Åskar the Heart Warrior

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Åskar the Heart Warrior

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All about Åskar, having a Critical Congenital Heart Defect and a transplant survivor. He was listed Status 1A on April 5th and got his new heart June 22.

10/22/2026

Åskar's school has a program that called "Math Master" once you master a math goal you become a math master and get a shirt to wear on certain days to celebrate.

Well Åskar got it! He has met his IEP math goal!

09/29/2026

❤️💙 WORLD HEART DAY 💙❤️

Don’t Miss a Beat.
Every heartbeat tells a story.

For the CHD community, every beat can represent strength, resilience, hope, and another moment to celebrate. 🫶

Today, we’re celebrating every heart and every journey.

💙 Don’t miss a beat of awareness.
💙 Don’t miss a beat of connection.
💙 Don’t miss a beat of care.
💙 Don’t miss a beat of advocacy.
💙 Don’t miss a beat of life.

From diagnosis to surgeries.
From childhood to adulthood.
Through the highs, the challenges, the victories, and everything in between…
Every beat matters. ❤️

Today, we celebrate our CHD warriors, families, caregivers, healthcare heroes, and advocates who continue to show up, speak up, and move forward. 💙

And today, we also remember the CHD warriors we have lost. 🕊️

The hearts that may no longer be beating beside us, but whose lives, love, courage, and stories remain forever part of our community.

Their impact lives on in every advocate who speaks up, every family who keeps fighting, every milestone we celebrate, and every heartbeat we cherish.

We remember.
We honor.
We carry their hearts with us. ❤️

✨ Keep listening.
✨ Keep caring.
✨ Keep advocating.
✨ Keep celebrating every beat.

Because every heart has a story.
And every story deserves to be heard — and remembered.

❤️ Don’t Miss a Beat. ❤️

08/30/2026

Swim day smile

08/25/2026

💙 What is HLHS? 💙
Hypoplastic Left Heart Syndrome.
Four words that change everything the moment a doctor says them out loud in a room where you are sitting.
Here is what they actually mean.
A normal heart has two sides. The right side collects blood from the body and sends it to the lungs to pick up oxygen. The left side takes that oxygen rich blood back from the lungs and pumps it out to the rest of the body.
Two sides. Two jobs. Working together in a rhythm that never stops.
In HLHS, the left side never fully developed.
The left ventricle, the main pumping chamber that is supposed to send blood to every organ, every muscle, every cell in the body, is too small. Too weak. Sometimes barely there at all. The aorta, the great vessel that carries that blood out to the body, is severely underdeveloped too.
The left side cannot do its job.
So the right side has to do everything.
A ventricle that was built to pump blood only to the lungs is now being asked to pump blood to the entire body as well. It was never designed for that. It was never supposed to carry that load alone.
And yet it tries.
That is the heart of a child with HLHS. Working twice as hard with half the equipment. Compensating for a side that was never given the chance to grow.
From the outside, these babies can look perfect.
Ten fingers. Ten toes. A cry that sounds strong. A face that looks exactly like the face you imagined for nine months.
And inside, a heart fighting harder than anyone knows.
💙 Drop a 💙 if HLHS has touched your family.
Comment WARRIOR and I will send you the link to our community directly.
Share this so more people understand what HLHS actually means.
Follow Invisible Warriors — we share the moments nobody else talks about. So no heart family ever feels invisible or alone. 💙
Click the link in our bio to support CHD families right now.

08/05/2026

Mom got some amazing news today.....

Yay!!!

07/30/2026

Guess who lost his first tooth....me!!!

07/21/2026

Kindergarten....you better be ready for me 😁😁
First day of School

07/17/2026

Enjoying this monsoon season....

07/08/2026

Happy ! 1 donor can save 8 lives. Be a hero every day and register your decision to be an organ, eye and tissue donor at RegisterMe.org and tell your family and friends how to level up 💙💚

06/30/2026

Water is alil too cold to play in but we can put leaves in and watch it go down towards the river.

Address

455 N Galvin Parkway
Phoenix, AZ
85008

Website

https://cota.org/campaigns/COTAforAskarsFight

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