OHSU UCEDD Community Partners Council (CPC)

OHSU UCEDD Community Partners Council (CPC) Working with the OHSU UCEDD to promote health and quality of life for Oregonians with disabilities.

The Community Partners Council serves as the voice of Oregonians with disabilities and their families by assuring that their concerns are addressed in all research and program activities of the OHSU University Center for Excellence on Developmental Disabilities (UCEDD). The CPC serves as a primary mechanism for the voices and needs of Oregonians with disabilities, health issues and their families,

friends and supporters. The CPC assures through interactive partnership with the UCEDD that individual, group and community concerns and needs are related to and addressed by the 5 year strategic plan and the ongoing work of all aspects of the UCEDD.

Reflections of a UCEDD Summer Intern:Jona Yoo, an undergraduate pre-medical student studying molecular, cellular, and de...
08/29/2026

Reflections of a UCEDD Summer Intern:

Jona Yoo, an undergraduate pre-medical student studying molecular, cellular, and developmental biology, recently completed an eight-week internship with the OHSU UCEDD through the Summer Internship Program.

"I was beyond excited when I came across this opportunity. My younger brother has a genetic disorder that affects his everyday life and development, and he has inspired me to pursue a career in healthcare. Throughout my life, I have watched him receive interdisciplinary, patient-centered care from geneticists, pediatricians, and therapists... Therefore, it was especially meaningful to be placed in a role that drew connections between my interests, goals, and family experience: healthcare access for children with neurodevelopmental disabilities.

I learned that there are barriers present even in the biggest city in Oregon... It may be easy to think of barriers to healthcare access as challenges for rural towns and underserved populations. While this is by no means untrue, it is also easy to forget about the barriers that are right here in our own cities, neighborhoods, and clinics."

Read the full story from our national network: https://www.aucd.org/news/ohsu-institute-on-development-and-disability-ucedd-summer-intern-reflection-by-jona

Association of University Centers on Disabilities

[ID: Jona Yoo with long dark wavy hair and light skin smiles at the camera wearing a white button up top standing in front of a pond with a fountain and greenery in the background.]

Upcoming free online learning sessions presented by Oregon Family to Family  Health Information Center. Click the pictur...
08/28/2026

Upcoming free online learning sessions presented by Oregon Family to Family Health Information Center. Click the picture to register using the links in the comments of the post.

***Register for these learning sessions using the links below in the comments.***

We look forward to seeing you!

Free seminar for families of children with developmental differences:
08/25/2026

Free seminar for families of children with developmental differences:

Join Tara Rutter, PhD, a psychologist with the Institute on Development & Disability child development program, as she discusses the unique experiences of being a sibling of a child with a disability and explores resources and practical tips for supporting siblings.

***Click the link in the comments to register for this free seminar***

You’ll learn:
-How to recognize the unique emotional impacts of being a sibling in a special needs family
-Practical connection strategies to support siblings' individual needs
-What support networks and resources exist for siblings to help promote long-term wellness

New project launching soon: Pathways for   Students to Healthcare and Disability CareersThe UCEDD was recently awarded $...
08/24/2026

New project launching soon: Pathways for Students to Healthcare and Disability Careers

The UCEDD was recently awarded $615,000 from the Oregon Health Authority through the federal Rural Health Transformation Program. The funding will launch the Pathways for Rural Oregon Students to Healthcare and Disability Careers program. This builds on the UCEDD’s 25-year history of running its Summer Internship Program.

The Pathways project is designed as a well-rounded, six-month health care career journey specifically for rural high school students. It includes mentorship, paid internships, disability-focused education and exposure to Oregon’s only academic health center.

By training future rural health care professionals to serve individuals with intellectual and developmental disabilities, the program strengthens Oregon’s rural health care workforce and improves access to high-quality care.



[ID: Serene landscape with grazing cattle, trees, and hills under a vibrant sunset in Molalla, Oregon.]

Image by MICHAEL MCGARRY from Pexels

FACT Oregon and Oregon Family to Family  Health Information Center are hosting a virtual training on one-page profiles f...
08/21/2026

FACT Oregon and Oregon Family to Family Health Information Center are hosting a virtual training on one-page profiles for families of children of all ages and abilities. You will learn how a one-page profile can be used across multiple settings. The training is offered in both English and Spanish.

Learn how a powerful one-page profile can be used across multiple settings and interactions!

You will:
🧠Help doctors, dentists, therapists, IEP teams, and others understand unique needs and personality traits.
💪Communicate strengths and a vision for the future in one simple document

Simultaneous trainings will be provided in English and Spanish. This training is in partnership with the Oregon Family to Family Health Information Center.

