Castleman Disease Collaborative Network

05/29/2026

Quest would not have been possible without the incredible support of our sponsors.

Thank you to every organization, family and partner who helped make this event such a success for our community. Your support created opportunities for connection, education, advocacy, and community throughout the entire event.

We’d also like to extend a very special thank you to Rare Diseases, our headline sponsor, for your partnership, generosity, and commitment to this work. Your support played a major role in bringing Quest to life and is a constant reminder that we are stronger together! 💙

05/26/2026

Still riding the energy from such an inspirational night!

What an unforgettable experience bringing together advocates, community members, partners, and leaders all in one space. From meaningful conversations to inspiring moments on stage, Quest for a Cure reminded us exactly why this community matters so much.

Thank you to everyone who showed up, shared their stories, supported the Ruxolitinib trial, and made this event so special.

We are stronger together. 💙

04/29/2026

Quest for a Cure is almost here and there’s still time to be in the room for an unforgettable night making a real impact!

Secure your tickets now… this is one you won’t want to miss.

🎟️ Get your tickets here: https://e.givesmart.com/s/:xt5JmNNlHnR/e/OtV/

04/20/2026

We’re gearing up for the Million Dollar Bike Ride and we’d love for you to be part of it! 🚴‍♂️

Join Team Castleman and ride or walk with us, whether in person or virtually. There’s something for everyone: a 1-mile walk or ride distances of 10, 32, 50, or 70 miles to choose from.

Not up for riding or walking? You can still make a huge impact by donating to support our team and the fight against Castleman disease: https://charity.pledgeit.org/MillionDollarBikeRide/teams/TeamCastleman

Every step, every mile, and every dollar brings us closer to better treatments and a cure. Join us or support us today! 💙

04/15/2026

04/08/2026

Registration and travel grants are now open for the 2026 Patient & Loved One Summits

Join us for two opportunities to connect, learn, and build community with others impacted by Castleman disease.

These Summits bring together patients, loved ones, and experts for meaningful conversations, education, and support.

Travel grants are available to help make attendance possible

👉 Register and apply today: www.cdcn.org/summit

04/06/2026

You’re invited to Quest for a Cure 2026, our signature fundraising event ✨

Join us for an unforgettable evening as we come together to advance research and bring hope to those affected by Castleman disease.

📅 Thursday, May 14
📍 The Pumphouse, Bala Cynwyd

Enjoy a meaningful night of connection, purpose, and impact while helping drive the next breakthrough forward.

A limited number of tickets and sponsorship opportunities are available.

🔗 Learn more and reserve your spot: cdcn.org/quest

03/06/2026

Castleman disease can be difficult to recognize because its symptoms often overlap with other conditions.

Understanding the signs and how the disease is diagnosed can help patients and physicians identify it sooner.

If you or a loved one has been diagnosed with Castleman disease, or are still searching for answers, the CDCN community is here to help.

Learn more about Castleman disease at cdcn.org.

02/28/2026

Today is Rare Disease Day. 💜

Castleman disease may be rare but the strength of this community is not.

To every patient, loved one, physician, researcher, and supporter:
We see you. We honor you. We are in this fight together.

Now let’s make some noise for Castleman disease awareness. Share your photo, tag , and show the world the strength behind this rare disease.

02/25/2026

Rare Disease Day is almost here! Don't forget to do your and tag us to spread the word about Castleman disease. Here are a couple more of our favorite recent Warrior Flexes.