06/21/2025
Not all disabilities are visible.
You might see a smiling child and assume everything is fine.
But what you do not see are the daily challenges, the quiet strength, and the invisible battles happening inside her body.
My daughter has Batten Disease.
She cannot sit up on her own in a swing.
She needs full support to stay safe in a world that is not designed for her.
And yet, because her disability is not always obvious, people often assume she is just like every other child.
That is the hardest part.
When people cannot see the struggle, they forget to show compassion.
They forget to ask before they judge.
They forget that not every challenge is written on someone’s face.
Batten Disease is rare. It is devastating. And it is invisible to a lot of the world. But it is very real to us. It shapes every part of our lives.
So today, I ask one thing, just one thing!
Before you speak, pause.
Before you assume, remember that not every disability can be seen.
And for families like ours, that pause means everything.
