isn’t just a cause we support — it’s something we've lived. Our family has been directly helped by Kisses for Kyle, and we can’t begin to explain what that meant to us. When childhood cancer enters your life, it changes everything. The hospital visits, the stress, the financial strain — it can be overwhelming. But Kisses for Kyle stepped in with kindness, support, and hope.

When a child is diagnosed with cancer, the entire family is affected — emotionally, physically, and financially. Kisses for Kyle steps in to help with real support, whether that’s financial assistance, gift cards for groceries, special experiences for the kids, school supplies or simply providing comfort during an incredibly difficult time.
These acts of love mean everything when you’re going through something so heavy.

That’s why we want to fundraise for them — because we know firsthand the difference this foundation makes. Paisley has felt nothing but love support and connection through them. And we want other families to feel the same love and support ours did.

Now it's our turn to give back . we will be doing a virtual stand well as a physical stand in Brigantine next week to help support our dear friends at Kisses for Kyle. Please click the link below to help support them :

https://givebutter.com/e1O3zP/paisleyperrone

We are inviting you to join us in supporting this mission. Any donation — big or small — makes a direct impact. Together, we can lift some of the weight off these families’ shoulders and give them hope during the hardest moments . Your support today helps make sure a child can smile, a parent can breathe a little easier, and a family can feel cared for.

Thank you so much for caring, and thank you for helping us spread love, strength, and comfort to families fighting childhood cancer. With your help, the Kisses for Kyle Foundation can continue to change lives.

https://givebutter.com/e1O3zP/paisleyperrone

12/22/2024

This weekend the kids got to experience the magic of Christmas and Love. Kisses for Kyle Foundation elves came to our door loaded with songs, smiles hugs love and tons of gifts for the kids! They feel absolutely spoiled and we are all so thankful from the bottom of our hearts 🥰. If you're ever looking to donate to a foundation we cannot stress enough about how much This foundation does not only for the kids fighting but their entire family. Thank you so much !!!

PS last week we also got the amazing call that Paisleys December blood work looked perfect!! We will be celebrating big this holiday season . Happy Holidays everyone we hope you get to spend it with those that you love 🩷

09/24/2024

Today marks 4 years to the day that we found out about Paisley's diagnosis . Easily one of the hardest and most terrifying days of our lives, But luckily for us TODAY we get to celebrate as all of Paisley's official lab work shows that she remains on the Cancer Free Path!!! Thank you to everyone who took time out to check in and say prayers !!! God is soo good.