Sawyer Strong

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Sawyer Strong Sawyer is a 17 year old with Down syndrome who is currently in treatment for germinoma of the central nervous system(brain tumor) at St.

Jude’s in Memphis Tennessee. Follow along as we share our experience.

Made it! It’s a long trip riding solo with this guy snoozing away in the backseat. But, thankful to be with him. Antibio...
09/17/2026

Made it! It’s a long trip riding solo with this guy snoozing away in the backseat. But, thankful to be with him. Antibiotic infusion and port flush and šŸ¤žšŸ» we will be headed home.

09/03/2026

Asking all of you to whisper a prayer for Sawyer today and tomorrow. šŸ’›

After a pretty rough week, we will be heading back to St. Jude tomorrow for some testing. He has become increasingly fatigued, his appetite has disappeared again, he seems more off balance, and he says his head feels dizzy.

We are almost certain that what we’re seeing is related to medication and the lingering effects of radiation, but because he went from doing really well to suddenly not doing so well, his doctor wants to rule out anything more serious before the long weekend.

We have to be on campus in Memphis at 8 a.m., and it’s a little too late to try to arrange housing at this point—so we’ll be up with the chickens and headed out bright and early. šŸ“

Please pray for safe travels, reassuring tests, clear answers, and for our sweet boy to start feeling like himself again. šŸ’›

Sawyer Strong. šŸŽ—ļø

NED. THREE LETTERS WE HAVE PRAYED FOR. ā¤ļøToday, August 20, 2026, Dr. Chamdine gave us the words we have been praying, be...
08/20/2026

NED. THREE LETTERS WE HAVE PRAYED FOR. ā¤ļø

Today, August 20, 2026, Dr. Chamdine gave us the words we have been praying, begging, hoping and believing we would hear:

SAWYER IS NED — NO EVIDENCE OF DISEASE!!!! šŸ™ŒšŸ˜­ā¤ļø

And y’all… Dr. O told us he does not usually give that designation this early after treatment unless he is 100% sure.

I don’t even know how to put into words what it feels like to hear that.

Since December 29th, our lives have been filled with words we never wanted to learn. Brain tumor. Germinoma. Hydrocephalus. Chemotherapy. Brain surgery. Radiation. Scans. Labs. Procedures. Side effects. Fear.

And today we got three new letters.

N. E. D.

No evidence of disease.

His brain MRI shows no definite evidence of residual or recurrent tumor. His spine is clear. There is no evidence of leptomeningeal disease. And today, the doctor who has walked every step of this journey with us looked at all of it together and told us what we have been waiting to hear:

Sawyer has NO EVIDENCE OF DISEASE.

Seven and a half months ago, we walked into a world we knew nothing about, absolutely terrified of what the future might hold. Today, we walked out carrying an answer to thousands of prayers.

We know there will still be follow-ups. There will still be scans. There will still be healing and recovery from everything his body and brain have been through.

But today we celebrate.

We celebrate this kid who kept smiling, kept fighting, kept trusting us, and somehow managed to bring joy into some of the hardest days of our lives.

We celebrate every doctor, nurse, therapist, child life specialist, radiation therapist, surgeon, friend, family member and every single person who prayed Sawyer through this.

We celebrate St. Jude.

And most of all, we give every bit of glory to God, who has carried us through every terrifying moment of this journey.

SAWYER IS NED!!!! šŸ˜­šŸ™Œā¤ļø

Say it again.

NO. EVIDENCE. OF. DISEASE.

Today is a very, very good day. ā¤ļø

I know so many of you are waiting for an update, and trust me — WE ARE SO EXCITED and it is HARD to wait! šŸ™ŒšŸ»šŸ˜­šŸ’›We have re...
08/20/2026

I know so many of you are waiting for an update, and trust me — WE ARE SO EXCITED and it is HARD to wait! šŸ™ŒšŸ»šŸ˜­šŸ’›

We have received some really, really encouraging results from Sawyer’s scans today, and our hearts are incredibly grateful.

But I’m trying very hard to practice a little patience tonight. šŸ˜‚ We meet with Dr. Omar first thing in the morning, and I want to hear the entire picture directly from him — what all of today’s scans, labs and testing mean together and what the plan looks like moving forward — before I give a big update.

After everything Sawyer has been through, I don’t want to accidentally misinterpret something or create any confusion. I want to be able to share a 100% factual update once we’ve sat down with the man who has guided us through this journey from the beginning.

So hang tight with us just a little longer. šŸ’›

But tonight… we are smiling. We are grateful. We are hopeful. And we are thanking God for some very encouraging words on those reports.

Tomorrow morning we get the big picture.

