MDA ALS Center of Hope

06/03/2026

It was a great night to raise awareness for ALS!

05/31/2026

05/19/2026

05/13/2026

Thank you!! We love our nurses!!

We are taking a moment to say Thank you to our amazing nurses for ! Making a difference everyday! 💛💙

02/28/2026

02/25/2026

On behalf of Ashley Corbin of ALS Hope North and the entire ALSHF Team, we’d like to share a few words…

The ALS community has faced some major losses recently, including one incredibly fierce warrior, Leah Stavenhagen.
As a young woman who loved exploring life and traveling around the world, she sought expert opinions from all over
when she began noticing physical changes taking place. She received the definitive ALS diagnosis in 2019 at the age of 27. As she was learning about the changes she was experiencing and looked for resources to help navigate this next chapter in life, she realized there was a lack of information and awareness for people who are younger and receive an ALS diagnosis. Leah was proactive in all areas of her life, and with the world shutting down from COVID, she used the time to network with other women her age, to bring them together to share ideas, support and resources for living with ALS. From this, she created Her ALS Story: a community of women from around the world who were diagnosed before the age of 35. What started as a small core group, the word spread and the need to make this the most unique and supportive ALS community for women became Leah’s passion.

Over the last 4 years, Her ALS Story has held an annual retreat, bringing together these fierce women along with their caregivers for a week of unapologetic joy, pure lessons in life shared, and most importantly a space for unconditional love and acceptance. Each of the more than 100 members of Her ALS Story has benefited from knowing Leah personally and have taken great comfort in this special sisterhood she created.

She never let ALS stop her from living her life to the fullest and continued traveling the world with her family, close friends, and always had her loving husband Hugo by her side. Anyone who had the chance to meet Leah, including the team at ALS Hope Foundation got to witness her zest for life. While it’s not easy to process what the world will be like without her being physically present, her legacy will continue to live on through her vision with Her ALS Story and all of the partnerships she created in the ALS community.

02/11/2026

We’re honored to invite you to Someone I Love Has ALS, a free community gathering, lecture, and educational conversation hosted by Hope Loves Company and ALS Hope Foundation.

For more than 25 years, Jodi O'Donnell-Ames and Dr. Terry Heiman-Patterson have walked alongside the ALS community. Together, they’ll share insights from their book Someone I Love Has ALS: A Caregiver’s Guide, reflections from lived and professional experience, and the ways their organizations support individuals living with ALS and the people who care for them.

📅 Saturday, March 21, 2026
⏰ 4:00–6:00 PM EST
📍 Global Neurosciences Institute, Pennington, NJ
💻 Virtual attendance available (Zoom link shared after registration)
🎟 Free admission

This event is open to families, individuals who love someone with ALS, and professionals seeking deeper understanding, shared learning, and connection.

👉 Register here: https://tinyurl.com/hlcals

Please share with anyone who may benefit. 💙

12/31/2025