PNH Foundation

PNH Foundation AAMDSIF supports, connects and educates patients, caregivers and health professionals on bone marrow

The PNH Research and Support Foundation has merged with the Aplastic Anemia and MDS International Foundation. We support, connect and educate patients, caregivers and health professionals on bone marrow failure diseases worldwide. We also promote and invest in collaborative clinical research to accelerate the discovery of better treatments and cures for aplastic anemia, MDS, PNH and related bone marrow failure diseases.

Register today for Virtual Support Groups! 🩸Find others with your disease, to chat, encourage, or be encouraged! All aff...
05/31/2026

Register today for Virtual Support Groups! 🩸
Find others with your disease, to chat, encourage, or be encouraged!

All affected by Aplastic Anemia, MDS, or PNH are welcome to attend these disease-focused groups. There's a special group for parents of pediatric patients as well.
Register/find more information: https://www.aamds.org/support/patient-family-support-groups

We're cheering for you!

What is High Risk, or Higher Risk, MDS?Myelodsyplastic Syndromes have a variety of risks, depending on the genetic mutat...
05/30/2026

What is High Risk, or Higher Risk, MDS?
Myelodsyplastic Syndromes have a variety of risks, depending on the genetic mutation and the IPSS-M Score.
Listen to Dr. J. Gonzalez Lugo explain the what High Risk MDS means for patients in this recording: https://www.aamds.org/share/webinar/771

You can learn about Aplastic Anemia, MDS/AML/MPN, and PNH at this conference on June 13 in Seattle, WA. Don't miss out ...
05/29/2026

You can learn about Aplastic Anemia, MDS/AML/MPN, and PNH at this conference on June 13 in Seattle, WA. Don't miss out on your chance to learn from the experts! Patients, families, and friends are welcome!

-Learn current thinking on disease and treatments
-Hear about what's on the horizon for treatments
-Gain practical information on how to improve your health and well-being
-Get answers to your questions from top medical experts
-Connect with other patients and families
Register now: https://www.aamds.org/conference-events/2026-seattle-patient-and-family-conference

Dealing with PNH is a long-term journey. Judy recently shared her story with Patient and Family Conference attendees, g...
05/28/2026

Dealing with PNH is a long-term journey.
Judy recently shared her story with Patient and Family Conference attendees, giving hope as she described both challenges and joys.
Listen and watch her real-life story here: https://www.aamds.org/share/webinar/769

With the recent approval of Omisirge for Severe Aplastic Anemia (SAA), patients may be offered this option.Do you have q...
05/27/2026

With the recent approval of Omisirge for Severe Aplastic Anemia (SAA), patients may be offered this option.
Do you have questions about what this means for you, or for the patient in your life?
Find out what you need to know in this interview with the primary investigator for this treatment, Dr. Richard Childs: https://www.aamds.org/podcast/fda-approves-omisirge-treat-patients-severe-aplastic-anemia
His explanation is thorough yet easy to understand. Listen now.

“Your blood levels are so low, we don’t know how you are standing up right now. You could have leukemia. You need to go...
05/26/2026

“Your blood levels are so low, we don’t know how you are standing up right now. You could have leukemia. You need to go to the ER.”

Geordy's life was about to be interrupted in ways he never expected.
From a regular, full, life, to weeks in the hospital, the diagnosis of aplastic anemia came as a confusing shock.

To find out how Geordy made it through treatment and beyond, read his story here: https://www.aamds.org/patient-chronicles/geordy-murphy

We remember the fallen heroes who bravely fought for our freedom.The office is closed in honor of the US Federal Holiday...
05/25/2026

We remember the fallen heroes who bravely fought for our freedom.
The office is closed in honor of the US Federal Holiday.

Please feel free to visit the website or email [email protected]. We will be happy to reach back to you as soon as possible.

What is Aplastic Anemia? What causes it? What is the treatment?If you are looking for easy-to-understand answers, the ...
05/23/2026

What is Aplastic Anemia? What causes it? What is the treatment?
If you are looking for easy-to-understand answers, the answers are here!
Dr. Reeves explains everything you want to know about Aplastic Anemia in this recent recording. Watch now: https://www.aamds.org/share/webinar/798

Patients with MDS, MPN, or MDS/MPN Overlap: What do you know about this condition and its treatment?Watch this recordin...
05/22/2026

Patients with MDS, MPN, or MDS/MPN Overlap: What do you know about this condition and its treatment?
Watch this recording for a thorough explanation of MDS/MPN Overlap: https://www.aamds.org/share/webinar/802
/MPN -MPN

Address

401 N Washington Street, Ste 430
Bethesda, MD
20850

Opening Hours

Monday 8:30am - 4pm
Tuesday 8:30am - 4pm
Wednesday 8:30am - 4pm
Thursday 8:30am - 4pm
Friday 8:30am - 4pm

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