And then I promise I’ll share it with all of you who have prayed, loved, encouraged and carried our family through these last eight months. šŸŽ—ļøšŸ’›

One more sleep. šŸ™ŒšŸ»

Shoutout to the ā€œnot picturedā€ Sawyer’s ā€œbestieā€ Brandy Knoblock

It’s Sunday night. Post-treatment scans are just a couple of days away, and the scanxiety has hit me like a freight trai...
08/17/2026

It’s Sunday night. Post-treatment scans are just a couple of days away, and the scanxiety has hit me like a freight train.

Sawyer is filled with lots of questions. He has his own worries, and even a little excitement about getting to see some of the people he loves in Memphis.

But as I sit here watching him get a fresh shave from my husband, I’m reminded that at the end of the day, he’s just a kid.

A kid who needs so much reassurance. So much strength. So much support.

And I’m incredibly grateful that he has a village that lifts him up and a family who has loved him loudly—not just through the last seven months, but his whole life.

Loudly.

And if I’m being really real tonight, I’m afraid. And I’m sad.

I’m afraid that every ā€œnormalā€ thing we do over the next couple of days could suddenly be taken away. Afraid that we could all be thrust right back into the chaos that pediatric cancer brings.

I’m afraid of holding too tightly to this beautiful normal we’ve gotten back… and afraid I’m not holding onto it tightly enough.

And I’m sad that I even have to worry about any of these things.

So y’all, whisper a prayer for all of us this week. This is a big one for our guy.

For this sweet fella who has so much trust in his doctors, his Savior, and his family that he is going to be okay.

And maybe tonight, I need to borrow a little bit of that trust from him.

We’ve made it this far. One day, one prayer, one step at a time.

Here we go. ā¤ļø

Jr class back to school bash and yours truly had the best time! Shout out to his classmates for being inclusive! Special...
08/08/2026

Jr class back to school bash and yours truly had the best time! Shout out to his classmates for being inclusive!
Special thanks to Preston for inviting him to ride to the event with him, first time he’s ever went anywhere without a family memeber or very close family friend. I was nervous but he wasn’t!!

Sawyer is officially headed to the beach with a whole bunch of the fam bam to celebrate the end of treatment! šŸŒŠā˜€ļøAs you ...
07/24/2026

Sawyer is officially headed to the beach with a whole bunch of the fam bam to celebrate the end of treatment! šŸŒŠā˜€ļø

As you can see, his scar from his tumor resection has healed so beautifully. Over the last few days he’s had a little more hair loss, but if you know Sawyer, you know he’s rocking it with confidence anyway.

Stay tuned for all the beach adventures as this sweet boy lives life to the fullest and squeezes every drop out of the little bit of summer that’s left.

Our hearts are so full. After everything these last 200+ days have held, this trip feels like such a gift. We are incredibly grateful—for God’s faithfulness, for St. Jude, for every prayer, every encouraging message, and every person who has walked this journey with us.

Here’s to making memories, soaking up the sunshine, and celebrating life. šŸ’™šŸ–ļø

We made it. ā¤ļøToday, Sawyer completed treatment.I don’t know that I have the words to fully describe what this moment me...
07/17/2026

We made it. ā¤ļø

Today, Sawyer completed treatment.

I don’t know that I have the words to fully describe what this moment means—for my child, for our family, and for me… his ā€œMommy Doctor,ā€ as he calls me these days.

St. Jude has given us something that once felt impossible: a path home with our son.

He’s still healing, but he’s whole.

Scans are still to come in a month, but today… he’s whole.

He carries a scar that tells his story, but he is WHOLE.

Sawyer may never fully understand just how differently this journey could have gone. But I do.

And because of that, I will never stop thanking God for His grace and mercy. We are incredibly blessed—not only to be Sawyer’s family, but to be a St. Jude family.

To every person who has prayed, sent a message, donated, encouraged us, cried with us, celebrated with us, or simply whispered Sawyer’s name to God when you thought of him…

Thank you.

You have carried us more than you’ll ever know.

As we begin the transition back to ā€œnormalā€ life—whatever normal looks like now—we ask that you continue praying for Sawyer.

Please pray for clear scans on August 19th and for the words we’ve longed to hear on August 20th:

No Evidence of Disease.

We love each and every one of you who has been part of this journey, no matter how big or small your role may have seemed.

We truly would not be here without your prayers, your love, and God’s amazing grace.

200 days.
Countless prayers.
Infinite grace.

Sawyer Strong. Always. šŸ’ššŸ””

07/16/2026
07/16/2026

Almost go time!!

Address

509 Meadow Drive
Red Bay, AL
35582

Telephone

+12568102442

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