Huntington Study Group

Huntington Study Group Accelerating treatments that make a difference for Huntington's disease. For more information, visit www.huntingtonstudygroup.org.

The Huntington Study Group (HSG), a not-for-profit organization founded in 1993 in Rochester, NY, and its wholly owned subsidiary, HSG Clinical Research, Inc., designs and conducts clinical trials through the world’s first and largest collaborative network of over 800 experts in Huntington’s disease at more than 130 HSG credentialed research sites worldwide. HSG is dedicated to improving the lives of people impacted by Huntington’s disease through research, education, and collaboration.

05/14/2026

Registration is now open for the 2026 HSG Clinical Care & Research Symposium Series: Huntington’s Disease Across the Lifespan.

Join healthcare professionals, researchers, coordinators, advocacy leaders, and industry partners from across the HD community for a collaborative regional series focused on advancing Huntington’s disease care and research.

This interdisciplinary program will explore:
• Best practices in HD clinical care and research
• Real-world challenges in care delivery
• Emerging therapeutic and research advancements
• Collaboration across HSG sites, HDSA Centers of Excellence, and partner institutions

2026 Regional Locations:
📍 Sacramento, CA | September 17–18
📍 Houston, TX | September 24–25
📍 Boston, MA | October 29–30

Each regional meeting begins on Thursday with a dedicated Ready for Research session designed for healthcare professionals focused on strengthening clinical research readiness, addressing operational challenges, and sharing practical solutions across HD research sites. The full-day symposium follows on Friday, bringing together the broader HD community for collaborative discussions on clinical care and research.

Learn more and register today: https://huntingtonstudygroup.org/annual-meeting/hsg-clinical-care-research-symposia-series-2026/

Introducing Ready for Research — a dedicated, case-based forum designed for healthcare professionals supporting HD resea...
05/07/2026

Introducing Ready for Research — a dedicated, case-based forum designed for healthcare professionals supporting HD research.

As part of the HSG Symposia Series, “HD Across the Lifespan,” this interactive session focuses on real-world operational challenges, practical solutions, and the sharing of best practices to support excellence in clinical research.

Through small group discussion and peer-driven learning, participants will have the opportunity to collaborate, exchange experiences, and explore strategies they can apply directly within their own sites and teams.

2026 Ready for Research Sessions:

📍 Sacramento, CA — September 17
Symposium to follow on September 18

📍 Houston, TX — September 24
Symposium to follow on September 25

📍 Boston, MA — October 29
Symposium to follow on October 30

Registration details coming soon for each region. We look forward to collaborating with you in 2026!

Volume 35 of HD Insights is here!This "HD in the Age of AI" issue explores the growing role of artificial intelligence i...
04/08/2026

Volume 35 of HD Insights is here!

This "HD in the Age of AI" issue explores the growing role of artificial intelligence in advancing discovery, enhancing care, and informing the future of clinical research. It also features perspectives on global access, emerging therapies, and the legacy driving progress forward.

Don’t miss this forward-looking edition bringing together voices across science, care, and the HD community.

Read it now: https://huntingtonstudygroup.org/volume/volume-35/

Today, the HSG would like to express our gratitude to the entire HD Community. At the core of every clinical trial prot...
03/23/2026

Today, the HSG would like to express our gratitude to the entire HD Community. At the core of every clinical trial protocol, in the details of each trial visit, in the results of every lab test, and in the day-to-day running of an HD clinic, there is a patient and family with hope for an effective treatment. Thank you to all of the HD researchers, clinicians, pharmaceutical companies, clinical trial vendors/partners, advocacy groups, and, most importantly, to the study participants, caregivers, and families who give so much of themselves to help accelerate treatments that will make a difference for those impacted by Huntington’s disease.

Meet the inaugural HD-PACT Fellows!Developed in collaboration with CHDI Foundation, Huntington Study Group, Huntington's...
03/12/2026

Meet the inaugural HD-PACT Fellows!

