Parkinson & Movement Disorder Alliance

06/19/2026

"My husband has had Parkinson's 8 years now. I find it hard to cope some days seeing him suffer. I also have to face the reality that our golden years look different. Trying to navigate it is tough." —Debbie

06/19/2026

06/18/2026

"We continue to rely on data from studies done on men as if they apply to women. Specifically, Caucasian men...who weigh 150 lbs. This is 'Reference Man' and his superpower is being able to represent humanity as a whole. Of course, he does not." —Caroline Criado Perez, author of Invisible Women

Parkinson's can affect men and women differently. It's time we talk about it.

06/16/2026

LIVE ONLY! ONAPGO is a wearable infusion device that continuously delivers apomorphine just under the skin to provide consistent treatment of motor fluctuations (OFF episodes) in adults with advanced Parkinson's. Hear directly from an expert about how you or a loved one could benefit from non-invasive, all-day medication delivery. Wednesday 6/17 at 12pm PT: https://loom.ly/S4JoxwQ

06/15/2026

"I want to honor my husband John who, for the past 21 years, has been my caregiver. He helps me dress and do the many things I cannot do for myself. The first support group we went to, a man said that he was going to divorce his wife because he didn't sign up to be a caregiver. I have never felt so loved as when John looked at me and said, 'For better or worse, in sickness and in health.' Thank god for John." —Rachel

06/14/2026

"As a caregiver, I've learned that self-care doesn't look the way people suggest. It's not always yoga or perfectly carved-out time away...because, most days, that just isn't realistic. And, honestly, it can feel out of touch.

"For me, self-care is quieter. It's a few minutes before the day begins, a breath outside, a moment where I don't have to be strong. It's not about doing everything; it's about doing something small that brings me back to myself.

"Sometimes that's noticing something beautiful or creating with my hands. Sometimes it's movement—a quick workout or me in the kitchen jumping up and down and punching the air like I've officially lost it. Both count. 😅

"Self-care, for me, is less about escaping and more about returning. Even the smallest care reminds me that I'm still here, too."
—Erin, care partner

06/14/2026

Hear directly from an expert about how you or your loved one could benefit from a wearable infusion device that provides consistent treatment of OFF episodes in adults with advanced Parkinson's. This program won't be recorded, so be sure to join us live at 3pm ET/12pm PT on Wednesday: https://www.pmdalliance.org/upcoming-programs/

06/12/2026

“Parkinson’s has taught me to celebrate the hell out of the good days. And to miss the hell out of having energy to do everything that needs to be done in a day.”

06/11/2026

“When you’ve been able to do certain things all your life, like put your shoes on and brush your teeth or whatever – when you can’t do that, you sort of go, ‘What’s this?’. You know, what’s happening here? Come help me with this. And then you have to learn to ask people to help, and that – that took a little doing. But I do that now, because I need the help.”
—Linda Ronstadt, eleven-time Grammy award-winning US singer-songwriter living with PSP, a parkinsonism

06/10/2026

"The most important thing any parent can do, Parkinson's or not, is to share their love with their kids. Your kids will love you for that, and if you have rigidity or tremor or whatever, it won't matter to them. Make your love your focus, not your Parkinson's. To them, you will be their mom or dad, the one who loves them. And what a blessing and a lucky kid they will be!" —Gene