Grayson’s Golden Fight

04/12/2026

On our way to Orlando!

08/17/2025

Super eventful summer turning into another school year soon!

Emotionally- he is perfect! Running around. Playing. Ect.
Medically- Grayson has been diagnosed with Horner’s syndrome. (There’s nothing we can do about it and as of right now the only symptoms are pupil dilation and only sweating on one side of the face) He has scans coming up the August 28th following protocol so as always we are hoping for the best! Still has the thyroid issue going on and we are trying to get that to stabilize with medication. Hearing aids are a work in progress he loves them some days and others he doesn’t even want to see the bag.

06/02/2024

January-June. We have just been trying to settle into our new home. Grayson is now doing monthly doctor check ups for labs and every 3 months we check for signs of cancer! He has been doing amazing! I’m so proud of him! I had to take some time to get everything together due to the fire and the appointments and just my mental health. So I had to put his page on the back burner! Hoping to start posting again more frequently!

01/15/2024

Round 5 immunotherapy starts today! Almost there! We started this one off a little rocky with a fever last Friday and some cold like symptoms. Grayson hasn’t been eating since he has been off the loralatnib ( the clinical trial drug which was not what we wanted at all ) so we decided it would be best to place another ng tube today. He was down 9lbs in a month. Energy isn’t there and just overall meh! Still happy! Still loved.

01/03/2024