The Marfan Foundation

The Marfan Foundation To that end:

• Zero Tolerance Policy: We do not tolerate hate speech, harassment, personal attacks, discriminatory language, or disrespectful dialogue.
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The Marfan Foundation drives research, education and support – and builds community – to improve outcomes, save lives and empower all people to thrive who are living with
genetic aortic and vascular conditions. The Marfan Foundation drives research, education, and support while building community to save lives, improve outcomes, and empower all people living with Marfan, Loeys-Dietz, Vascular Ehle

rs-Danlos syndromes, and related conditions to thrive.



Community Guidelines and Disclaimer

The Marfan Foundation is committed to maintaining a safe, respectful, and inclusive environment across all our digital platforms. Any content that violates these standards may be removed, and offending users may be blocked or reported.

• Shared Content Disclaimer: From time to time, we may share content created by our community members, including stories, testimonials, and social media posts. The views and opinions expressed in such content are those of the individuals and do not necessarily reflect the views, policies, or positions of The Marfan Foundation. By engaging with our digital platforms, you agree to abide by these guidelines and contribute positively to our community.

Today, we pause to honor Juneteenth, commemorating the emancipation of enslaved African Americans and reflecting on the ...
06/19/2026

Today, we pause to honor Juneteenth, commemorating the emancipation of enslaved African Americans and reflecting on the legacy of slavery and its lasting impact.

As we commemorate this important day, we also affirm that the promise of true freedom is strengthened when every person has the opportunity to access healthcare in ways that enable them to thrive.

Thank you to all who took part in our 2026 Global Virtual Conference! Summarize your experience in one word in comments ...
06/18/2026

Thank you to all who took part in our 2026 Global Virtual Conference! Summarize your experience in one word in comments - help us build a community word cloud!

And be on the lookout for a survey to your inbox via Zoom. Your feedback is super important to us!

In addition to our learning sessions tomorrow, don't miss our closing at 4 p.m.: 2 big announcements, and lots of commun...
06/18/2026

In addition to our learning sessions tomorrow, don't miss our closing at 4 p.m.: 2 big announcements, and lots of community voices! Join Conference via the Zoom link registered participants received, and we'll see you there!

We have so many great sessions both this evening and tomorrow. If you've registered for Conference (marfan.org/conferenc...
06/17/2026

We have so many great sessions both this evening and tomorrow. If you've registered for Conference (marfan.org/conference), go to the Zoom homepage, and select Sessions to pick more to attend. We can't wait to see you.

06/16/2026

Sign up for the Marfan Foundation's Global Virtual Conference, June 2026. Learn more about Marfan, Loeys-Dietz, & VEDS. .Connect.Thrive.

06/16/2026

Chicago friends, join Maia at the Walk for Victory: it's like a family picnic with your Marfan Foundation family!

Register now: marfan.org/walkchicago

Saturday, June 20
12-3pm
Lincoln Harbor - Diversey Event Space 2601 N. Cannon Drive, Chicago, IL 60614

Here are some highlights for today's Conference sessions. See the full program schedule here: https://ow.ly/hq0s50Zc7sgO...
06/16/2026

Here are some highlights for today's Conference sessions. See the full program schedule here: https://ow.ly/hq0s50Zc7sg

Once you're in Zoom, click the Sessions tab at the top to choose what you'd like to attend.

Did you learn something new at our Global Virtual Conference 2026 that moved you, gave you hope, or that you found espec...
06/16/2026

Did you learn something new at our Global Virtual Conference 2026 that moved you, gave you hope, or that you found especially compelling? Share what you learned and why it matters: https://vocalvideo.com/c/MarfanFdnConference2026

We'll share select video responses during our closing event on Thursday afternoon at 4 p.m.

Thank you to our Careers panelists for sharing your lived experiences and to our welcome session community members and e...
06/15/2026

Thank you to our Careers panelists for sharing your lived experiences and to our welcome session community members and experts for offering their opening sentiments and stories!

HAPPENING NOW: Our 2026 Global Virtual Conference is on, with a robust careers panel discussion. Still want to take part...
06/15/2026

HAPPENING NOW: Our 2026 Global Virtual Conference is on, with a robust careers panel discussion.

Still want to take part? You can: marfan.org/conference to register for the rest of the week's sessions.

Registered but having trouble access Conference? Be sure to check your Inbox, Calendar, Spam, and Other folders for an email/reminder emails from Zoom. Still can't find your Zoom link email? Email [email protected] for assistance.

Want to check out the schedule?https://marfan.org/wp-content/uploads/2025/10/Global-Virtual-Conference-Schedule_12May2026.pdf

Sign up for the Marfan Foundation's Global Virtual Conference, June 2026. Learn more about Marfan, Loeys-Dietz, & VEDS. .Connect.Thrive.

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22 Manhasset Avenue
Port Washington, NY
11050

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