Åskar the Heart Warrior

Åskar the Heart Warrior All about Åskar, having a Critical Congenital Heart Defect and a transplant survivor. He was listed Status 1A on April 5th and got his new heart June 22.

Chillin' with the best cat ever...Ardor
06/02/2026

Chillin' with the best cat ever...Ardor

05/21/2026

Biopsy results in...No rejection! Yay!

Another Heart Cath in the books and now we are home. No more transplant appt till August....yay!!I'm tired from the an...
05/21/2026

Another Heart Cath in the books and now we are home. No more transplant appt till August....yay!!

I'm tired from the anesthesia still.

And of course...have to get an echo. Cath time means extra labs and tests.
05/20/2026

And of course...have to get an echo. Cath time means extra labs and tests.

Annual Heart Cath time...
05/20/2026

Annual Heart Cath time...

Pre-School is in the bag.... Kinder, I am ready for you.
05/19/2026

Pre-School is in the bag.... Kinder, I am ready for you.

On to Kindergarten.....
05/07/2026

On to Kindergarten.....

05/04/2026

Let's talk about HLHS.
Really talk about it.
Not the watered down version.
Not the version that skips the hard parts.
All of it.
Hypoplastic Left Heart Syndrome.
It is not just one problem with one part of the heart.
It is an entire side of the heart —
underdeveloped.
The mitral valve. Too small.
The left ventricle. Too small.
The aortic valve. Too small.
The aorta. Too small.
The entire left side of the heart —
the side responsible for pumping oxygen rich blood to the rest of the body —
not developed enough to do its job.
And here is the part that stops every parent cold when they first hear it.
It starts during pregnancy.
Before your baby is born.
Before you have held them.
Before you even know their face.
Their heart is already forming differently.
And nobody knows why.
That is one of the most devastating parts of this diagnosis.
There is no known cause.
No risk factors.
Nothing you did.
Nothing you didn't do.
Nothing you could have changed.
It is not preventable.
It just happens.
To 1 in every 3,846 babies born in the United States.
About 925 babies every single year.
925 families who get a phone call or a scan result or a quiet moment in an ultrasound room that splits their life into before and after.
925 times a year a mother hears these words and the world shifts underneath her.
925 times a year a father grips someone's hand in a hospital and tries to hold it together.
925 babies who come into this world already facing one of the most complex congenital heart defects known to medicine.
And they fight.
Every single one of them fights.
With everything they have.
From their very first breath.
This week we are breaking down HLHS completely.
The surgeries.
The symptoms.
The long term realities.
The emotional truth of what families live every single day.
Stay with us this week.
Share this post so one more family feels less alone in this diagnosis.
Because 925 babies a year deserve a world that knows their name.

Drop a 💙 if you are learning about HLHS for the first time today.
Drop a ❤️ if your warrior carries this diagnosis.
Comment HLHS and we'll send you the full breakdown and resources directly.
Click the link in our bio to donate and help families fighting congenital heart defects right now.
Follow Invisible Warriors — we share the moments nobody else talks about. So no heart family ever feels invisible or alone. 💙

04/30/2026

Today is Donor Remembrance Day. 💙💚 Today and every day, the donation and transplant community comes together to honor and celebrate the donor heroes who have given the gift of life through organ, eye and tissue donation. We are sharing forget-me-not flowers to symbolize that donors and their legacy of generosity will always be remembered.
also honors donor families and serves as a reminder that they are always a part of the Donate Life community. Association of Organ Procurement Organizations - AOPO

Happy National Zipper Day....
04/29/2026

Happy National Zipper Day....

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455 N Galvin Parkway
Phoenix, AZ
85008

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