NCED - Family Navigation Network

09/09/2026

09/08/2026

🎗️💛 September is Childhood Cancer Awareness Month. 💛🎗️

When childhood cancer touches a family, life can change in an instant. The diagnosis, treatment, uncertainty, and emotional toll can feel overwhelming—but no family should have to face it alone.

Across Nevada, organizations are here to help:

🎗️ Northern Nevada Children’s Cancer Foundation — provides financial assistance and compassionate support programs for children and families throughout Northern Nevada.

🎗️ Candlelighters Childhood Cancer Foundation of Nevada — provides emotional support, quality-of-life programs, and financial assistance to children and families affected by childhood cancer.

🎗️ Cure 4 The Kids Foundation — Nevada’s only childhood cancer and rare disease treatment center, providing specialized care and comprehensive support for children and families in Southern Nevada.

🎗️ Nevada Childhood Cancer Foundation — provides social, educational, financial, and psychological support to families of children facing life-threatening or critical illnesses.

And sometimes, what a family needs most is someone who gets it.

Parent to Parent of Nevada offers one-on-one peer support through trained Volunteer Support Parents. We currently have 10 Volunteer Support Parents with lived experience of pediatric cancer who understand the journey and can offer a listening ear, encouragement, and the comfort of connecting with someone who has been there.

Whether your family is newly diagnosed, in treatment, celebrating the end of treatment, navigating survivorship, or grieving a child, please know that support is available.

Reach out. Ask for help. Find your people. You don't have to walk this journey alone. 💛

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09/06/2026

💜 Feeding-tube families: Did you know there are ENFit syringes actually designed to be washed and reused?

Many of us wash and reuse the syringes we receive with enteral supplies because… we do what we gotta do. 😅 And if you know, you know: the big rubber stopper works great for a minute, then starts sticking after washing and quickly becomes unusable. It’s why so many families treasure the unicorn O-ring syringe. 🦄

What many of us didn’t know? Reusable ENFit syringes are actually a separate product category, including versions with those coveted silicone O-ring plungers designed for repeated washing and use.

A few examples:

💜 Vesco MultiFil: 10 mL & 60 mL, with the coveted silicone O-ring. Designed for single-patient reuse for up to 14 days with proper cleaning. VED-610R / VED-660R.

💜 Avanos NEOMED At Home: reusable ENFit syringes designed for multiple uses at home, available in 3, 6, 12 & 60 mL.

💡 Check what you’re currently receiving and ask your DME supplier:

“Do you carry or can you order single-patient reusable ENFit syringes with silicone O-ring plungers?”

Product links and examples in the comments. 👇

Nevada families, we want to know: Are you already getting reusable/O-ring syringes? From which supplier? Have you ever been offered the choice?

Sometimes knowing what to ask for is half the battle. 💜

09/05/2026

15,340.

That's how many children and adolescents ages 0–19 are estimated to be diagnosed with cancer in the United States this year.

And 1,820 are expected to die from it.

Those numbers are difficult to read. But here's what I want us to remember:

They aren't just numbers. Every one represents a child.

Someone's daughter.

Someone's son.

Someone's sibling.

Someone's best friend.

Thankfully, families facing childhood cancer in Nevada have organizations ready to help:

🎗️ Northern Nevada Children’s Cancer Foundation — provides financial assistance and compassionate support programs for children and families throughout Northern Nevada.

🎗️ Candlelighters Childhood Cancer Foundation of Nevada — provides emotional support, quality-of-life programs, and financial assistance to children and families affected by childhood cancer.

🎗️ Cure 4 The Kids Foundation — Nevada’s only childhood cancer and rare disease treatment center, providing specialized care and comprehensive support for children and families in Southern Nevada.

🎗️ Nevada Childhood Cancer Foundation — provides social, educational, financial, and psychological support to families of children facing life-threatening or critical illnesses.

💛 And sometimes, what a family needs most is someone who gets it.

Parent to Parent of Nevada offers one-on-one peer support through trained Volunteer Support Parents (VSPs) who have lived experience. We currently have 10 trained Volunteer Support Parents with lived experience of childhood cancer who can offer a listening ear, encouragement, understanding, and the comfort of connecting with someone who has been there.

🎗️ Help us raise awareness today by sharing this post.

The more people who understand the impact of childhood cancer, the harder it becomes for these children and families to be overlooked.

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08/27/2026

Northern and rural Nevada families are invited to a free Family Engagement Workshop hosted by Act4Kids Nevada! 📣

Join us for an afternoon focused on supporting and engaging families across our communities.

📅 Saturday, October 3, 2026
⏰ 1:00–5:00 p.m.
📍 Innevation Center at UNR
450 Sinclair Street, Reno, NV 89501

The workshop is free and open to all Northern and rural Nevada families. Registration is required!

Learn more and register: https://act4kidsnevada.org/news/family-engagement-workshop/

08/24/2026

Great news! 🎉 The Transition Webinar Series has been extended through December!

Join the Family Navigation Network for a virtual webinar designed to help youth with disabilities and their families navigate the road to independence.

Sessions are held on Saturdays from 9:00–11:30 a.m. Don’t miss these valuable opportunities to learn, connect, and prepare for the future!

Follow the link to register: https://event.fourwaves.com/transition/registration

08/24/2026

🌱 Build skills for greater independence with Amplify Life’s Personal Growth Skills class in Reno, Nevada!

This 10-week course helps adults ages 18 and older develop practical skills for living more independently. Topics include healthy eating, exercise, personal hygiene, cleaning and laundry, personal safety, community skills, mental health, and coping strategies.

📅 September 8–November 12, 2026
⏰ Tuesdays and Thursdays, 4–6 p.m.
💲 $400 total or $40 per week

Tuesdays feature classroom learning, role-playing, and worksheets, while Thursdays include community outings and activities.

To register, email Kennedy at [email protected] or call 775-827-3866. Spaces may be limited, so register today! 💙

08/20/2026

Family caregivers are experts, and that experience can be a powerful foundation for leadership. 💙

Family Voices is offering a free, year-long online leadership development program for parents, family members, and caregivers of children and young adults with disabilities and special health care needs.

Applications are due August 24! Follow QR code for more information.

08/06/2026

🐾 More than just man’s best friend, they are independent lifesavers! Happy International Assistance Dog Week! 🌟

This week, we honor the extraordinary guide, service, and medical alert dogs that provide independence, safety, and dignity to individuals with disabilities under the ADA.

From navigating busy city streets to alerting to medical changes before they happen, these highly trained partners change lives every single day. Behind every great assistance dog is a dedicated network of trainers, raisers, and handlers who make this freedom possible.

Let’s show some love to the hard-working pups who make the world a more accessible place! ❤️



Versión en español ⬇️

🐾 ¡Más que el mejor amigo del hombre, son salvavidas independientes!¡Feliz Semana Internacional del Perro de Asistencia! 🌟

Esta semana honramos a los extraordinarios perros guía, de servicio y de alerta médica que brindan independencia, seguridad y dignidad a las personas con discapacidad bajo la ADA.

Desde guiar en las calles concurridas de la ciudad hasta alertar sobre cambios médicos antes de que ocurran, estos compañeros altamente entrenados cambian vidas todos los días. Detrás de cada gran perro de asistencia hay una red dedicada de entrenadores, criadores y usuarios que hacen posible esta libertad.

¡Demostremos un poco de amor por estos cachorros trabajadores que hacen del mundo un lugar más accesible! ❤️