Developed in collaboration with CHDI Foundation, Huntington Study Group, Huntington's Disease Foundation, and Huntington's Disease Society of America, the program invests in the next generation of clinicians and researchers dedicated to advancing Huntington disease care.

Beginning in July 2026, fellows will train at leading academic institutions while gaining experience in multidisciplinary HD care and research.

New CME opportunity for healthcare providers caring for people impacted by Huntington disease.Huntington Study Group, in...
03/11/2026

New CME opportunity for healthcare providers caring for people impacted by Huntington disease.

Huntington Study Group, in collaboration with Vanderbilt University Medical Center, has launched a new CME4HD course focused on recognizing and managing the neuropsychiatric symptoms of Huntington disease.

This interactive, self-paced module uses real-world case studies to help clinicians across specialties better recognize complex cognitive, behavioral, and psychiatric presentations of HD. The goal is to support earlier diagnosis, improve patient care, and strengthen clinical research across the HD community.

Read the full announcement: https://huntingtonstudygroup.org/news/huntington-study-group-and-vanderbilt-university-medical-center-launch-newcme4hd-course-on-neuropsychiatric-symptoms-in-huntington-disease/

Save the Date for HD Across the Lifespan: HSG Clinical Care & Research SymposiumThis year, Huntington Study Group is pro...
02/23/2026

Save the Date for HD Across the Lifespan: HSG Clinical Care & Research Symposium

This year, Huntington Study Group is proud to host three regional symposiums bringing our HD community together in:

📍 Sacramento, CA | September 17–18
📍 Houston, TX | September 24–25
📍 Boston, MA | October 29–30

These meetings are a unique opportunity for pharmaceutical companies, interdisciplinary healthcare providers, research sites, and advocacy leaders to come together to jointly discuss regional and national opportunities in Huntington’s disease care and research.

By creating space for open dialogue and collaboration, we strengthen the continuum of care for HD patients, caregivers, and families.

Registration details coming soon for each region. We look forward to collaborating with you in 2026.

Are you a researcher or clinician in the HD field? We’d value your input!As we strengthen collaboration with our colleag...
02/23/2026

Are you a researcher or clinician in the HD field? We’d value your input!

As we strengthen collaboration with our colleagues at the European Huntington's Disease Network, we are revitalizing HSG Working Groups to maximize impact and reduce redundancy across global HD research efforts.

Your expertise helps shape:
• International collaboration
• Scholarly publications
• Congress presentations
• Advancements in HD research and care

If you are actively involved in HD research or clinical care, please take a few minutes to complete our survey, which will be open until February 27.

Link to survey: https://app.smartsheet.com/b/form/33612f602459426894503c374981f3cd

The February issue of HSG’s newsletter, Inside the Helix, is now available.We’re excited to share the latest updates fro...
02/12/2026

The February issue of HSG’s newsletter, Inside the Helix, is now available.

We’re excited to share the latest updates from HSG, including:
• New Executive Committee and Advisory Council leadership
• 7 HD-PACT fellowships awarded
• Upcoming 2026 regional symposia info
• Trial and research updates
• News on our working groups

Thank you for being part of our shared mission to advance Huntington’s disease research.

Download the full newsletter here:https://huntingtonstudygroup.org/wp-content/uploads/2026/02/February-2026-Newsletter.pdf

What role is AI (Artificial Intelligence) playing in Huntington’s disease today?We want to hear from clinicians, researc...
02/04/2026

What role is AI (Artificial Intelligence) playing in Huntington’s disease today?

We want to hear from clinicians, researchers, industry and families to better understand how AI is being used across the HD community.

Take our quick 5-minute, anonymous survey to help shape an upcoming HD Insights article on AI's role in HD research, care, education, and beyond.

The survey closes on Friday, February 6.

Link to survey: https://app.smartsheet.com/b/form/b43ca064f82944b8b90e9aa7dea0f1b0

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Rochester, NY
14618

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