Wyatt’s Journey with Kostmann Syndrome

06/21/2026

Please consider registering as a bone marrow donor. The links are on my page in my bio 💕💙

06/13/2026

From one amazing mom to another thank you for supporting our cause 🥰

06/10/2026

Wyatt’s Story 💙

At only a few weeks old, Wyatt was diagnosed with a one in a million genetic disorder.

05/27/2026

When my son Wyatt was diagnosed with severe congenital neutropenia, also known as Kostmann Syndrome, in early 2026, our world changed overnight. Wyatt had been hospitalized since he was just two and a half weeks old due to infections, a slow-healing umbilicus, and an ANC of 0.0. During one of the most overwhelming times in our lives, I turned to social media searching for families facing similar challenges. Because of how incredibly rare this diagnosis is, I struggled to find information, support, or others who truly understood what we were experiencing.
Kostmann Syndrome is exceptionally rare, affecting fewer than one in a million people worldwide. That is why I decided to create this page — not only to share Wyatt’s journey, but also to connect with and support other families raising medically complex children. While every child’s story will look different, I hope this space can offer comfort, encouragement, hope, and positivity to anyone navigating difficult medical challenges or simply needing a little extra support along the way.
We have been incredibly blessed with amazing hospital staff and a knowledgeable physician who was able to diagnose Wyatt quickly, giving us answers when we desperately needed them. Through this page, I hope to raise awareness, share our experiences honestly, and remind other families that they are never alone in this journey.