Learn more and register here:
https://factoregon.org/training-calendar/one-page-profiles-a-simple-tool-for-school-medical-and-more

Free webinar: Supporting Siblings in Special Needs Families: Considerations and Practical TipsThis Oregon Family to Fami...
08/21/2026

Free webinar: Supporting Siblings in Special Needs Families: Considerations and Practical Tips

This Oregon Family to Family Health Information Center webinar is free for families of children with developmental differences ages 1 to 18. It will be held on Wednesday, September 16, 6–7:30 p.m. PDT.

You’ll learn:
- How to recognize the unique emotional impacts of being a sibling in a special needs family
- Practical connection strategies to support siblings' individual needs
- What support networks and resources exist for siblings to help promote long-term wellness

Register here: https://ohsu.ca1.qualtrics.com/jfe/form/SV_06DMAY9xawKiMYe

This presentation will occur in English. Request interpretation to another language or additional accommodations by September 9.



[ID: Two school aged children with dark brown hair play outside on a patio with sidewalk chalk.]

The recordings from Oregon's celebration of the 36th anniversary of the Americans with Disabilities Act (ADA) are now on...
08/18/2026

The recordings from Oregon's celebration of the 36th anniversary of the Americans with Disabilities Act (ADA) are now online. Watch them here: https://www.oregon.gov/odhs/providers-partners/Pages/ada-celebration.aspx

Did you miss out on Oregon's webinar series celebrating the 36th anniversary of the Americans with Disabilities Act (ADA)? Were you able to attend and wish you could relive the fun? We're excited to announce that recordings and materials from all four sessions are now available online: https://www.oregon.gov/odhs/providers-partners/Pages/ada-celebration.aspx #2026

This year's sessions included:
- Exploring cross-disability experiences and support needs
- Building inclusive and accessible emergency management systems
- ADA: How far we've come and what comes next
- Understanding DOJ's ruling on digital accessibility

Recordings from 2024 and 2025's celebrations are also on this webpage.

Thank you to everyone who attended! We're looking forward to celebrating the 37th anniversary with you in 2027!

🎉 A huge congratulations to our amazing 2026 UCEDD Summer Interns!Each intern successfully completed the program and pre...
08/11/2026

🎉 A huge congratulations to our amazing 2026 UCEDD Summer Interns!

Each intern successfully completed the program and presented their work on Friday, August 7, in front of family, friends, staff, and other supporters. We are continually impressed by the professionalism, dedication, competence, and growth demonstrated by our summer interns, and the 2026 cohort was no exception. We are incredibly proud of all they have accomplished and grateful for the contributions they made throughout the summer.

We wish each intern the very best in their future academic and professional endeavors. Please stay in touch. We can't wait to see all that you accomplish in the years ahead!



[ID: Eleven professionally dressed young people stand in a row smiling proudly as they each hold their Summer Internship Program graduation certificate. A PowerPoint slide with the OHSU logo, the words "SIP Graduation" and an image of mortarboards tossed into a blue sky is on a large screen behind them.]

Attention Teachers! On Thursday, August 13, 12-1:30 p.m. PDT, learn about "Unpacking Systemic  " in a webinar training h...
08/06/2026

Attention Teachers! On Thursday, August 13, 12-1:30 p.m. PDT, learn about "Unpacking Systemic " in a webinar training hosted by Oregon School-Based Health Alliance.

Audience: staff working at youth-serving institutions (teachers, administrators, school health providers, community based organizations, etc.)

The rescheduled training is coming up next month!

OSBHA is hosting an Unpacking Systemic Ableism webinar on Thursday, Aug. 13th, from 12-1:30pm, led by Amy Fellows and Jeni Canaday. This virtual training combines the lived experience of the trainers with historic and current policies and practices to create an impactful understanding of ableism, systemic ableism, and neurodivergence in the education and healthcare fields.

This webinar is intended for staff working at youth-serving institutions (teachers, administrators, school health providers, community-based organizations, etc.). General admission is $25 or free for OSBHA Gold and Platinum Members. You can register here: https://www.eventbrite.com/e/unpacking-systemic-ableism-training-tickets-1988132619183?aff=oddtdtcreator&keep_tld=true
Reach out to Hannah Smith with any questions: [email protected].

If you have been impacted by   in Oregon, there are resources available for community members and organizations. You can...
08/03/2026

If you have been impacted by in Oregon, there are resources available for community members and organizations. You can also call 1-833-699-0554 for 24/7 support.

Impacted by wildfires? 🔥

Upstream Access is a disability-led nonprofit that supports people with disabilities and older adults before, during, and after disasters. They have resources for organizations and community members impacted by wildfires this season.

Through their emergency response funding, they may be able to provide:

🔋 Backup power for medical devices, communication, or independence
😷 Wildfire smoke supplies, including NIOSH-approved respirators
🌡️ Extreme heat resources
🧰 Other emergency items based on individual needs

If your community has immediate needs this wildfire season, please email Erin at [email protected]

Address

707 SW Gaines Street
Portland, OR
97239

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